From 1st to 7th May,  we celebrate #mynormalisdifferent our most ambitious awareness week ever! 

The pandemic has thrown the world into crisis.  But what if you’ve always lived with risks in your life? As the UK emerges from lockdown, our members with half a working heart, and many other people with hidden disabilities, will continue to face challenges that the public cannot always see. 

Together we can give people with hidden disabilities a voice, because “normal” means something different for us all.

#mynormalisdifferent

Hi! 

We are Little Hearts Matter, the only UK charity dedicated to supporting anyone affected by a single ventricle heart condition, also known as ‘half a working heart’ or ‘half a heart’. If you’re not sure what that means, don’t worry, click here to learn more. 

We offer very unique, specialised guidance and support to families facing the challenges of life with a complex heart condition. Just to put things into perspective, most children born with a single ventricle heart undergo a series of open heart surgeries from a very early age. Our families go through a lot, they are super strong! 

Sadly the public cannot always see these challenges. So, at a time where everyone strives for some “normality”, we identified a need to campaign for more awareness of hidden disabilities. When the fear from Covid-19 has cleared, there will still be people out there facing risks in their lives. 

Together we can tell the world that hidden disabilities are a thing. 

#mynormalisdifferent

The team at Little Hearts Matter, staff and volunteers, have a huge amount of experience in offering support to anyone affected by the diagnosis of a single ventricle heart condition, half a working heart. 

If you need support, please contact us, we’re here to help you.

The Little Hearts Matter support line is open from 09:00 AM to 10:00 PM, seven days a week. No question too small. 0121 455 8982

You can also drop us a PM on Facebook here.

You read to the bottom of the page because you’re awesome x 

Be social with us - our latest tweets and posts

    "We will never forget hearing the words "he might not survive.""But Loki showed us he was a true fighter.""Sometimes I feel people forget how serious his condition is, because "he is doing well" yes and showing everyone he is battling on, with the biggest smile, the cheekiness and his little ways but yet just one little thing could mean he could end up back in hospital".Shared by LHM member Emma, heart-mum to Loki here who was born with HLHS. Thank you. ... See MoreSee Less

    2 days ago  ·  

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    "We spent Jordan's 12th birthday at Blackpool Pleasure Beach, he's a real adrenaline junkie! (We did, of course, get the green light from our cardiologist first!)Jordan's first few years were rough, he spent more time in hospital than at home. He was so poorly for years and needed a wheelchair, oxygen and feeding tube for over half his life. Fast forward to now, Jordan has been stable for the last few years. Sometimes I forget he has half a heart, not because we have forgotten, but because he is living life to the full. Jordan still has challenges in life related to his heart, but we have embraced that our "normal" is different and we welcome that into our routine.We have gone from living out of suitcases hours away from home to feeling lucky and cherishing every moment whilst things are like this x."Shared by Elis, heart-mum to Jordan here, thank you. #mynormalisdifferent ... See MoreSee Less

    2 days ago  ·  

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