‘Our Little Soldier’- Sarah’s Story

My husband Dave and I found out at our 20 week scan that we were having a boy. We did not anticipate the news that would follow. The sonogram showed that our baby had a heart defect but without further scans they could not see what. Several days later just after Christmas 2009 we were … Continued

‘I think this stuck hard with me after he died…’- Stephen’s Story

After sadly losing their little boy Sean (4) through complications after surgery, Stephen recalls feeling completely broken. Sean was brave and confident, and demonstrated these through his adoration of swimming. When he was in hospital, Sean said that he would never swim again. I think this stuck hard with me after he died, the guilt … Continued

‘There Is Always A Light To Move Towards.’ – Tracy’s Story

Tracy has kindly shared her story about losing her little girl, Orla Tracy and Tom were excited to go for their 20 week scan for their first child. Their excitement, they recall, was brought crumbling down when they found out that their daughter would be born with Hypoplastic left Heart Syndrome, a cleft lip and … Continued

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    Hope 🌈

    "Hello! This is my first time posting since recently joining this group. Here’s my favourite lock-down picture of my son Toby (Complex Pulmonary Atresia), he’s just over 2 years old."

    "We’ve been shielding and now very nervously trying to get back to some normality...for Toby and his 5 year old sister."

    Quote shared by LHM parent member Carlie x
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    Reaching Milestones in Lockdown | Elijah's Fontan Progress

    An update from LHM parent member Michelle, mum to Elijah who had his Fontan operation 2 years ago...

    "Hard to believe this was 2 years ago, and then a pic of him now! 😍 We couldn’t have got through our journey so far without the amazing support from the NHS and the LHM team. We will always be thankful."

    Half a Heart, Not Half a Life x
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    3 days ago  ·  

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