Judy’s birthday gift to LHM

For Judy’s 50th birthday, she decided to fundraise for LHM by asking for donations rather than gifts. Read on to hear Judy’s story… “As a Neonatal Nurse, I have had the privilege to nurse many babies and care for their families with Hypoplastic Left Heart Syndrome.  Every journey is a different one, often extremely challenging, … Continued

LHM’s London Marathon Runner!

Little Hearts Matter has been a wealth of support and information to us throughout our pregnancy and our boys life so far. In 2019, coinciding with our 25th anniversary, we have got 1 place in the Virgin Money London Marathon for the first time ever! For the 2019 marathon, a world record of 414, 168 … Continued

Jon & Craig’s Screwball Rally

Jon and a friend bought a yellow MX5 and joined 79 other cars on a budget-car road trip through France, Belgium, the Netherlands, Germany, Poland and the Czech Republic. Jon’s daughter, Amelia, was born in March 2011 with only half a heart.  The defects in her heart mean that it will never be “fixed” and so far … Continued

Team Jessica take on the Great South Run

They all did so well and I was so proud of them all for taking part in memory of my beautiful girl. It meant so much to me to have them do something like this for her. Jessica’s uncles and cousins take on the Great South Run in her memory, to help to raise funds … Continued

Little Lodge Confectionery’s Christmas Fundraising!

A few days later we were back for a specialist scan and we found out she had Hypoplastic Left Heart Syndrome (HLHS). This year, Kim from Little Lodge Confectionery will be donating a % of their Christmas profits to Little Hearts Matter. Below, Kim shares her story. ‘In 2012, after 2 years of trying, we … Continued

‘Heart of the Fair’

My event was held in honour of my baby brother, Kameron, who passed away 12 years ago. The event was held in honour of my baby brother, Kameron, who passed away due to Hypoplastic Left Heart Syndrome 12 years ago. With the help of my family and friends, we had a huge raffle with many … Continued

Kelly’s Charity Night

Kelly, who organised an In Mem event last month, said: ‘Our Charity Night for Little Hearts Matter was in memory of our son Connor who was born on 26th December 2016; twin brother to Ayda and a little brother to Bella. He was born with Hypoplastic Left Heart Syndrome (HLHS) and other complications with his heart, … Continued

Mary’s Tea Party

Mary’s son, Todd, only has half a working heart. Todd’s family wanted to raise lots of money for Little Hearts Matter and the British Heart Foundation so they organised an afternoon tea for friends and family in their local village hall. As well as an abundance of sandwiches and cakes, they held a charity auction … Continued

Simone & Daniel’s story

A year later – March 2016, we decided that we wanted to raise money for Little Hearts Matter. LHM was our chosen charity as they provided us with great support during the time we had with Israel. Our beautiful baby boy – Israel, known to many as ‘Izzy’ was born on November 28th 2012 at … Continued

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    Tonight's episode of 'My Life' on CBBC follows the amazing story of LHM youth member Jack, tune in at 5:30 PM ❤️

    'My New Heart' follows Jack's inspiring journey through living with half a working heart, his transplant and life post transplant. This is a moving documentary we were privileged to help out with and thankful to be credited at the end to help spread awareness of life with a single ventricle heart.

    'My Life - My New Heart' premieres on CBBC tonight, Tuesday 18th at 5:30 PM.
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    Social Media Support

    Single ventricle conditions are so rare that many of our families do not know anyone else locally who is facing the same challenges. Through our private social media groups and the LHM newsletter, we are able to link our members with other heart families across the UK.

    This gives them a chance to keep up to date with the charity and connect with other parents going through similar experiences. We also offer one-to-one chat support through Facebook messenger, we always have an ear to listen and we’d love to hear from you ❤️

    Click here to explore our private Facebook groups for LHM members m.facebook.com/littleheartsmatter/groups/?ref=page_internal&mt_nav=0
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