Most of the information you have seen in the sections above is available in printed or downloadable form.

Click on any publication you are interested in to access a PDF version or ring the office team. Publications are free for members, and LHM will put one in the post.

If at any time you would like to chat through the information you have been given, do not hesitate in giving the LHM team a ring on 0121 455 8982.

Transition to secondary school

In this book we will concentrate on the middle years in school and briefly touch upon the transition between Key Stage 2 (Years 3, 4, 5 and 6) and Key Stage 3 (secondary school).

As children develop and age they have to take steps forward in their education. For a majority of the time these steps are small and are made between classes. But from Year 6 to Year 7 or between junior to middle and then secondary school, the changes usually involve movement between classes.

Every school is run differently according to the ethos of the school’s head teacher and board of governors. Many secondary schools specialise in a specific area of education: science, sport or performing arts, for example. Other factors shaping schools are the national curriculum and local policies and educational support services.

This booklet has been created to help children and parents to plan the move into secondary school and to build a partnership between school and family.

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Healthcare plans for children and young people with a single ventricle heart condition

Every child with a single ventricle heart condition will have added needs within the school environment, although each individual’s needs will be different.

This booklet has been created to support parents/carers and young people to achieve a greater understanding of their needs within the school environment and to support the creation of an individual Healthcare Plan or Management Plan to be used in school a safe learning experience.

Click here for more information on Supporting pupils at school with medical conditions.

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Support for a child with special educational needs (SEN) within nursery, school or further education

This booklet has been created for parents of children with complex heart conditions to improve their understanding of the support available to enable their children to reach their full potential in the school/education environment.

In September 2014 the process for supporting children with added needs in school was changed. Gradually over the next three years School Action, School Action Plus and Statementing will be replaced with school-based support and/or and Education, Health and Care plan (EHC plan). This booklet explains the process in more detail.

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The Fontan

The Fontan Booklet provides lots of information on the operation, what you can expect to happen when you go into hospital and the changes you may notice afterwards.

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‘From us to you’ – bereaved families share their journey through grief

‘From Us to You’ has been written by families who want to share their personal knowledge of bereavement to support others experiencing similar feelings to their own.

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MCT diet

The MCT Diet is a specialised diet which is sometimes required by children for a short period of time in hospital after heart or chest surgery or for a short period of time at home. The medical staff at your child’s hospital will advise you if your child requires the diet and the dietitan will help you understand how to follow it and provide recipes and food supplements. This booklet is designed to be used in conjunction with the information and recipes from your dietitian. Do not follow this diet unless you have been instructed to do so by your child’s cardiology team.

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Preparation for hospital

This booklet has been designed to help parents to prepare their children for a hospital visit through the use of books, toys and play activities. It also includes some practical tips which other parents have found useful in the hospital environment.

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Toy list

A list of toys to help with hospital play.

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Book and DVD list

A list of books and DVDs about going into hospital which are aimed at children.

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Sports and exercise

Our Sports and exercise booklet is written primarily for parents, but it will also be useful for young people with single ventricle heart conditions. It aims to give overall guidance for leisure and school sports and exercise, and includes a chart which can be used by individual families to give an up-to-date personalised picture of what is safe for them.

It aims to help families understand then principle that everyone should exercise within safe limits.

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Be social with us - our latest tweets and posts

    Every child with a single ventricle heart condition should have a Health Care Plan in place in school. It is a statutory requirement. The plan sets out all the ways to monitor and respond to your individual children’s needs. Health Care Plan, HCP’s, can be put in place from the age of 0 to 24 years old. Each Local education authority will have their own plan but they will all cover the same information. For more information on what to include in the plan follow the link ... See MoreSee Less

    2 days ago  ·  

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    Stuck for a Mothering Sunday present? Lucy Houle is giving 10 per cent of all sales of this gorgeous Cobblestone with Hot Pink Handles Medium Tote Bag to Little Hearts Matter!
    Lucy has made this commitment due to her close friendship with Fiona Pollard and Lucia. Lucy explained,

    "I think Fiona and Lucia Pollard are a rather special Mummy and Daughter team.
    Lucia was born with a rare defect that means she has half a heart and the condition is life limiting and can't be cured. At only 5 years old she's already had several open heart surgery procedures to improve her health.
    I often see them in the playground and at ballet where Lucia is every bit the typical little girl but her smiles hide the very real day-to-day struggles that the family face. Thankfully, they get brilliant support from Little Hearts Matter; the only UK charity that supports this rare condition.
    And we want to support them too, so 10% of each sale of our new bags will go to Little Hearts Matter to help them continue to support children like Lucia."
    ... See MoreSee Less

    2 days ago  ·  

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