Chair

David Baumber

David (who is married to Isabel, another Trustee) has a son, Matthew (born June 2002) who has Tricuspid Atresia (a right-sided single ventricle condition), a daughter Rachel, who has a healthy heart but has a genetic condition called achondroplasia (a form of dwarfism), and another son, Thomas.

Matthew has had all three stages of surgery. He was very ill as a baby, with breathing difficulties caused by a paralysed diaphragm which needed additional surgery, together with feeding problems meaning that he was tube-fed until he was nine months old. He also had a difficult time in hospital for his Fontan but he is now learning to cope with his condition combined with the rigours of growing up.

David is a Chartered Accountant and Senior Finance Manager with E.ON having previously worked at PricewaterhouseCoopers. He brings financial skills to the charity in terms of accounting, budgeting, forecasting and cost management.

Treasurer

Peter Groves

Peter lives in Staffordshire with his wife Judith and has three daughters. His first daughter Stephanie was born with Hypoplastic Left Heart Syndrome in March 1994, and due to the condition not being detected until after she was born, together with further complications of the heart, Stephanie only lived for three days. Peter and his wife have been involved with LHM ever since.

In July 2005 Peter set up his own accountancy and business advisory practice after working for 22 years within the accountancy profession.

Outside of family and business commitments Peter’s time is taken up with playing the cornet in a brass band and following the fortunes of his beloved football team Wolverhampton Wanderers.

Trustee

Isabel Baumber

Isabel (who is married to David, the Treasurer) has a son, Matthew (born June 2002) who has Tricuspid Atresia (a right-sided single ventricle condition), a daughter Rachel, who has a healthy heart, but who has a genetic condition called achondroplasia (a form of dwarfism), and another son, Thomas.

Matthew has had all three stages of surgery. He was very ill as a baby, with breathing difficulties caused by a paralysed diaphragm which needed additional surgery, together with feeding problems meaning that he was tube-fed until he was nine months old. He also had a difficult time in hospital for his Fontan but he is now learning to cope with his condition combined with the rigours of growing up.

Isabel was an Export Marketing Research Adviser for the British Chambers of Commerce, having previously managed Rover Group’s marketing in Latin America, then elements of Rover’s global communication strategy. As a result, Isabel can provide skills in marketing and communications, market research and support for small businesses. She currently does small amounts of freelance marketing, research and teaching work.

Trustee

Julie McManus

Julie lives in South West London with her husband, Ian and her children, Fintan and Imogen. Fintan was diagnosed with Pulmonary Atresia with Intact Ventricular Septum (PAIVS) in utero at his 20 week scan. He has had a series of surgeries resulting in the final Fontan procedure in 2014.

Julie has practiced as a solicitor since 2004, both in private practice and in house. She currently works as In House Solicitor and Company Secretary at Motability Operations Limited, where she has worked for 11 years.

Julie enjoys spending time with her family with favourite pastimes being walks and cycling together and attempting to surf in both Cornwall and Ireland.

Trustee

Warren Manger

Warren Manger and his wife Verity have been members of Little Hearts Matter since 2016. Their son Haydn was diagnosed with left atrial isomerism, hypoplastic left ventricle, and double outlet right ventricle (DORV) during pregnancy and underwent his first open heart surgery at 12-days-old.

Warren joined the LHM trust board to help raise awareness about the charity and CHD. He is an award-winning journalist with 15 years’ experience covering health news and features, including the Daily Mirror’s campaign to introduce an opt-out organ donor register.

Trustee

Laura Griffin

Laura is a professional fundraising consultant with over 20 years’ experience in the corporate and non-profit sectors, having started her career in publishing at BBC Studios and then the Hachette Livre group. She has previously held senior roles at Save the Children, Camfed and the Natural History Museum, and over the past four years’ consulting has delivered strategic projects and services for clients including UNICEF and the RSPB, acting in leadership roles in-house, brokering significant new partnerships and writing strategy. She brings her skills to the LHM family with a view to helping support fundraising efforts to grow services.

Laura enjoys living in a rural village with her husband, Simon, spending time with her stepdaughter Cerys, who has HLHS, and being human mum to cockapoo, Lottie. They all love to travel and get out and about in nature.

Trustee

Molly O'Herlihy

I am a member of LHM and have been for a long time. I have a congenital heart condition called Tricuspid Atresia and a epicardial pacemaker. I love walking my dog around our local field. I enjoy reading books and have set myself the bucket list challenge of 100 books. Currently three books have been read. I’ve recently been working more on my garden and enjoying learning about different plants. I’ve had some raised beds and plants bought for me. Now I’m just trying to learn the names!

I work in pastoral support within the education system. I am also currently a youth mentor volunteer for LHM

Vice President

Andrew Shaw

Andrew Shaw is a founder Trustee of Little Hearts Matter and has contributed his accounting and business skills to the income generation of the charity.

Trustee

Hannah Palmer

Hannah is 26 years old and currently works for Admiral Insurance as a Total Loss Claims Handler. She was born with half a heart in 1994 and has been a member of Little Hearts Matter, along with her family for nearly 18 years. Having been a Trustee from 2014 to 2020, and learning more about how the Board cares for all the members has been a wonderful experience. Her previous experience as a Youth Councillor with LHM also helped her to learn more about what our younger members want from the Charity.

Throughout the lockdown period Hannah has been working with Suzie and Lexie to help develop the services for adults with a single ventricle heart condition, and this is work she hopes to expand on, working with the other Trustees to expand this service and to help develop other services that have become important to our members.

Trustee

Alex Pearce

Alex works in Cardiology, as a Cardiac Physiologist, specialising in Echo. He has worked in the NHS for more than 15 years. He has recently relocated to the North-East and is an Associate Lecturer for the National Echo Training Programme and Scientist Training Programme, at Newcastle University.

Alex is married to Kate and they have two children. Nat who is 8 and Jacob aged 4. Jacob has a single ventricle circulation under the care of GOSH. He had his Fontan in the summer of 2021.

Given his career; Living life as a CHD family has been a personal challenge for Alex but also an opportunity to make a difference. Alex is determined to use his professional knowledge and connections to further benefit Jacob’s life and that of the LHM community.

Vice President

William Brawn

Bill Brawn is one of the country’s leading congenital heart surgeons. He was the first surgeon to successfully bring the treatment for Hypoplastic Left Heart Syndrome to the UK and he is one of the world leaders in the treatment for complex heart conditions. He has been involved with Little Hearts Matter since its inception.