Can you help us to keep informing families of children with half a heart?

Could you help us to maintain and develop our medical and lifestyle information by volunteering to become a reviewer on our ‘Reader Panel’?

We are keen to hear your thoughts and experiences.

It would only take a few hours a year and you can do it from the comfort of your own home although we would hope to get together once a year to discuss any issues, share ideas and put faces to names.

We are looking for a wide range of people with different backgrounds and experiences, and no previous knowledge is required. We will be looking for your general impressions on content, tone, layout and structure of our publications

Your assistance would really help LHM continue to provide vital information resources to families.

For more information click here.

If you would like to get involved please contact us.

Be social with us - our latest tweets and posts

    A few weeks ago, we shared a news article about John and Kate Carlton who have been fundraising for Little Hearts Matter. This family’s amazing support doesn’t stop there, as their 9 year old daughter May also arranged for her school to take part in a non-uniform day for Little Hearts Matter. She put together a PowerPoint presentation and spoke to her Headteacher who agreed to hold a fundraising day for LHM.

    Just look at how many donations were received on the day – well done May, you’re a star! ❤️ To get involved and register your fundraising, click here: www.lhm.org.uk/get-involved/fundraising/register-your-fundraising/
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    1 day ago  ·  

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    Youth Support

    There are young people living with half a heart across the country, many aged between 11 and 18. It is massively important for all of these brave young people to have access to the care, guidance and support they need – allowing them to live life to its full potential that their heart will allow.

    Lexie runs our Youth Services, supporting our youth members in a variety of ways, throughout their half a heart journey. These young members are invited to Activity Weekends and Education Days where they will explore their heart condition and seek solutions to the challenges that having half a heart brings. They will also have an opportunity to meet with other young members, online and in person, making friendships and helping them feel less alone.

    Did you know our youth members also consist of siblings? We know it can be a tough road for them too, so they also have a chance to chat with each other for support from people their age that truly understand. You can find out more about our Youth Services by clicking here www.lhm.org.uk/youth-zone/
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    2 days ago  ·  

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