Imagine being told your child has the most complex of all heart conditions and that they can never be cured.

Imagine then being expected to make treatment decisions with no real understanding of what the future might bring.

Hearing and then understanding all the information you have been given by hospital teams is frightening and often baffling because many people have never heard of single ventricle hearts or their treatments; let alone the challenges that living with half a heart can bring. It is not surprising that families are left feeling alone, frightened, confused and floundering until they receive help.

That is why Little Hearts Matter exists.

Offering a mixture of personal support and easily understood information, LHM’s aims are to reduce fear, isolation and lack of understanding and to help families on their half a heart journey however we can.

We are the only charity in the UK offering this highly specialised help and with over 600 children being diagnosed and our membership growing 20 per cent in the last two years, our help is needed now more than ever.

If you’d like to read more, please go to our full Case for Support.

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    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

    16 hours ago  ·  

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    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

    2 days ago  ·  

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