Every year about 450 babies are born with a heart condition that is incompatible with life. Their only chance is a series of major heart operations that, if they succeed, will give them a chance to grow up. They will only ever have half a heart and they have to learn how to live within the restrictions that the condition creates.

Whilst it is very important to understand the many challenges that having half a heart creates, it is also essential to help the children, and adults, living with the condition to meet their full potential.

Little Hearts Matter works with children, young adults and families at every step of their half a heart journey. Supporting, informing and offering advice and advocacy as they meet every hurdle and rejoicing with them at every success .

During Congenital Heart Awareness week we are asking you to help us raise awareness that not every child with a heart condition can have a cure but that every child with half a heart can reach their full potential if they get the support they deserve.

By changing your social media profile picture, you will make a genuine difference. To do this, please go to this link https://twibbon.com/Support/chd-week-2018, follow the instructions by adding our “Twibbon” to your Facebook or Twitter profile and help us to make a difference this CHD Awareness Week.

Thank you. x

Be social with us - our latest tweets and posts

    "Niamh's not feeling 100% today, I asked her if she'd be more comfortable in pyjamas than Jigzy but bless her heart she said "I like to wear this top because it reminds me of the special people like doctors and nurses and Little Hearts who all make me feel better when I don't feel good, so when I wear Jigzy I always smile and it makes me feel better. "Hooray for Jigzy 🥰 xxx"

    And hooray for children living with half a working heart today, just like Niamh here.

    Please share ❤️👇
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    1 day ago  ·  

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    “Shanniah age 1, HLHS, has truly enjoyed being out and about in the lovely weather so much so she gave herself the shakes 💕”

    If you are a member of the charity and have a feel-good moment to share, please send it to us via email to [email protected]

    Half a heart, not half a life
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    2 days ago  ·  

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