Every year about 450 babies are born with a heart condition that is incompatible with life. Their only chance is a series of major heart operations that, if they succeed, will give them a chance to grow up. They will only ever have half a heart and they have to learn how to live within the restrictions that the condition creates.

Whilst it is very important to understand the many challenges that having half a heart creates, it is also essential to help the children, and adults, living with the condition to meet their full potential.

Little Hearts Matter works with children, young adults and families at every step of their half a heart journey. Supporting, informing and offering advice and advocacy as they meet every hurdle and rejoicing with them at every success .

During Congenital Heart Awareness week we are asking you to help us raise awareness that not every child with a heart condition can have a cure but that every child with half a heart can reach their full potential if they get the support they deserve.

By changing your social media profile picture, you will make a genuine difference. To do this, please go to this link https://twibbon.com/Support/chd-week-2018, follow the instructions by adding our “Twibbon” to your Facebook or Twitter profile and help us to make a difference this CHD Awareness Week.

Thank you. x

Be social with us - our latest tweets and posts

    Open Heart Surgery during Lock-down | LHM parent member Rose shares some uplifting words for us.

    "We were very apprehensive about this surgery as the last one he had was a very long recovery. He literally has made so many people proud, Naayt had his open heart surgery on the 11th June and was discharged 11 days later... home! yes, home!"

    "I couldn't believe it either. You will be so amazed at how pink they are after this surgery and its so lovely to see. The only thing that stops them is the drains which he had 1 left in literally 3 days before discharge and his inr being in range which happened on the day he was allowed home."

    "These kids are so amazing and I am so amazed at how fast they can recover and get through these operations."

    Half a Heart, Not Half a Life x
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    12 hours ago  ·  

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    Have you ever seen our first logo?

    In 1994 ‘Left Heart Matters’ was a team of volunteers, supporting families whose children had a life-threatening diagnosis of Hypoplastic Left Heart Syndrome. At the time, Birmingham Children's Hospital and Charity was the only centre treating for this rare condition.

    Half a Heart, Not Half a Life
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    22 hours ago  ·  

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