Imagine being told your child has the most complex of all heart conditions and that they can never be cured.

Imagine then being expected to make treatment decisions with no real understanding of what the future might bring.

Hearing and then understanding all the information you have been given by hospital teams is frightening and often baffling because many people have never heard of single ventricle hearts or their treatments; let alone the challenges that living with half a heart can bring. It is not surprising that families are left feeling alone, frightened, confused and floundering until they receive help.

That is why Little Hearts Matter exists.

Offering a mixture of personal support and easily understood information, LHM’s aims are to reduce fear, isolation and lack of understanding and to help families on their half a heart journey however we can.

We are the only charity in the UK offering this highly specialised help and with over 600 children being diagnosed and our membership growing 20 per cent in the last two years, our help is needed now more than ever.

If you’d like to read more, please go to our full Case for Support.

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    A few weeks ago, we shared a news article about John and Kate Carlton who have been fundraising for Little Hearts Matter. This family’s amazing support doesn’t stop there, as their 9 year old daughter May also arranged for her school to take part in a non-uniform day for Little Hearts Matter. She put together a PowerPoint presentation and spoke to her Headteacher who agreed to hold a fundraising day for LHM.

    Just look at how many donations were received on the day – well done May, you’re a star! ❤️ To get involved and register your fundraising, click here: www.lhm.org.uk/get-involved/fundraising/register-your-fundraising/
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    Youth Support

    There are young people living with half a heart across the country, many aged between 11 and 18. It is massively important for all of these brave young people to have access to the care, guidance and support they need – allowing them to live life to its full potential that their heart will allow.

    Lexie runs our Youth Services, supporting our youth members in a variety of ways, throughout their half a heart journey. These young members are invited to Activity Weekends and Education Days where they will explore their heart condition and seek solutions to the challenges that having half a heart brings. They will also have an opportunity to meet with other young members, online and in person, making friendships and helping them feel less alone.

    Did you know our youth members also consist of siblings? We know it can be a tough road for them too, so they also have a chance to chat with each other for support from people their age that truly understand. You can find out more about our Youth Services by clicking here www.lhm.org.uk/youth-zone/
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    2 days ago  ·  

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