Imagine being told your child has the most complex of all heart conditions and that they can never be cured.
Imagine then being expected to make treatment decisions with no real understanding of what the future might bring.
Hearing and then understanding all the information you have been given by hospital teams is frightening and often baffling because many people have never heard of single ventricle hearts or their treatments; let alone the challenges that living with half a heart can bring. It is not surprising that families are left feeling alone, frightened, confused and floundering until they receive help.
That is why Little Hearts Matter exists.
Offering a mixture of personal support and easily understood information, LHM’s aims are to reduce fear, isolation and lack of understanding and to help families on their half a heart journey however we can.
We are the only charity in the UK offering this highly specialised help and with over 600 children being diagnosed and our membership growing 20 per cent in the last two years, our help is needed now more than ever.
If you’d like to read more, please go to our full Case for Support.