Leg pains in CHD: a distressing symptom of a wider problem

Anecdotal reports suggest that children and young adults with CHD frequently experience pain in their legs. The purpose of this pilot study, performed by Little Hearts Matter patient organisation, was to assess the burden of leg pains in this group and begin to investigate associated factors and consequences for daily living. To read the full report please click on the link above.

25th Anniversary Membership Survey – Creating a Better Future.

In its 25th Anniversary year Little Hearts Matter sought to review how the needs of its membership may have changed over the past 25 years and where their greatest challenges are moving forward. The following paper explores the results of the survey and sets out the actions that the charity will take moving forward. Click Here to access the survey

Research priorities in single-ventricle heart conditions: a United Kingdom national study

The object was to bring together stakeholders in the United Kingdom to establish national priorities for research in single-ventricle heart conditions. In partnership with Little Hearts Matter, the group in Birmingham brought together patients, their parents, healthcare professionals, researchers and charities from across the UK. Their findings have been published in the journal Cardiology in the Young and can be viewed by clicking on the link above.

Be social with us - our latest tweets and posts

    What is a single ventricle heart condition (SVHC)?

    SVHC’s are a form of complex congenital heart condition. The child has only one working heart pump, affecting the flow of oxygenated blood around the body.

    We are the only charity in the UK dedicated to supporting families affected by the diagnoses of a single ventricle heart condition. Learn more here - bit.ly/lhm-SVHC

    Please share.
    ... See MoreSee Less

    7 hours ago  ·  

    View on Facebook

    Stop!

    Not everyone knows about Congenital Heart Disease (CHD), but together we can tell them.

    CHD is a term used to describe a number conditions that effect the way that the heart works. The term ‘congenital’ means that the condition is present from birth.

    Hit share, let’s raise awareness for CHD now.
    ... See MoreSee Less

    1 day ago  ·  

    View on Facebook