BCCA COVID-19 infection in Congenital Heart Disease study

Click here for more information about the The COACHeD study.

#HealthcareScienceWeek – Treatments for Single ventricle: The Early Years

Cardiologist, author, friend of LHM Kate Bull very generously created this fantastic article for us – exploring the history of treatment for single ventricle heart conditions.

NIHR – Heart surgery in young children

“Routine monitoring of complications can help assess the quality of care – Informative and accessible heath and care research”

Produced by friend of LHM, Kate Bull. 

Leg pains in CHD: a distressing symptom of a wider problem

Anecdotal reports suggest that children and young adults with CHD frequently experience pain in their legs. The purpose of this pilot study, performed by Little Hearts Matter patient organisation, was to assess the burden of leg pains in this group and begin to investigate associated factors and consequences for daily living. To read the full report please click on the link above.

25th Anniversary Membership Survey – Creating a Better Future.

In its 25th Anniversary year Little Hearts Matter sought to review how the needs of its membership may have changed over the past 25 years and where their greatest challenges are moving forward. The following paper explores the results of the survey and sets out the actions that the charity will take moving forward. Click Here to access the survey

 

Research priorities in single-ventricle heart conditions: a United Kingdom national study

The object was to bring together stakeholders in the United Kingdom to establish national priorities for research in single-ventricle heart conditions. In partnership with Little Hearts Matter, the group in Birmingham brought together patients, their parents, healthcare professionals, researchers and charities from across the UK. Their findings have been published in the journal Cardiology in the Young and can be viewed by clicking on the link above.

Be social with us - our latest tweets and posts

    "University is a truly wonderful experience, a chance to learn more about yourself and your heart condition. I never expected to go to Uni, but I did it, and the life lessons learned will be taken with me into the future! Know you can say NO! And nestle yourself in the right group, it’ll be the best few years you’ll ever experience."Shared by Luke, one of our young adult members, thank you! ... See MoreSee Less

    17 hours ago  ·  

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    Siblings are very much part of the LHM family and we just wanted to thank these two fundraising superstars for raising an incredible amount of money for Little Heart Matter, all inspired by their baby bro, Louis, who was born with half a working heart. Thank you girls. If you would like to bring your family together and raise some money for LHM, please get in touch with our friendly fundraising team, we have loads of ideas for you [email protected] ... See MoreSee Less

    18 hours ago  ·  

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