Fundraising at schools is a great way to raise awareness of single ventricle heart conditions.

Summing It Up

 

Summing It Up is a Little Hearts Matter initiative to help raise awareness of the needs of the needs of a child with a heart condition in school.

Over the past ten years the LHM team have worked to create a tool box of information that parents and teachers can use to gain a greater understanding of the needs of a child  with a single ventricle heart condition in school. Age appropriate booklets, advice about accessing Healthcare Plans, added support for educational needs as well as individual advice and support have been welcomed by families throughout the country. However, families have expressed a need for a bit more help ensuring that school teams really understand their child’s heart condition.

The Summing It Up project is a collection of new ways to raise a greater awareness with teachers, school staff and ultimately other pupils, helping to ensure that children with half a heart achieve their full potential.

The Summing It Up project includes a fantastic schools fundraising pack which is aimed specifically at fundraising in schools. Find the pack and other resources here.

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    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

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    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

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