Summing It Up is a Little Hearts Matter initiative to help raise awareness of the needs of a child with a heart condition in school.

Over the past ten years the LHM team have worked to create a tool box of information that parents and teachers can use to gain a greater understanding of the needs of a child  with a single ventricle heart condition in school. Age appropriate booklets, advice about accessing Healthcare Plans, added support for educational needs as well as individual advice and support have been welcomed by families throughout the country. However, families have expressed a need for a bit more help ensuring that school teams really understand their child’s heart condition.

The Summing It Up project is a collection of new ways to raise a greater awareness with teachers, school staff and ultimately other pupils, helping to ensure that children with half a heart achieve their full potential.

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    A few weeks ago, we shared a news article about John and Kate Carlton who have been fundraising for Little Hearts Matter. This family’s amazing support doesn’t stop there, as their 9 year old daughter May also arranged for her school to take part in a non-uniform day for Little Hearts Matter. She put together a PowerPoint presentation and spoke to her Headteacher who agreed to hold a fundraising day for LHM.

    Just look at how many donations were received on the day – well done May, you’re a star! ❤️ To get involved and register your fundraising, click here: www.lhm.org.uk/get-involved/fundraising/register-your-fundraising/
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    Youth Support

    There are young people living with half a heart across the country, many aged between 11 and 18. It is massively important for all of these brave young people to have access to the care, guidance and support they need – allowing them to live life to its full potential that their heart will allow.

    Lexie runs our Youth Services, supporting our youth members in a variety of ways, throughout their half a heart journey. These young members are invited to Activity Weekends and Education Days where they will explore their heart condition and seek solutions to the challenges that having half a heart brings. They will also have an opportunity to meet with other young members, online and in person, making friendships and helping them feel less alone.

    Did you know our youth members also consist of siblings? We know it can be a tough road for them too, so they also have a chance to chat with each other for support from people their age that truly understand. You can find out more about our Youth Services by clicking here www.lhm.org.uk/youth-zone/
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    2 days ago  ·  

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