Imagine being told your child has the most complex of all heart conditions and that they can never be cured.

Imagine then being expected to make treatment decisions with no real understanding of what the future might bring.

Hearing and then understanding all the information you have been given by hospital teams is frightening and often baffling because many people have never heard of single ventricle hearts or their treatments; let alone the challenges that living with half a heart can bring. It is not surprising that families are left feeling alone, frightened, confused and floundering until they receive help.

That is why Little Hearts Matter exists.

Offering a mixture of personal support and easily understood information, LHM’s aims are to reduce fear, isolation and lack of understanding and to help families on their half a heart journey however we can.

We are the only charity in the UK offering this highly specialised help and with over 600 children being diagnosed and our membership growing 20 per cent in the last two years, our help is needed now more than ever.

If you’d like to read more, please go to our full Case for Support.

Be social with us - our latest tweets and posts

    One of our wonderful members Daniela shares her feelings of when she first learnt that her son had only half a heart...

    "It was one of the most difficult and uncertain times in our lives but it was also helpful knowing that others could understand what we were going through and that we had prepared ourselves and done everything we needed to do to understand what was going to happen to Oscar in surgery."

    “We are forever grateful for LHM for everything they have assisted us with, for what they have informed us about, and for the ongoing support we receive. We really couldn’t do this journey without the charity.”

    A huge thank you to Daniela for sharing your half-a-heart journey with us, we'd love for you to read the full story here: bit.ly/2QY5Bcp

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    4 hours ago  ·  

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    “We are all delighted and grateful for the Health Games donation to Little Hearts Matter. To have won the vote over three other amazingly deserving charities is truly fantastic, and humbling news for everyone here at Little Hearts Matter. The money we received will genuinely change the lives of the children with half a heart and their families."

    Thanks again to The Health Lottery for your generous donation to Little Hearts Matter and for helping to support our families. You can read Daily Mirror's coverage here www.mirror.co.uk/news/uk-news/win-million-game-health-lottery-20860910

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    1 day ago  ·  

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