Sophie ( 20, HLHS )

This week is Mental Health Awareness Week, a cause very close to my heart- well, half of it….😉 My name is Sophie, I am twenty years old and was born with half a working heart (Hypoplastic Left Heart Syndrome). However, two and a half years ago, I was also diagnosed with Anxiety. “However, two and … Continued

Thomas (13, HLHS)

Hello, I’m Thomas. I’m 13 years old and I have Hypoplastic Left Heart Syndrome. Here’s my story about my life so far. Fenestration Frustration They knew about my heart condition before I was born so I was transported by ambulance to Birmingham Children’s Hospital. I had my first open heart surgery, the Norwood procedure, when … Continued

Chloe (19, Sibling)

Hello, my name is Chloe and I have a little sister called Ella who has Hypoplastic Left Heart Syndrome; I am seventeen years old and Ella is ten years old. Through the years I have learnt about what the person with the condition is like and read about what they go through, but I have … Continued

‘I Look Forward To What Could Be In The Future’- Evie’s Story

I was born on the 24th of October in 1996 with Hypoplastic Left Heart Syndrome.I had my first operation at 4 days old, then at 6 months old and my last (so far) at 3 years old. From what I can remember which is not much at all, my operations went well and I would … Continued

Sarah (21, HLHS)

Hi, my name is Sarah. I am a singer songwriter, I also work in an after school club with 2 to 4 year olds. I am 21 years old (nearly 22) and I live with my parents, brother and sister in Kent. When I arrived in the world back in 1992 I was 5 weeks early. … Continued

Amy (15, HLHS)

So, where it all started… I wasn’t alive at this point but at the 20 week scan I was diagnosed with Hypoplastic Left Heart Syndrome (easier version – half a working heart). So my Mum and Dad where transferred to Guys Hospital London (right by London Bridge) after that 20 weeks scan where they then … Continued

‘I Have Been A Trustee For 4 Years’- Hannah’s Story

Hannah. 20. Born In Newport, South Wales. Slightly addicted to Harry Potter. ( Okay, more than slightly). Second Year University Student. These are some facts about me, facts that pretty much everyone who knows me will know.  One important fact that only some people know is that I was born with Half a Heart. And … Continued

‘Life Is What We Make It’- Jack’s Story

Hi guys and girls, my name is Jack. I was born on Monday 29th November 1993. I have a life threatening heart condition called, Hypo Plastic Left Heart Syndrome. I was diagnosed at Musgrove Park hospital in Taunton, the county town of Somerset. I live in a very small village called Ashcott with my Mum, … Continued

Lucy (16, HLHS)

Hi, my name is Lucy, and this is a short piece about what life is like living with a handmade heart. There are many ways that my heart affects my everyday life. Sometimes I feel as if I’m on a see-saw, trying to balance my lifestyle just right. I am 16 years old, entering my … Continued

Sophie (17, HLHS)

When people say, “Tell us something interesting about yourself”, I often wonder what their reaction would be if I were to say, “I have half a heart”… My name is Sophie, I am seventeen years old, and I have a handmade heart! Before I was born, I was diagnosed with the heart condition, Hypoplastic Left … Continued

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    "University gave me the opportunity to take control of my heart condition. It was definitely a challenge but 100% worth it".

    Andrew is one of our members, he is also a university graduate! 👨‍🎓He tells a story of overcoming fears, finding new confidence and preparing for adult life after graduation.

    This is Andrew’s story, read it here: bit.ly/2kDXXWF

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    👨‍🎓It's University arrival week! 👩‍🎓

    Some of our members will be moving into their University accommodation this week and we couldn’t be more excited for them 🙌

    Higher education is a daunting prospect, but this is an amazing opportunity for you to meet new people, gain some valuable life experience and work towards your chosen career. Just remember, we are here to support you in this new chapter, drop us a PM if you have a question or need someone to talk to.

    Good luck from the LHM family! ❤️
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