The Stories My Parents Tell Me About The Whole Experience Scare Me- Thomas Messer

Thomas Messer is a 19 year old musician from Scotland with half a heart, or Hypoplastic Left Heart Syndrome (HLHS). Over the last 19 years Tom has learnt to live with HLHS and all the challenges it has presented to him. His mum, Carole, said: “He copes really well and never complains. Transition has not … Continued

Shane tells Olivia’s story

After my daughter’s third heart operation I broke down in tears because it was the first time I had ever seen her lips, fingers and cheeks pink – they were always blue before. My name is Shane and my daughter Olivia is 11 years old with only half a working heart. After 10 years of … Continued

My baby was only three days old when he had an open heart operation.

A few minutes into my pregnancy scan, the sonographer told us to go and get a drink and to come back shortly as she couldn’t get a clear view of the heart. I think we knew then that something wasn’t right. Once we returned we were told that the left side of our baby’s heart hadn’t … Continued

After two miscarriages I fell pregnant again, with a baby that had only half a working heart.

We found out at the 20 week scan that there was something wrong with our baby’s heart. A week or so later we saw a specialist who confirmed that it was Pulmonary Atresia, in short, our baby would only have half a working heart. We had already experienced two miscarriages by this point and I … Continued

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