‘Our Little Heart Warrior Overcame All The Challenges’- Colin’s Story

It was the day of our daughter’s 19 week scan and my wife Christine and I were eagerly awaiting the return of Sally and Spencer so that we would know whether 3 year old Joe was going to have a brother or a sister. Our excitement built as the car pulled on to the drive … Continued

‘He Is My Little Ginger Ninja Superdude’- Karen’s Story

My heart story started back in April 2009. My eldest daughter was pregnant with my very 1st Grandchild, an exciting time for any new Grandma to be. I’d travelled down to Manchester from my now home in Durham so I could help my daughter and meet my new Grandson .    st before the end of the … Continued

‘He’s The Apple of Grandma’s Eye’- Richard’s Story

Max’s Grandparents were living in bliss in France. He’d even given up on the prospect of being a grandparent, but when the news of the pregnancy came about, he looked forward to watching his grandchildren climb trees and introducing them to the South of France. Little did Richard know that a congenital heart defect was … Continued

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    Slowly but surely, the days are getting a little longer, brighter and warmer. Makes a huge difference, doesn’t it. This past year, our focus has been, and always will be, to support families on their half a heart journey. When the pandemic is over, we will still be here, helping them through feelings of fear, isolation and lack of understanding – because they are on a life-long journey. So, as we all take baby steps towards normality, we ask the public to carry a new approach with you into the future - simply be mindful of vulnerable groups, always, even after Covid. Cannot wait to see our members getting out and having fun again! ... See MoreSee Less

    16 hours ago  ·  

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    Jump to 2021, our support services have evolved into something special. We now have a wealth of information available to families of all single ventricle heart conditions. This includes our ever-expanding library of publications. We create specialised information, tailor-made for our members as they navigate life with a single ventricle heart. One of the many ways that makes our work so unique. Our latest publication is no different and was designed to support young people with half a heart as they navigate sex & relationships. This guidance is for young people aged 16+ and it is available as a free download here: bit.ly/2MLchKR ... See MoreSee Less

    2 days ago  ·  

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