Fundraising at school is a great way to raise awareness of single ventricle heart conditions.

Fundraising events for schools

We have some fantastic fundraising ideas that you can take part in. Click on the links below for more information

Summing It Up

Summing It Up is a Little Hearts Matter initiative to help raise awareness of the needs of the needs of a child with a heart condition in school.

Over the past ten years the LHM team have worked to create a tool box of information that parents and teachers can use to gain a greater understanding of the needs of a child  with a single ventricle heart condition in school. Age appropriate booklets, advice about accessing Healthcare Plans, added support for educational needs as well as individual advice and support have been welcomed by families throughout the country. However, families have expressed a need for a bit more help ensuring that school teams really understand their child’s heart condition.

The Summing It Up project is a collection of new ways to raise a greater awareness with teachers, school staff and ultimately other pupils, helping to ensure that children with half a heart achieve their full potential.

The Summing It Up project includes a fantastic schools fundraising pack which is aimed specifically at fundraising in schools. Find the pack and other resources here.

Let us know about your school’s fundraising

Fundraising for Little Hearts Matter helps us to continue to support families through every step of the half a heart journey. We love hearing about all of the different fundraising events our supporters are doing.

Please tell us about your event by completing the form below. Don't forget to tell us if you need any resources!

  • About You

  • About your event

  • E.g. cake sale, half marathon
  • Resources

    A fundraising pack will be emailed to you once we have received your form. If you require any other resources to help with your fundraising, please get in contact with [email protected]
  • Terms and conditions

Be social with us - our latest tweets and posts

    The Youth Zone is our dedicated support network for young adults aged 11 to 17 living with a single ventricle heart condition. During lock-down, we have been working hard to keep our youth members supported and connected with each other.

    We just wanted to shine some light on this awesome bunch, as they have come so far and achieved so much during the Covid Crisis. One of our highlights being this video, a 26 minute exercise challenge via Zoom, all in support of LHM for the 2.6 challenge. They smashed the routine and raised over £500 for us! Thank you.

    The group keeps in touch through regular Netflix parties and lots of healthy discussion on the private message forums, as well as having access to 1-1 support provided by LHM whenever they need it.

    None of this would be possible without our youth leader Lexie and our awesome youth mentors, please can we all thank them for the incredible work they have been doing for these brave young people throughout this crisis.

    Visit the youth zone here lhm.org.uk/youth-zone/
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    2 hours ago  ·  

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    Open Heart Surgery during Lock-down | LHM parent member Rose shares some uplifting words for us.

    "We were very apprehensive about this surgery as the last one he had was a very long recovery. He literally has made so many people proud, Naayt had his open heart surgery on the 11th June and was discharged 11 days later... home! yes, home!"

    "I couldn't believe it either. You will be so amazed at how pink they are after this surgery and its so lovely to see. The only thing that stops them is the drains which he had 1 left in literally 3 days before discharge and his inr being in range which happened on the day he was allowed home."

    "These kids are so amazing and I am so amazed at how fast they can recover and get through these operations."

    Half a Heart, Not Half a Life x
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    18 hours ago  ·  

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