Sophie (17, HLHS)

When people say, “Tell us something interesting about yourself”, I often wonder what their reaction would be if I were to say, “I have half a heart”… My name is Sophie, I am seventeen years old, and I have a handmade heart! Before I was born, I was diagnosed with the heart condition, Hypoplastic Left … Continued

Ryan (17, TA)

Hello my name is Ryan, I was born on 13th June 1997, which was a Friday the 13th would you believe. The very next day I was transferred to Birmingham children’s hospital, where I was diagnosed with having tricuspid atresia. So began my journey of operations over 3 years. I had my first one when … Continued

‘I’ve Learnt To Live With My Limitations And Not Be Discouraged’- Andrew’s Story

Hello people of the internet. I believe introductions are in order. My name’s Andrew and I’m an 18 year old regular guy living in the sunny seaside county known as Essex… Okay I was joking about the sunny bit… Although when I say that I’m a regular guy, I wouldn’t go as far as say … Continued

Be social with us - our latest tweets and posts

    “Esmé has Hypoplastic Left Heart Syndrome and underwent a bilateral CAVO operation recently at Alder Hey Hospital. This video was just 4 days post-operation, showing how happy she is! Esmé is receiving just a flow to support breathing with no oxygen requirement.”

    “Being in hospital having surgery at this difficult time is hard but we’re thankful that extra measures have been put into place to protect her including a room of her own whilst she recovers and gets fit enough to go home and isolate 💕 “
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    19 hours ago  ·  

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