Can you help us to support a family in need?

Support volunteers

Little Hearts Matter membership families are seeking support and information when they contact the LHM team. Sometimes they want to talk through medical or lifestyle information but often they are seeking other parents to talk to about what life is like every day when a child has half a working heart.

The telephone and network service volunteer teams are all involved in offering support to the many LHM members and support line callers who use our services every year.

Telephone support line

Parent volunteers are there to:-

  • Offer parent-to-parent insight into life with single ventricle heart disease.
  • Offer a listening ear in times of stress and worry.
  • Provide a signposting service to other support or information services.
  • Report concerns about members to the main office team.

Specialist telephone and social media support services

Parent volunteers are able to:

  • Share in-depth knowledge on a specific subject such as antenatal diagnosis or transplantation.
  • Offer parent-to-parent experience of the specific subject.
  • Provide signposting to other services and LHM information packs.
  • Report concerns about members to the main office team.

Bereavement support

Parent volunteers are able to offer:

  • Parent-to-parent support and understanding around the loss of a child to congenital heart disease, chd.
  • Ongoing social media and telephone support.
  • Bereavement representation and support at LHM events.
  • Guidance on bereavement publications.

Network leaders

There are 16 regional network groups spread throughout the UK.

LHM aims to have two network leaders in each area.

Network parent volunteers are able to offer:

  • A welcome to the charity from a parent perspective.
  • Parent-to-parent support within regional groups.
  • Organisation of regional events.
  • Signposting to other LHM services.
  • Links to the local cardiac unit.
  • Possible hospital visits.

If you are interested in becoming a parent volunteer just give Suzie a ring on 0121 455 8982 or email her at [email protected]

Thank you.

Be social with us - our latest tweets and posts

    A few weeks ago, we shared a news article about John and Kate Carlton who have been fundraising for Little Hearts Matter. This family’s amazing support doesn’t stop there, as their 9 year old daughter May also arranged for her school to take part in a non-uniform day for Little Hearts Matter. She put together a PowerPoint presentation and spoke to her Headteacher who agreed to hold a fundraising day for LHM.

    Just look at how many donations were received on the day – well done May, you’re a star! ❤️ To get involved and register your fundraising, click here: www.lhm.org.uk/get-involved/fundraising/register-your-fundraising/
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    Youth Support

    There are young people living with half a heart across the country, many aged between 11 and 18. It is massively important for all of these brave young people to have access to the care, guidance and support they need – allowing them to live life to its full potential that their heart will allow.

    Lexie runs our Youth Services, supporting our youth members in a variety of ways, throughout their half a heart journey. These young members are invited to Activity Weekends and Education Days where they will explore their heart condition and seek solutions to the challenges that having half a heart brings. They will also have an opportunity to meet with other young members, online and in person, making friendships and helping them feel less alone.

    Did you know our youth members also consist of siblings? We know it can be a tough road for them too, so they also have a chance to chat with each other for support from people their age that truly understand. You can find out more about our Youth Services by clicking here www.lhm.org.uk/youth-zone/
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