‘Our Little Soldier’- Sarah’s Story

My husband Dave and I found out at our 20 week scan that we were having a boy. We did not anticipate the news that would follow. The sonogram showed that our baby had a heart defect but without further scans they could not see what. Several days later just after Christmas 2009 we were … Continued

‘I think this stuck hard with me after he died…’- Stephen’s Story

After sadly losing their little boy Sean (4) through complications after surgery, Stephen recalls feeling completely broken. Sean was brave and confident, and demonstrated these through his adoration of swimming. When he was in hospital, Sean said that he would never swim again. I think this stuck hard with me after he died, the guilt … Continued

‘There Is Always A Light To Move Towards.’ – Tracy’s Story

Tracy has kindly shared her story about losing her little girl, Orla Tracy and Tom were excited to go for their 20 week scan for their first child. Their excitement, they recall, was brought crumbling down when they found out that their daughter would be born with Hypoplastic left Heart Syndrome, a cleft lip and … Continued

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    Rhys here is 9 and has Hypoplastic Left Heart Syndrome. Rhys just celebrated his 4 year heart-iversary, 4 years since his Fontan operation. Well done, you've got this!Shared by LHM member Terri, thank you ❤ ... See MoreSee Less

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    This Black History Month we would love to tell you about Vivien Thomas, a cardiologist who played a crucial role in the development of treatment for children born with Tetralogy of Fallot, also known as Blue Baby Syndrome, and other conditions. Thomas pioneered an operation now known as the Blalock-Thomas-Taussig shunt. At the time, Thomas was disregarded because of racism and prejudice against his lack of an academic background, sadly it was not until the 1980’s that the procedure included his name. The procedure is still used to this day and has helped many of our members. Join us to celebrate this amazing man. ... See MoreSee Less

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