LHM’s London Marathon Runner!

Little Hearts Matter has been a wealth of support and information to us throughout our pregnancy and our boys life so far. In 2019, coinciding with our 25th anniversary, we have got 1 place in the Virgin Money London Marathon for the first time ever! For the 2019 marathon, a world record of 414, 168 … Continued

Jon & Craig’s Screwball Rally

Jon and a friend bought a yellow MX5 and joined 79 other cars on a budget-car road trip through France, Belgium, the Netherlands, Germany, Poland and the Czech Republic. Jon’s daughter, Amelia, was born in March 2011 with only half a heart.  The defects in her heart mean that it will never be “fixed” and so far … Continued

Team Jessica take on the Great South Run

They all did so well and I was so proud of them all for taking part in memory of my beautiful girl. It meant so much to me to have them do something like this for her. Jessica’s uncles and cousins take on the Great South Run in her memory, to help to raise funds … Continued

Little Lodge Confectionery’s Christmas Fundraising!

A few days later we were back for a specialist scan and we found out she had Hypoplastic Left Heart Syndrome (HLHS). This year, Kim from Little Lodge Confectionery will be donating a % of their Christmas profits to Little Hearts Matter. Below, Kim shares her story. ‘In 2012, after 2 years of trying, we … Continued

‘Heart of the Fair’

My event was held in honour of my baby brother, Kameron, who passed away 12 years ago. The event was held in honour of my baby brother, Kameron, who passed away due to Hypoplastic Left Heart Syndrome 12 years ago. With the help of my family and friends, we had a huge raffle with many … Continued

Kelly’s Charity Night

Kelly, who organised an In Mem event last month, said: ‘Our Charity Night for Little Hearts Matter was in memory of our son Connor who was born on 26th December 2016; twin brother to Ayda and a little brother to Bella. He was born with Hypoplastic Left Heart Syndrome (HLHS) and other complications with his heart, … Continued

Mary’s Tea Party

Mary’s son, Todd, only has half a working heart. Todd’s family wanted to raise lots of money for Little Hearts Matter and the British Heart Foundation so they organised an afternoon tea for friends and family in their local village hall. As well as an abundance of sandwiches and cakes, they held a charity auction … Continued

Simone & Daniel’s story

A year later – March 2016, we decided that we wanted to raise money for Little Hearts Matter. LHM was our chosen charity as they provided us with great support during the time we had with Israel. Our beautiful baby boy – Israel, known to many as ‘Izzy’ was born on November 28th 2012 at … Continued

Linsey’s story

Little Hearts Matter provide a great support network before, during and after a hospital stay and helping to fund this service is a priority to my family, friends and myself. There really is nothing more rewarding that organising, taking part and completing a fundraising event. Over the past few years I have organised and taken … Continued

Evie’s story

For the first three months of the year, I swam 2016 lengths in a 25 metre pool to help ‘Little Hearts Matter’ because they have helped him in the first years of his life. I wanted to fundraise for them because I wanted to thank them for what they’ve done to help Oscar and his … Continued

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    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

    18 hours ago  ·  

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    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

    2 days ago  ·  

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