Within this section of the site you are able to explore which hospitals in the UK and Ireland offer congenital cardiac services. You are also able to seek out information on the standards of care you should expect from each unit. If at any time you would like to chat through the information you have been given, do not hesitate in giving the LHM team a ring on 0121 455 8982.

Alder Hey - Liverpool

A level one children’s congenital heart unit.
Offering antenatal diagnosis, surgery, interventions and cardiology care.

Specialist Nurses – Helpline 0151-252 5291

Ante-natal clinic at Alder Hey
Surgery/Catheter pre-assessment and pre-admission clinics
Young Persons Clinic/Transition
Anti-coagulation Service (clinic and home testing service-nurse prescribers)
Cardiac Feeding Clinic
Home Monitoring Service in collaboration with local services for single ventricle babies

Helen Walker
Mary Murray
Amanda Haworth
Gill McBurney
Marie Murphy
Michelle McLaren

 

 

Birmingham Children's Hospital

A level one children’s congenital cardiac unit.
Offering antenatal diagnosis, surgical, interventional and cardiology care.

Specialist Nurses – 0121 333 9449

Kay Dyer

Justine Kidd

Jacqueline Nisbett

Kate Butler

Family Support Workers

Nikki Rehman

Rachel Thompson

Transition Nurse –  0121 371 4543

Nicky Pope

http://www.bch.nhs.uk

Bristol Royal Hospital for Children

A level one children’s congenital heart unit.
Offering antenatal diagnosis, surgical, interventional and cardiology care.

Cardiac Specialist Nurses – +44 (0) 117 34 28286/28578

Cathy Harrington – [email protected]

Naomi Greening – [email protected]

Diane Barlow – [email protected]

Jessica Hughes – [email protected]

Amy Harbinson – [email protected]

 

The Royal Brompton Hospital

A level one children’s congenital heart unit.

Offering antenatal diagnosis, surgery, interventions and cardiology care.

Specialist Nurses – 0207 349 7727

Antenatal

Susanna de Sousa
Julieta Lumanisakio
Brooke Campfield
Clinical nurse specialists –
Fran Cox
Christie Thorpe
Liz Johnson
James Perry

Transition nurses
Lynda Davies Shaughnessy
Virginia Meira Castro Pires
Loredana Haidu

Evelina Children's Hospital - Guys and St Thomas's NHS Foundation Trust.

A level one children’s congenital heart unit.
Offering antenatal diagnosis, surgery, interventions and cardiology care.

Specialist Nurses.

Antenatal – 0207 1882308/ 9201

Nicky Callaghan

Judy Tenenbaum

Outreach nurses -0800 555 500 plus pager number

Catie Chou – 863 654

Patricia Kenny – 806 000

Jane Fewlass – 832 526

Alan Murry

Transition Nurse

Hajar Habibi

The Freeman Hospital

A level one children’s congenital heart unit.
Offering antenatal diagnosis, surgery, interventions, transplant and cardiology care.

Specialist Nurses – Office voicemail 0191 2137344

Debs Richardson 0191 2448271  Cardiac liaison nurse

Debbie Lawson  0191 2448272   Cardiac liaison nurse

Jacqui Laydon     0191 2139184  Cardiac nutrition nurse specialist

Glenfield Hospital – Leicester

A level one children’s congenital heart unit.
Offering antenatal diagnosis, surgery, interventions and cardiology care.

Specialist Nurses –

Great Ormond Street Hospital

A level one children’s congenital heart unit.
Offering antenatal diagnosis, surgery, interventions, transplantation and cardiology care.

Specialist Nurses

Cardiac Nurse Specialist team – 0207 405 9200 ext 5774 or email [email protected]

  • Aileen O’Sullivan
  • Nina Taylor
  • Victoria Poon
  • Ruth Gorham
  • Rebecca Kerby

Adolescent Nurse Specialist – 0207 405 9200 ext 8143 or email [email protected]

  • Rhiannon Evans

Fetal Nurse Specialists – 0207 405 9200 ext 6711 or email [email protected]

  • Miranda Porritt
  • Claire Tangredi

 

 

 

 

 

Leeds General Infirmary

A level one children’s congenital heart unit.
Offering antenatal diagnosis, surgery, interventions and cardiology care.

Specialist Nurses – 0113 3925467 or email [email protected]

Mike Fresson, specialist areas: arrhythmias, transition

Lyndsay Marston, specialist areas: complex cardiac clinics, fetal service

Elaine Woolley, specialist areas: transition, anticoagulation service, fetal service

Marie Wray, specialist area: fetal service lead

Manchester Children's Hospital

A level 2 children’s congenital heart unit
Offering antenatal diagnosis and cardiology care.

Specialist Nurses – 0161 701 06640161 701 0664/5

Kim Laurie – Cardiology Specialist Nurse (Team Leader)

Clair Noctor – Cardiology Specialist Nurse

Laura Jole – Cardiology Specialist Nurse

Children's Hospital - Oxford

A level 2 children’s congenital heart unit
Offering antenatal diagnosis and cardiology care.

Specialist Nurse – 01865 234985 bleep 4170

Georgina Stepney

 

The University Hospital Southampton

Offering children’s and adults level one congenital cardiac surgical, interventional and cardiology services.

Specialist Nurses –02381 204659- helpline

Collette Cochran – [email protected]

Gill Harte – [email protected]

 

 

 

 

 

 

Noah’s Arch Hospital – Cardiff

A Welsh NHS equivalent of a level 2 children’s congenital heart unit
Offering antenatal diagnosis and cardiology care.

The Royal Hospital for Sick Children Glasgow

A Scottish NHS equivalent of a level one children’s congenital heart unit.
Offering antenatal diagnosis, surgery, interventions and cardiology care.

The Royal Hospital for Sick Children Edinburgh

A Scottish NHS equivalent of a level 2 children’s congenital heart unit
Offering antenatal diagnosis and cardiology care.

Royal Hospital for Sick Children Belfast

An Irish NHS equivalent of a level 2 children’s congenital heart unit
Offering antenatal diagnosis and cardiology care.

Our Lady's Children's Hospital - Dublin

An Irish NHS equivalent of a level one children’s congenital heart unit.
Offering antenatal diagnosis, surgery, interventions and cardiology care.

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    A few weeks ago, we shared a news article about John and Kate Carlton who have been fundraising for Little Hearts Matter. This family’s amazing support doesn’t stop there, as their 9 year old daughter May also arranged for her school to take part in a non-uniform day for Little Hearts Matter. She put together a PowerPoint presentation and spoke to her Headteacher who agreed to hold a fundraising day for LHM.

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    Youth Support

    There are young people living with half a heart across the country, many aged between 11 and 18. It is massively important for all of these brave young people to have access to the care, guidance and support they need – allowing them to live life to its full potential that their heart will allow.

    Lexie runs our Youth Services, supporting our youth members in a variety of ways, throughout their half a heart journey. These young members are invited to Activity Weekends and Education Days where they will explore their heart condition and seek solutions to the challenges that having half a heart brings. They will also have an opportunity to meet with other young members, online and in person, making friendships and helping them feel less alone.

    Did you know our youth members also consist of siblings? We know it can be a tough road for them too, so they also have a chance to chat with each other for support from people their age that truly understand. You can find out more about our Youth Services by clicking here www.lhm.org.uk/youth-zone/
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