Below are ideas of questions you may like to ask at your next hospital appointment.

Contents

About the diagnosis

  • I don’t really understand what is wrong with the baby?
  • Why has the baby got something wrong with its heart?
  • Did we cause the baby’s problem?
  • What further tests will we need?
  • What treatments are available to help the baby?
  • Who can help me understand the condition?

Back to top ^

 

Treatment choices

  • Am I allowed to terminate this late in pregnancy?
  • What will termination mean for me?
  • If I terminate the pregnancy can I have other children?
  • What happens to the baby if we don’t want surgery?
  • Who will help us if we take the baby home?
  • If we have surgery who will do it?
  • Will we have to travel to receive treatment?
  • What are the risks of surgery?
  • How long will our baby live?

What will happen in the future?


Back to top ^

 

The plan for the baby

  • What will happen to the baby after it’s born?
  • Who will be looking after the baby?
  • Can we be with the baby?
  • Will we be told what is happening with the baby?
  • If the baby has to travel can we go with them?
  • How will the baby’s condition be kept stable before surgery?
  • Will I be able to breastfeed the baby?
  • Can the baby have a heart transplant?

Back to top ^

 

The future

  • Can I have more children?
  • What are the risks of having another child with the same problem?
  • How will the baby be after surgery?
  • What sort of life do children with this condition have?
  • Do children spend their lives in a wheelchair?

Back to top ^

 

Delivering the baby

  • Will I need a Caesarean section? Will I be induced?
  • Can my partner be with me when I have the baby?
  • Where will I have the baby?
  • Will I see the baby after it’s born?

 

 

We value your feedback. Was this information useful for you?

Be social with us - our latest tweets and posts

    "Elijah unfortunately couldn't take part in surfing with Beavers on Sunday due to the company not being insured for a person with a heart condition.So, daddy took him to the nearest beach shop and got him a body board, he had a brilliant morning despite being upset initially.It was an eye opener for us, seeking clarification what business insurances cover with certain activities. We hope other families can take something from this x"A huge thank you to heart-mum Michelle for sharing this with us. ... See MoreSee Less

    4 hours ago  ·  

    View on Facebook
    A huge thank you to the amazing Laura and Carlie for raising an incredible £1500 for Little Hearts Matter in their first ever 10k running challenge. It is generous people like you that help keep our work going ❤If you would like to smash your fitness goals and raise money for LHM, get in touch with our friendly fundraising team >> [email protected] ... See MoreSee Less

    1 day ago  ·  

    View on Facebook