Can you help us to support a family in need?

Support volunteers

Little Hearts Matter membership families are seeking support and information when they contact the LHM team. Sometimes they want to talk through medical or lifestyle information but often they are seeking other parents to talk to about what life is like every day when a child has half a working heart.

The telephone and network service volunteer teams are all involved in offering support to the many LHM members and support line callers who use our services every year.

Telephone support line

Parent volunteers are there to:-

  • Offer parent-to-parent insight into life with single ventricle heart disease.
  • Offer a listening ear in times of stress and worry.
  • Provide a signposting service to other support or information services.
  • Report concerns about members to the main office team.

Specialist telephone and social media support services

Parent volunteers are able to:

  • Share in-depth knowledge on a specific subject such as antenatal diagnosis or transplantation.
  • Offer parent-to-parent experience of the specific subject.
  • Provide signposting to other services and LHM information packs.
  • Report concerns about members to the main office team.

Bereavement support

Parent volunteers are able to offer:

  • Parent-to-parent support and understanding around the loss of a child to congenital heart disease, chd.
  • Ongoing social media and telephone support.
  • Bereavement representation and support at LHM events.
  • Guidance on bereavement publications.

Network leaders

There are 16 regional network groups spread throughout the UK.

LHM aims to have two network leaders in each area.

Network parent volunteers are able to offer:

  • A welcome to the charity from a parent perspective.
  • Parent-to-parent support within regional groups.
  • Organisation of regional events.
  • Signposting to other LHM services.
  • Links to the local cardiac unit.
  • Possible hospital visits.

If you are interested in becoming a parent volunteer just give Suzie a ring on 0121 455 8982 or email her at [email protected]

Thank you.

Be social with us - our latest tweets and posts

    One of our wonderful members Daniela shares her feelings of when she first learnt that her son had only half a heart...

    "It was one of the most difficult and uncertain times in our lives but it was also helpful knowing that others could understand what we were going through and that we had prepared ourselves and done everything we needed to do to understand what was going to happen to Oscar in surgery."

    “We are forever grateful for LHM for everything they have assisted us with, for what they have informed us about, and for the ongoing support we receive. We really couldn’t do this journey without the charity.”

    A huge thank you to Daniela for sharing your half-a-heart journey with us, we'd love for you to read the full story here: bit.ly/2QY5Bcp

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    4 hours ago  ·  

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    “We are all delighted and grateful for the Health Games donation to Little Hearts Matter. To have won the vote over three other amazingly deserving charities is truly fantastic, and humbling news for everyone here at Little Hearts Matter. The money we received will genuinely change the lives of the children with half a heart and their families."

    Thanks again to The Health Lottery for your generous donation to Little Hearts Matter and for helping to support our families. You can read Daily Mirror's coverage here www.mirror.co.uk/news/uk-news/win-million-game-health-lottery-20860910

    ❤️
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    1 day ago  ·  

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