‘We Are so Proud Of Everything He Has Faced’- Mary’s Story

‘We can’t see all four chambers of your baby’s heart’ were the hardest words we’ve ever heard. After hearing this devastating news, we were so anxious to know what this all meant, but what with the heart being one of the bodies most vital organs, we knew it wasn’t good. Our local hospital completed an … Continued

‘Another Dad Said That Seeing Isobel…Had Given Them Hope’- Paul on his daughter Isobel

Paul recalls his daughter Isobel’s birth. He and his wife were the calmest couple in the hospital. Another couple in a neighboring cot even told him ‘she has you wrapped around her little finger’. This is certainly true, Paul and Isobel are very close. However, their relationship was so powerful that his wife had to … Continued

‘Im His Dad Not His Doctor’- David on his son Alasdair

Alasdair’s father David writes about his experiences in trying to support his son who has a single ventricle heart condition. After finding out about his son’s heart condition, David reacted in only way a Medical Physicist could. He used his health research skills and found all the medical literature he could about the condition. He … Continued

‘I Can’t Make It (Luke’s Heart) Normal’- Joanne, Martin, Ethan, and Luke

Luke’s family reflect together on their experiences of having a loved one with a congenital heart condition. After the anomaly scan revealed that Luke would have half a heart among other conditions, Joanne and Martin spent days at home under a dark cloud and in tears.  But they found support in friends, family and Little … Continued

‘We are prepared to spend his first birthday in hospital, and that’s OK’- Laura on her Son Lennox

There can be so much confusion about suddenly being told you’ll have a child with half a heart when you’ve had healthy children in the past. Laura went through this feeling, even asking herself ‘I have two healthy boys, how can Lennox be so poorly’. Lennox had his first surgery at 3 days old. Those … Continued

‘I Thought It Happened To Other People Far Away’- Maia on her son MacFhionnlaigh

Maia is the mother of MacFhionnlaigh, who has Hypoplastic Left Heart syndrome. She writes how Mac entering her and her family’s life has molded them into better people. He has taught them to laugh more, cry more, and to measure life by love and not years. Maia is a Navy mum, meaning that whilst her … Continued

‘We Are So Blessed And Fortunate To Have Vinnie’ – Jessica On Her Son Vinnie

Vinnie and his family’s heart journey started when they were sitting in the maternity ward and Vinnie wouldn’t feed. Matthew, his father immediately arrived at the hospital to support them. Vinnie spent Christmas day alone in an incubator. To find out about Vinnie’s condition, they had to travel to Birmingham Children’s Hospital. When they were … Continued

‘He’s a born miracle’- Kyra On Her Son Kaiden

Kaiden was born with Tricuspid Atresia, Pulmonary Atresia and a large VSD. After Kaiden’s first surgery, his parents were shocked at the many tubes wrapped around their little boy. But that was only the beginning. After Kaiden’s second surgery, his parents found out that he had severe narrowing in one of the veins and had … Continued

‘The Scariest Experience of My Life’- Michelle on her son Elijah

Michelle Rose is the mother of Elijah, a ‘little bean’ with a series of conditions such as Double Inlet Left Ventricle, Transposition of the Arteries, Hypoplastic Right Valve, and Sub Pulmonary stenosis. For parents, the 20 week scan usually confirms the pregnancy is going smoothly, and Michelle naturally expected this. However, she describes the shock … Continued

‘He Had A Chance Of Surviving’ – Jessica on her son Ollie

By the time of her 12 week scan, Jessica had a high chance of giving birth to a child with Down syndrome and/or a heart condition. The words ‘I can only see half the heart beating’ brought her world crashing down as she sobbed into her husband’s arms. Their little boy had Hypoplastic Right Heart … Continued

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    Nominations are open for our next Brave Hearts Awards 🏅

    We know that a lot of our young people miss out on awards and trips at school and we feel that they, like every young person should be rewarded for what they learn and how they develop 🙌

    If you know of a young person with a single ventricle heart aged between 8-17 that has achieved and grown, take a look at our list of awards on www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/ 👈

    Nominations will close at the end of January 2020 📅
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    👋 Meet Archie, he is 7 years old and was born with Tricuspid Atresia (TA) a rare congenital heart condition. Archie had his Fontan procedure in September at the University Hospital Southampton, Ocean Ward. The aim of the Fontan procedure is to give a child as much energy as having only half a pumping heart will allow. If surgery has gone to plan the children will gradually recover from the operation and go on to gain far more energy than they had before. He had a longer stay than anticipated, due to a number of complications, but was discharged in October.

    ❤️ “The staff, nurses, doctors, consultants and surgeon were utterly wonderful and we can’t thank them enough. However, it was a consultant anaesthetist, Dr Andy Curry, who stood out in Archie’s mind. His bedside manner, and the relationship of trust that he managed to build up with our very anxious little boy, was astounding to watch. So, on ‘Dress as your Hero Day’ at school, Archie wanted to dress as his hero…”I want to dress as Dr Andy because he helped save my life and he’s my friend”…gulp” – Archie’s mum Charlene.

    😻 We have been blown away by this story. A month after coming home from hospital and Archie is raising a smile, dressing up as his hero and on his way to school. This is one strong boy, as are all of the children in the LHM family.

    🙌 Give this post a share to show your support of Children’s day.

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    University Hospital Southampton NHS Foundation Trust
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    1 day ago  ·  

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