‘Our Little Soldier’- Sarah’s Story

My husband Dave and I found out at our 20 week scan that we were having a boy. We did not anticipate the news that would follow. The sonogram showed that our baby had a heart defect but without further scans they could not see what. Several days later just after Christmas 2009 we were … Continued

‘I think this stuck hard with me after he died…’- Stephen’s Story

After sadly losing their little boy Sean (4) through complications after surgery, Stephen recalls feeling completely broken. Sean was brave and confident, and demonstrated these through his adoration of swimming. When he was in hospital, Sean said that he would never swim again. I think this stuck hard with me after he died, the guilt … Continued

‘There Is Always A Light To Move Towards.’ – Tracy’s Story

Tracy has kindly shared her story about losing her little girl, Orla Tracy and Tom were excited to go for their 20 week scan for their first child. Their excitement, they recall, was brought crumbling down when they found out that their daughter would be born with Hypoplastic left Heart Syndrome, a cleft lip and … Continued

Be social with us - our latest tweets and posts

    LHM Brave Heart Awards! Empowering young people living with half a working heart today.

    Maybe you know an LHM youth member who has achieved something great or has shown a real understanding of their heart condition? Let’s give them some recognition with a Brave Heart Award!

    You can nominate a young person with half a heart for a Brave Heart Award by going to our website here: www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/
    ... See MoreSee Less

    1 hour ago  ·  

    View on Facebook

    We are kicking off the week with some feel-good…

    “Tommy is absolutely smashing reception! He struggled to settle into nursery, but he started reception on the 3rd and absolutely loves it. He got a “star of the week” certificate on his first full week and he doesn’t want to come home on an afternoon! Tommy is doing 5 full days and is pre-Fontan, so I was expecting him to struggle, but he’s not ❤”

    Fantastic news sent in by LHM member Beth, mum to Tommy who was born with half a heart. So pleased he is settling in well.

    Parents, remember we have a new teachers pack created to help schools understand the needs of a child with a single ventricle heart. You can find it here: bit.ly/3jqAbpQ or email [email protected] to request a hard copy.
    ... See MoreSee Less

    1 day ago  ·  

    View on Facebook