Standards of care

From the 1st of April 2016 the NHS in England is providing its cardiac services for children guided by a new set of standards of care.

These standards cover every part of the pathway from diagnosis, through treatment, medical care and support from the hospital to home.

Some of the standards relate to medical expertise and experience. Others concentrate on how families are talked to and included in treatment and care and the surroundings of the child and facilities available whilst undergoing inpatient care.

Some of the standards must be met quickly in 2016 others will be worked towards over the next few years.

These standards are a guide for health care professionals, funders of the service and you as users of the service. You can use them as a guide line for what you should expect from your cardiac services.

If you have any questions about the Standards or the care you are receiving please feel free to give the LHM team a ring to talk them through.

The NHS in Scotland will be producing their own set of standards linked to those in England.

The Welsh NHS have not as yet agreed to use the standards but the cardiac team in Cardiff are hoping they will adopt them.

The service in Ireland has undergone a huge review and plans are now in place for cross border cardiac care.

NICOR โ€“ National Institute for Cardiovascular Outcomes Research

Home of the National Congenital Heart Disease Audit.

Every congenital cardiac unit in the UK submits their surgical and interventions outcomes, survival, to the National Audit Database. The audit team check results and then create a record and graphs to show what the outcomes across the country look like.

The public portal of the NICOR website allows you to look at each procedure and each unit. At the moment only results to 30 days after a procedure are reported. Over the next few years this will change to show what a longer term outcome looks like.

If you would like to explore the NICOR congenital site just follow this link. https://nicor4.nicor.org.uk/CHD/an_paeds.nsf/vwContent/home?Opendocument

Parts of the site can be difficult to understand so always feel free to give the LHM team a ring if you would like any further explanation. 0121 455 8982

Be social with us - our latest tweets and posts

    We are excited to share our brand new 'LHM Energy project with spoons' poster!

    This poster is latest addition to our Energy Pack - helping children and young people with a single ventricle heart understand and explain their energy levels.

    If you would like an energy pack with the new poster sent to you, email [email protected]
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    As part of the #myquestion campaign, created by the South Wales and South West Congenital Heart Disease Network (SWSW CHD), we are featuring and responding to questions, signposting to information and giving ideas to help you and your family feel supported and find answers which may work for your own situation.

    This week we are asking:

    ๐—œ ๐—ต๐—ฎ๐˜ƒ๐—ฒ ๐—ฏ๐—ฒ๐—ฒ๐—ป ๐˜๐—ผ๐—น๐—ฑ ๐—œ ๐—ป๐—ฒ๐—ฒ๐—ฑ ๐—ณ๐˜‚๐—ฟ๐˜๐—ต๐—ฒ๐—ฟ ๐˜€๐˜‚๐—ฟ๐—ด๐—ฒ๐—ฟ๐˜† ๐—ฎ๐—ป๐—ฑ ๐—œ ๐—ฎ๐—บ ๐˜„๐—ผ๐—ฟ๐—ฟ๐—ถ๐—ฒ๐—ฑ ๐—ฎ๐—ฏ๐—ผ๐˜‚๐˜ ๐—ต๐—ฎ๐˜ƒ๐—ถ๐—ป๐—ด ๐—ฎ ๐—ต๐—ฒ๐—ฎ๐—ฟ๐˜ ๐—ผ๐—ฝ๐—ฒ๐—ฟ๐—ฎ๐˜๐—ถ๐—ผ๐—ป. ๐—ช๐—ต๐—ฒ๐—ฟ๐—ฒ ๐—ฐ๐—ฎ๐—ป ๐—œ ๐—ด๐—ฒ๐˜ ๐—ต๐—ฒ๐—น๐—ฝ?

    When your doctor talks to you about having further treatment and or surgery you may have lots of questions and may feel a range of emotions from relief to worry. You may wonder what will happen next, what will the implications for my health in the future be and how do I get support.

    We have a number of toolkits, made in partnership with Wallace & Gromit's Grand Appeal, which can help you and your family with top tips, ideas and thoughts about how to cope and how to access support. Including helping your child cope with medical procedures; you can find this toolkit here
    ๐Ÿ‘‰ bit.ly/38Q0UXw

    #myquestion #CHDNetwork #CHDToolkit
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    3 hours ago  ·  

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