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    Introducing Umph! A simple yet very useful storybook created by Kathy, one of our amazing grandparent members. This is a fantastic resource for parents who are preparing their children for the Fontan procedure, helping them to understand the need for surgery.

    We also have ‘Jack / Jessica has a heart operation’ both amazing books written by a Mum, Louise, to prepare her daughter Jessica for her Fontan operation. With hand drawn pictures and a clear simple explanation of what will happen in hospital there could not be a better way to explain going in to hospital.

    Click here to download our books onto your smartphone:
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    5 hours ago  ·  

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    “We dreaded Amelia (DILV & pulmonary atresia) having the Fontan as it’s such a big operation but when at 3.5 she could no longer dance with her friends and was breathless playing with her toys on the floor we knew it was necessary. She had a tricky time in hospital but once home she recovered amazingly well and had so much more energy! She’s now 5 years post Fontan and I still can’t believe everything she does with a completely different circulation to the rest of us. The Fontan procedure is amazing and has given her the chance of living a full and surprisingly energetic life. ❤” ... See MoreSee Less

    21 hours ago  ·  

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