Every year about 450 babies are born with a heart condition that is incompatible with life. Their only chance is a series of major heart operations that, if they succeed, will give them a chance to grow up. They will only ever have half a heart and they have to learn how to live within the restrictions that the condition creates.

Whilst it is very important to understand the many challenges that having half a heart creates, it is also essential to help the children, and adults, living with the condition to meet their full potential.

Little Hearts Matter works with children, young adults and families at every step of their half a heart journey. Supporting, informing and offering advice and advocacy as they meet every hurdle and rejoicing with them at every success .

During Congenital Heart Awareness week we are asking you to help us raise awareness that not every child with a heart condition can have a cure but that every child with half a heart can reach their full potential if they get the support they deserve.

By changing your social media profile picture, you will make a genuine difference. To do this, please go to this link https://twibbon.com/Support/chd-week-2018, follow the instructions by adding our “Twibbon” to your Facebook or Twitter profile and help us to make a difference this CHD Awareness Week.

Thank you. x

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    By purchasing a patch on our Visufund blanket, you will allow us to continue to support the amazing heart-families like Daniela’s. Help us make them feel less isolated and less frightened. Help us wrap a blanket of care and support around them this Christmas.

    Click here to purchase a patch on our blanket of support visufund.co.uk/lhm-wrap-a-blanket

    Thank you for sharing and donating ❤
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    11 hours ago  ·  

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    One of our wonderful members Daniela shares her feelings of when she first learnt that her son had only half a heart...

    "It was one of the most difficult and uncertain times in our lives but it was also helpful knowing that others could understand what we were going through and that we had prepared ourselves and done everything we needed to do to understand what was going to happen to Oscar in surgery."

    “We are forever grateful for LHM for everything they have assisted us with, for what they have informed us about, and for the ongoing support we receive. We really couldn’t do this journey without the charity.”

    A huge thank you to Daniela for sharing your half-a-heart journey with us, we'd love for you to read the full story here: bit.ly/2QY5Bcp

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    15 hours ago  ·  

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