‘Life Is What We Make It’- Jack’s Story

Hi guys and girls, my name is Jack. I was born on Monday 29th November 1993. I have a life threatening heart condition called, Hypo Plastic Left Heart Syndrome. I was diagnosed at Musgrove Park hospital in Taunton, the county town of Somerset. I live in a very small village called Ashcott with my Mum, … Continued

Lucy (16, HLHS)

Hi, my name is Lucy, and this is a short piece about what life is like living with a handmade heart. There are many ways that my heart affects my everyday life. Sometimes I feel as if I’m on a see-saw, trying to balance my lifestyle just right. I am 16 years old, entering my … Continued

Sophie (17, HLHS)

When people say, “Tell us something interesting about yourself”, I often wonder what their reaction would be if I were to say, “I have half a heart”… My name is Sophie, I am seventeen years old, and I have a handmade heart! Before I was born, I was diagnosed with the heart condition, Hypoplastic Left … Continued

Ryan (17, TA)

Hello my name is Ryan, I was born on 13th June 1997, which was a Friday the 13th would you believe. The very next day I was transferred to Birmingham children’s hospital, where I was diagnosed with having tricuspid atresia. So began my journey of operations over 3 years. I had my first one when … Continued

‘I’ve Learnt To Live With My Limitations And Not Be Discouraged’- Andrew’s Story

Hello people of the internet. I believe introductions are in order. My name’s Andrew and I’m an 18 year old regular guy living in the sunny seaside county known as Essex… Okay I was joking about the sunny bit… Although when I say that I’m a regular guy, I wouldn’t go as far as say … Continued

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