Andrew Kerry – Transition

I still feel like a child. I’m not ready to accept that in 4 months I will have to leave university, find an adult job, get an adult house and do boring adult things like pay bills and watch period dramas on Channel 4. I recently turned the grand old age of 21 which means … Continued

Sophie ( 20, HLHS )

This week is Mental Health Awareness Week, a cause very close to my heart- well, half of it….😉 My name is Sophie, I am twenty years old and was born with half a working heart (Hypoplastic Left Heart Syndrome). However, two and a half years ago, I was also diagnosed with Anxiety. “However, two and … Continued

Thomas (13, HLHS)

Hello, I’m Thomas. I’m 13 years old and I have Hypoplastic Left Heart Syndrome. Here’s my story about my life so far. Fenestration Frustration They knew about my heart condition before I was born so I was transported by ambulance to Birmingham Children’s Hospital. I had my first open heart surgery, the Norwood procedure, when … Continued

Chloe (19, Sibling)

Hello, my name is Chloe and I have a little sister called Ella who has Hypoplastic Left Heart Syndrome; I am seventeen years old and Ella is ten years old. Through the years I have learnt about what the person with the condition is like and read about what they go through, but I have … Continued

‘I Look Forward To What Could Be In The Future’- Evie’s Story

I was born on the 24th of October in 1996 with Hypoplastic Left Heart Syndrome.I had my first operation at 4 days old, then at 6 months old and my last (so far) at 3 years old. From what I can remember which is not much at all, my operations went well and I would … Continued

Sarah (21, HLHS)

Hi, my name is Sarah. I am a singer songwriter, I also work in an after school club with 2 to 4 year olds. I am 21 years old (nearly 22) and I live with my parents, brother and sister in Kent. When I arrived in the world back in 1992 I was 5 weeks early. … Continued

Amy (15, HLHS)

So, where it all started… I wasn’t alive at this point but at the 20 week scan I was diagnosed with Hypoplastic Left Heart Syndrome (easier version – half a working heart). So my Mum and Dad where transferred to Guys Hospital London (right by London Bridge) after that 20 weeks scan where they then … Continued

‘I Have Been A Trustee For 4 Years’- Hannah’s Story

Hannah. 20. Born In Newport, South Wales. Slightly addicted to Harry Potter. ( Okay, more than slightly). Second Year University Student. These are some facts about me, facts that pretty much everyone who knows me will know.  One important fact that only some people know is that I was born with Half a Heart. And … Continued

‘Life Is What We Make It’- Jack’s Story

Hi guys and girls, my name is Jack. I was born on Monday 29th November 1993. I have a life threatening heart condition called, Hypo Plastic Left Heart Syndrome. I was diagnosed at Musgrove Park hospital in Taunton, the county town of Somerset. I live in a very small village called Ashcott with my Mum, … Continued

Lucy (16, HLHS)

Hi, my name is Lucy, and this is a short piece about what life is like living with a handmade heart. There are many ways that my heart affects my everyday life. Sometimes I feel as if I’m on a see-saw, trying to balance my lifestyle just right. I am 16 years old, entering my … Continued

Be social with us - our latest tweets and posts

    “Thank you very much for Chris' card. I cannot believe he is 18 and am so proud of the lovely young man he has become, overcoming the many challenges we have faced over the years, especially in the first 4 to 5 years. Thank you Little hearts matter for always being there.”

    Thank you to Chris and mum Philippa for sharing this fantastic news with us, we hope this brings some inspiration to the many families out there who are at the start of their half a heart journey.

    With YOUR help, we can continue to support the amazing young adults living with a single ventricle heart today, just like Chris here. All you need to do spare 30 seconds of your time every day to vote for LHM in Persimmon’s ‘Building Futures’ initiative.

    They don’t ask for any details, you simply click our logo on this page; biy.ly/support-lhm

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    10 hours ago  ·  

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    So pleased to see Amelia here, DILV, enjoying some cycling along with her sister Evie…

    “We’ve been doing a lot of cycling this week as both girls have grown in confidence. I’m amazed at Amelia’s stamina on the bike, doing much more exercise than she’s ever done. This is the girl that needs a buggy to get home from school (in normal life). She’s found a sport that she can comfortably do. She says she feels free when she’s cycling. That makes me happy and sad at the same time ❤ “Cycling makes me feel free, happy and like nothing is in my way””

    Riding a bike is great exercise for children, teenagers and adults with half a working heart. It helps get you from A to B but is also is supported exercise for the lower body and therefore provides good support for blood returning to the lungs. There are many incentives to help get you on a bike, at the moment.

    Learn more by jumping to our ‘get fit for winter’ resource here: www.lhm.org.uk/information/lifestyle-information/get-fit-for-winter/
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    16 hours ago  ·  

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