Sophie (17, HLHS)

When people say, “Tell us something interesting about yourself”, I often wonder what their reaction would be if I were to say, “I have half a heart”… My name is Sophie, I am seventeen years old, and I have a handmade heart! Before I was born, I was diagnosed with the heart condition, Hypoplastic Left … Continued

Ryan (17, TA)

Hello my name is Ryan, I was born on 13th June 1997, which was a Friday the 13th would you believe. The very next day I was transferred to Birmingham children’s hospital, where I was diagnosed with having tricuspid atresia. So began my journey of operations over 3 years. I had my first one when … Continued

‘I’ve Learnt To Live With My Limitations And Not Be Discouraged’- Andrew’s Story

Hello people of the internet. I believe introductions are in order. My name’s Andrew and I’m an 18 year old regular guy living in the sunny seaside county known as Essex… Okay I was joking about the sunny bit… Although when I say that I’m a regular guy, I wouldn’t go as far as say … Continued

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    If you have signed up to our Open Day, but can no longer attend, please email [email protected]

    We had an amazing response to the event and hit full capacity very quickly. There are several families now on our waiting list, so please let us know as soon as possible if you can no longer make the event.

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    Antenatal Support

    Many families first find Little Hearts Matter just after they have learnt that their unborn baby has half a working heart. The Little Hearts Matter team are here to help make any diagnosis and treatment information easier to understand and will always try to help new families cope with the emotional choices needed during pregnancy. Following a call to the support line you will be linked with a member of the antenatal support team.

    Suzie has been with the charity since its inception, working in the LHM office for over 20 years.. She used to be a Congenital Cardiac Specialist Nurse so will listen to all callers’ concerns and work to help them understand what their medical team have told them, especially following a new diagnosis or treatment plan. Although she is unable to give individual medical advice she will help a caller to draw up a list of questions for their own medical team. She also works to help families to access support for a child in school or apply for benefits and she works to give a general overview of life with a congenital heart condition and the support a child or family may need at any stage of their journey.

    For help with an antenatal diagnosis of half a working heart, call 0121 455 8982 ❤️
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    24 hours ago  ·  

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