Every year about 450 babies are born with a heart condition that is incompatible with life. Their only chance is a series of major heart operations that, if they succeed, will give them a chance to grow up. They will only ever have half a heart and they have to learn how to live within the restrictions that the condition creates.

Whilst it is very important to understand the many challenges that having half a heart creates, it is also essential to help the children, and adults, living with the condition to meet their full potential.

Little Hearts Matter works with children, young adults and families at every step of their half a heart journey. Supporting, informing and offering advice and advocacy as they meet every hurdle and rejoicing with them at every success .

During Congenital Heart Awareness week we are asking you to help us raise awareness that not every child with a heart condition can have a cure but that every child with half a heart can reach their full potential if they get the support they deserve.

By changing your social media profile picture, you will make a genuine difference. To do this, please go to this link https://twibbon.com/Support/chd-week-2018, follow the instructions by adding our “Twibbon” to your Facebook or Twitter profile and help us to make a difference this CHD Awareness Week.

Thank you. x

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    Living every day being different from your peers is frustrating.
    So it is time to reward young people striving to manage the challenges that having half a heart creates. Little Hearts Matter has created a series of awards for 8 – 18 year olds that aim to encourage young people living with half their heart to learn more about their condition and how to manage the challenges they face every day. For more information about the Brave Heart Awards and nomination forms, please follow the link
    www.lhm.org.uk/zipper-zone/lhm-brave-heart-awards/
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    2 hours ago  ·  

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    If you're planning on hosting a get together with family and friends this summer, why not make it a Summer Celebration in aid of Little Hearts Matter? It's the perfect way to enjoy the sun and raise funds to support children with half a heart. Request your pack here bit.ly/2TlDj9U ... See MoreSee Less

    17 hours ago  ·  

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