Sophie ( 20, HLHS )

This week is Mental Health Awareness Week, a cause very close to my heart- well, half of it….😉 My name is Sophie, I am twenty years old and was born with half a working heart (Hypoplastic Left Heart Syndrome). However, two and a half years ago, I was also diagnosed with Anxiety. “However, two and … Continued

Thomas (13, HLHS)

Hello, I’m Thomas. I’m 13 years old and I have Hypoplastic Left Heart Syndrome. Here’s my story about my life so far. Fenestration Frustration They knew about my heart condition before I was born so I was transported by ambulance to Birmingham Children’s Hospital. I had my first open heart surgery, the Norwood procedure, when … Continued

Chloe (19, Sibling)

Hello, my name is Chloe and I have a little sister called Ella who has Hypoplastic Left Heart Syndrome; I am seventeen years old and Ella is ten years old. Through the years I have learnt about what the person with the condition is like and read about what they go through, but I have … Continued

‘I Look Forward To What Could Be In The Future’- Evie’s Story

I was born on the 24th of October in 1996 with Hypoplastic Left Heart Syndrome.I had my first operation at 4 days old, then at 6 months old and my last (so far) at 3 years old. From what I can remember which is not much at all, my operations went well and I would … Continued

Sarah (21, HLHS)

Hi, my name is Sarah. I am a singer songwriter, I also work in an after school club with 2 to 4 year olds. I am 21 years old (nearly 22) and I live with my parents, brother and sister in Kent. When I arrived in the world back in 1992 I was 5 weeks early. … Continued

Amy (15, HLHS)

So, where it all started… I wasn’t alive at this point but at the 20 week scan I was diagnosed with Hypoplastic Left Heart Syndrome (easier version – half a working heart). So my Mum and Dad where transferred to Guys Hospital London (right by London Bridge) after that 20 weeks scan where they then … Continued

‘I Have Been A Trustee For 4 Years’- Hannah’s Story

Hannah. 20. Born In Newport, South Wales. Slightly addicted to Harry Potter. ( Okay, more than slightly). Second Year University Student. These are some facts about me, facts that pretty much everyone who knows me will know.  One important fact that only some people know is that I was born with Half a Heart. And … Continued

‘Life Is What We Make It’- Jack’s Story

Hi guys and girls, my name is Jack. I was born on Monday 29th November 1993. I have a life threatening heart condition called, Hypo Plastic Left Heart Syndrome. I was diagnosed at Musgrove Park hospital in Taunton, the county town of Somerset. I live in a very small village called Ashcott with my Mum, … Continued

Lucy (16, HLHS)

Hi, my name is Lucy, and this is a short piece about what life is like living with a handmade heart. There are many ways that my heart affects my everyday life. Sometimes I feel as if I’m on a see-saw, trying to balance my lifestyle just right. I am 16 years old, entering my … Continued

Sophie (17, HLHS)

When people say, “Tell us something interesting about yourself”, I often wonder what their reaction would be if I were to say, “I have half a heart”… My name is Sophie, I am seventeen years old, and I have a handmade heart! Before I was born, I was diagnosed with the heart condition, Hypoplastic Left … Continued

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    Nominations are open for our next Brave Hearts Awards 🏅

    We know that a lot of our young people miss out on awards and trips at school and we feel that they, like every young person should be rewarded for what they learn and how they develop 🙌

    If you know of a young person with a single ventricle heart aged between 8-17 that has achieved and grown, take a look at our list of awards on www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/ 👈

    Nominations will close at the end of January 2020 📅
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    8 hours ago  ·  

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    👋 Meet Archie, he is 7 years old and was born with Tricuspid Atresia (TA) a rare congenital heart condition. Archie had his Fontan procedure in September at the University Hospital Southampton, Ocean Ward. The aim of the Fontan procedure is to give a child as much energy as having only half a pumping heart will allow. If surgery has gone to plan the children will gradually recover from the operation and go on to gain far more energy than they had before. He had a longer stay than anticipated, due to a number of complications, but was discharged in October.

    ❤️ “The staff, nurses, doctors, consultants and surgeon were utterly wonderful and we can’t thank them enough. However, it was a consultant anaesthetist, Dr Andy Curry, who stood out in Archie’s mind. His bedside manner, and the relationship of trust that he managed to build up with our very anxious little boy, was astounding to watch. So, on ‘Dress as your Hero Day’ at school, Archie wanted to dress as his hero…”I want to dress as Dr Andy because he helped save my life and he’s my friend”…gulp” – Archie’s mum Charlene.

    😻 We have been blown away by this story. A month after coming home from hospital and Archie is raising a smile, dressing up as his hero and on his way to school. This is one strong boy, as are all of the children in the LHM family.

    🙌 Give this post a share to show your support of Children’s day.

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    University Hospital Southampton NHS Foundation Trust
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    1 day ago  ·  

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