Can you help us to keep informing families of children with half a heart?

Could you help us to maintain and develop our medical and lifestyle information by volunteering to become a reviewer on our ‘Reader Panel’?

We are keen to hear your thoughts and experiences.

It would only take a few hours a year and you can do it from the comfort of your own home although we would hope to get together once a year to discuss any issues, share ideas and put faces to names.

We are looking for a wide range of people with different backgrounds and experiences, and no previous knowledge is required. We will be looking for your general impressions on content, tone, layout and structure of our publications

Your assistance would really help LHM continue to provide vital information resources to families.

For more information click here.

If you would like to get involved please contact us.

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    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

    18 hours ago  ·  

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    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

    2 days ago  ·  

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