Sophie (17, HLHS)

When people say, “Tell us something interesting about yourself”, I often wonder what their reaction would be if I were to say, “I have half a heart”… My name is Sophie, I am seventeen years old, and I have a handmade heart! Before I was born, I was diagnosed with the heart condition, Hypoplastic Left … Continued

Ryan (17, TA)

Hello my name is Ryan, I was born on 13th June 1997, which was a Friday the 13th would you believe. The very next day I was transferred to Birmingham children’s hospital, where I was diagnosed with having tricuspid atresia. So began my journey of operations over 3 years. I had my first one when … Continued

‘I’ve Learnt To Live With My Limitations And Not Be Discouraged’- Andrew’s Story

Hello people of the internet. I believe introductions are in order. My name’s Andrew and I’m an 18 year old regular guy living in the sunny seaside county known as Essex… Okay I was joking about the sunny bit… Although when I say that I’m a regular guy, I wouldn’t go as far as say … Continued

Be social with us - our latest tweets and posts

    “Thank you very much for Chris' card. I cannot believe he is 18 and am so proud of the lovely young man he has become, overcoming the many challenges we have faced over the years, especially in the first 4 to 5 years. Thank you Little hearts matter for always being there.”

    Thank you to Chris and mum Philippa for sharing this fantastic news with us, we hope this brings some inspiration to the many families out there who are at the start of their half a heart journey.

    With YOUR help, we can continue to support the amazing young adults living with a single ventricle heart today, just like Chris here. All you need to do spare 30 seconds of your time every day to vote for LHM in Persimmon’s ‘Building Futures’ initiative.

    They don’t ask for any details, you simply click our logo on this page; biy.ly/support-lhm

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    23 hours ago  ·  

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    So pleased to see Amelia here, DILV, enjoying some cycling along with her sister Evie…

    “We’ve been doing a lot of cycling this week as both girls have grown in confidence. I’m amazed at Amelia’s stamina on the bike, doing much more exercise than she’s ever done. This is the girl that needs a buggy to get home from school (in normal life). She’s found a sport that she can comfortably do. She says she feels free when she’s cycling. That makes me happy and sad at the same time ❤ “Cycling makes me feel free, happy and like nothing is in my way””

    Riding a bike is great exercise for children, teenagers and adults with half a working heart. It helps get you from A to B but is also is supported exercise for the lower body and therefore provides good support for blood returning to the lungs. There are many incentives to help get you on a bike, at the moment.

    Learn more by jumping to our ‘get fit for winter’ resource here: www.lhm.org.uk/information/lifestyle-information/get-fit-for-winter/
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    1 day ago  ·  

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