The following are terms that you may hear whilst your child is in hospital or at home receiving treatment.

There will always be some terms that are not covered so ask your cardiac team to explain things if they use terms that you do not understand.

Hypoplastic – Small or underdeveloped

Atrium – Collecting chamber of the heart

Ventricle – Pumping chamber of the heart

IVC – Inferior vena cava – lower body vein

SVC – Superior vena cava – upper body vein

Stenosed – Narrowed

Atretic – Not fully formed / closed

Patent – Open

Cyanosed / Cyanotic – Blue colour due to lack of oxygen

Acyanotic – Not looking blue

Oedema – Fluid retention, puffiness

Pyrexia – High temperature

Apyrexia – Normal temperature

ECG – Electrocardiogram (see section on Cardiac Tests)

Echo – Echocardiogram (see section on Cardiac Tests)

ASD (Atrial Septal Defect) – Hole between the top two collecting chambers

VSD (Ventricular Septal Defect) – Hole between the bottom two pumping chambers

Updated: June 2017

Review due: June 2019

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    Colin, Grandparent to Thomas who is 15 and was born with Hypoplastic Left Heart Syndrome, talks about when he learnt that his unborn grandson had only half a heart.

    “Imagine the anguish of excited grandparents who are eagerly awaiting the results of their daughter's 20 week scan only to find that their unborn grandson has a major heart condition.”

    "Being referred to Little Hearts Matter seemed an empty consolation, yet this wonderful charity has provided support, encouragement and, probably most important, hope both before birth and in the 15 years subsequently."

    Alongside his wife Christine, Colin has raised over £8,600 for Little Hearts Matter this year alone, providing us with vital resources that we need to support our families and make them feel less frightened and isolated throughout their half-a-heart journey. Thank you so much for everything you have both done for us.

    We hope you can take some inspiration from Colin's passion and generosity this Christmas, follow in his footsteps and purchase a patch on our Visufund blanket.

    Click here to donate: www.visufund.co.uk/lhm-wrap-a-blanket

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    A massive thank you to the amazing Rowan who was the narrator in our Christmas video!

    Rowan is a big brother to Bobby who has half a heart and he kindly stepped in to help us tell the story of so many half a heart families. We think he did a fantastic job!

    If you haven't done so, please go to visufund.co.uk/lhm-wrap-a-blanket to buy a patch and wrap a blanket of support around more families like Rowan's.

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