Can you help us to support a family in need?

Support volunteers

Little Hearts Matter membership families are seeking support and information when they contact the LHM team. Sometimes they want to talk through medical or lifestyle information but often they are seeking other parents to talk to about what life is like every day when a child has half a working heart.

The telephone and network service volunteer teams are all involved in offering support to the many LHM members and support line callers who use our services every year.

Telephone support line

Parent volunteers are there to:-

  • Offer parent-to-parent insight into life with single ventricle heart disease.
  • Offer a listening ear in times of stress and worry.
  • Provide a signposting service to other support or information services.
  • Report concerns about members to the main office team.

Specialist telephone and social media support services

Parent volunteers are able to:

  • Share in-depth knowledge on a specific subject such as antenatal diagnosis or transplantation.
  • Offer parent-to-parent experience of the specific subject.
  • Provide signposting to other services and LHM information packs.
  • Report concerns about members to the main office team.

Bereavement support

Parent volunteers are able to offer:

  • Parent-to-parent support and understanding around the loss of a child to congenital heart disease, chd.
  • Ongoing social media and telephone support.
  • Bereavement representation and support at LHM events.
  • Guidance on bereavement publications.

Network leaders

There are 16 regional network groups spread throughout the UK.

LHM aims to have two network leaders in each area.

Network parent volunteers are able to offer:

  • A welcome to the charity from a parent perspective.
  • Parent-to-parent support within regional groups.
  • Organisation of regional events.
  • Signposting to other LHM services.
  • Links to the local cardiac unit.
  • Possible hospital visits.

If you are interested in becoming a parent volunteer just give Suzie a ring on 0121 455 8982 or email her at [email protected]

Thank you.

Be social with us - our latest tweets and posts

    The Youth Zone is our dedicated support network for young adults aged 11 to 17 living with a single ventricle heart condition. During lock-down, we have been working hard to keep our youth members supported and connected with each other.

    We just wanted to shine some light on this awesome bunch, as they have come so far and achieved so much during the Covid Crisis. One of our highlights being this video, a 26 minute exercise challenge via Zoom, all in support of LHM for the 2.6 challenge. They smashed the routine and raised over £500 for us! Thank you.

    The group keeps in touch through regular Netflix parties and lots of healthy discussion on the private message forums, as well as having access to 1-1 support provided by LHM whenever they need it.

    None of this would be possible without our youth leader Lexie and our awesome youth mentors, please can we all thank them for the incredible work they have been doing for these brave young people throughout this crisis.

    Visit the youth zone here lhm.org.uk/youth-zone/
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    8 hours ago  ·  

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    Open Heart Surgery during Lock-down | LHM parent member Rose shares some uplifting words for us.

    "We were very apprehensive about this surgery as the last one he had was a very long recovery. He literally has made so many people proud, Naayt had his open heart surgery on the 11th June and was discharged 11 days later... home! yes, home!"

    "I couldn't believe it either. You will be so amazed at how pink they are after this surgery and its so lovely to see. The only thing that stops them is the drains which he had 1 left in literally 3 days before discharge and his inr being in range which happened on the day he was allowed home."

    "These kids are so amazing and I am so amazed at how fast they can recover and get through these operations."

    Half a Heart, Not Half a Life x
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    1 day ago  ·  

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