Fundraising at school is a great way to raise awareness of single ventricle heart conditions.

Fundraising events for schools

We have some fantastic fundraising ideas that you can take part in. Click on the links below for more information

Summing It Up

Summing It Up is a Little Hearts Matter initiative to help raise awareness of the needs of the needs of a child with a heart condition in school.

Over the past ten years the LHM team have worked to create a tool box of information that parents and teachers can use to gain a greater understanding of the needs of a child  with a single ventricle heart condition in school. Age appropriate booklets, advice about accessing Healthcare Plans, added support for educational needs as well as individual advice and support have been welcomed by families throughout the country. However, families have expressed a need for a bit more help ensuring that school teams really understand their child’s heart condition.

The Summing It Up project is a collection of new ways to raise a greater awareness with teachers, school staff and ultimately other pupils, helping to ensure that children with half a heart achieve their full potential.

The Summing It Up project includes a fantastic schools fundraising pack which is aimed specifically at fundraising in schools. Find the pack and other resources here.

Let us know about your school’s fundraising

Fundraising for Little Hearts Matter helps us to continue to support families through every step of the half a heart journey. We love hearing about all of the different fundraising events our supporters are doing.

Please tell us about your event by completing the form below. Don't forget to tell us if you need any resources!

  • About You

  • About your event

  • E.g. cake sale, half marathon
  • Date Format: DD slash MM slash YYYY
  • Resources

    A fundraising pack will be emailed to you once we have received your form. If you require any other resources to help with your fundraising, please get in contact with [email protected]
  • Terms and conditions

Be social with us - our latest tweets and posts

    Meet Dion, 20 years old with Hypoplastic Left Heart Syndrome.

    “We just wanted to say how very proud as a family we are of Dion, he has come so far and is doing the best he can.”

    Shared by LHM Parent member Melissa, thank you.
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    34 minutes ago  ·  

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    Most children born with a single ventricle heart undergo a series of open heart surgeries from a very early age. In our eyes, they are all champions in their own special way.

    The medical experiences of these families is now being researched by a team of NHS specialists, with an aim to shape the future of patient experience for children affected by congenital heart disease.

    We have collaborated with the NHS to take part in this special and incredibly important research project. It is called Champion and is open to members of Little Hearts Matter – parents, adults and teenagers.

    We urge you to join the study, it is so important to our community and will help to drive real positive changes. All you have to do is answer a few questions. Please complete an application form and you will be contacted by LHM with more info.

    Here is the application form 👉 bit.ly/35KLG7n

    Photo of Acer, TGA, and VSD, kindly shared by parent member Katie, thank you.
    ... See MoreSee Less

    12 hours ago  ·  

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