Summing It Up is a Little Hearts Matter initiative to help raise awareness of the needs of a child with a heart condition in school.

Over the past ten years the LHM team have worked to create a tool box of information that parents and teachers can use to gain a greater understanding of the needs of a child  with a single ventricle heart condition in school. Age appropriate booklets, advice about accessing Healthcare Plans, added support for educational needs as well as individual advice and support have been welcomed by families throughout the country. However, families have expressed a need for a bit more help ensuring that school teams really understand their child’s heart condition.

The Summing It Up project is a collection of new ways to raise a greater awareness with teachers, school staff and ultimately other pupils, helping to ensure that children with half a heart achieve their full potential.

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    “Thank you very much for Chris' card. I cannot believe he is 18 and am so proud of the lovely young man he has become, overcoming the many challenges we have faced over the years, especially in the first 4 to 5 years. Thank you Little hearts matter for always being there.”

    Thank you to Chris and mum Philippa for sharing this fantastic news with us, we hope this brings some inspiration to the many families out there who are at the start of their half a heart journey.

    With YOUR help, we can continue to support the amazing young adults living with a single ventricle heart today, just like Chris here. All you need to do spare 30 seconds of your time every day to vote for LHM in Persimmon’s ‘Building Futures’ initiative.

    They don’t ask for any details, you simply click our logo on this page; biy.ly/support-lhm

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    23 hours ago  ·  

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    So pleased to see Amelia here, DILV, enjoying some cycling along with her sister Evie…

    “We’ve been doing a lot of cycling this week as both girls have grown in confidence. I’m amazed at Amelia’s stamina on the bike, doing much more exercise than she’s ever done. This is the girl that needs a buggy to get home from school (in normal life). She’s found a sport that she can comfortably do. She says she feels free when she’s cycling. That makes me happy and sad at the same time ❤ “Cycling makes me feel free, happy and like nothing is in my way””

    Riding a bike is great exercise for children, teenagers and adults with half a working heart. It helps get you from A to B but is also is supported exercise for the lower body and therefore provides good support for blood returning to the lungs. There are many incentives to help get you on a bike, at the moment.

    Learn more by jumping to our ‘get fit for winter’ resource here: www.lhm.org.uk/information/lifestyle-information/get-fit-for-winter/
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    1 day ago  ·  

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