Being told your baby has a problem with their heart is both frightening and emotional for parents and their families.

The information given to you at the hospital can be frightening and difficult to understand. Over the following pages we hope to help you understand your baby’s heart problem and explain some of the choices you have been given. If at any time you would like to chat through the information you have been given, do not hesitate in giving the LHM team a ring on 0121 455 8982.

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    There are still some free places available for our family event at the Discovery Museum in Newcastle on Wednesday 19th February (for young people aged 8+ and parents)

    Workshops will cover current trends we see every day with our members and create a safe place to talk, share experiences if you would like to and learn more about managing day to day life with half a working heart. Children under 8 are welcome but need to stay with their parents in their workshop.

    After our workshops we will have lunch and a chance to experience and walk around the museum together with Suzie and Lexie or with your family.

    Click the link to below to book 👇

    www.lhm.org.uk/news-and-events/events/
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    4 hours ago  ·  

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    Bristol Royal Hospital for ChildrenThis week's question: "What happens when my child starts asking me questions about my illness?"The South Wales and South West Congenital Heart Disease Network (SWSW CHD) have been asking our cardiac families how they can help them feel more supported. So to help, we have launched the #myquestion campaign in partnership with Wallace & Gromit's Grand Appeal. We will be featuring these questions and signposting to information and ideas to help you find an answer which works for your own situation.

    This week we are asking:

    𝗪𝗵𝗮𝘁 𝗵𝗮𝗽𝗽𝗲𝗻𝘀 𝘄𝗵𝗲𝗻 𝗺𝘆 𝗰𝗵𝗶𝗹𝗱 𝘀𝘁𝗮𝗿𝘁𝘀 𝗮𝘀𝗸𝗶𝗻𝗴 𝗺𝗲 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻𝘀 𝗮𝗯𝗼𝘂𝘁 𝗺𝘆 𝗶𝗹𝗹𝗻𝗲𝘀𝘀?

    It is natural to think about how you talk to your child about your own cardiac condition. Your approach will depend on a range of factors which will be individual to your own circumstance – what does your child already know, how old are they, what are their own health experiences that might help or hinder their understanding.

    Our toolkit can help you with top tips and ideas about where to start and things to think about. You can also talk to your specialist nurse and psychology team who and help you think about what to say.

    Take a look at the toolkit and find out more on the SWSW CHD website
    👉 bit.ly/33IxSX1

    #myquestion #CHDNetwork #CHDToolkit
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    6 hours ago  ·  

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