‘Leave Him Here To Die…Take Him Home To Die’ : Half a Heart and Cancer- Kelly Leeper

We would like to introduce Kelly Leeper, a long-time friend of LHM, who has written an update for us about his life with HLHS. Some members will remember that Kelly kindly traveled over from the States when he was 17 years old to talk to families at the beginning of their single ventricle journey. In … Continued

‘When I Was Born In 1967 There Were No Antenatal Scans’ – Donna’s Story

Donna has lived with a congenital heart condition since 1967, making her one of our most senior members! Being born at a time were antenatal scans were yet to be developed, Donna’s condition came as a huge shock to her parents. She had a Glann Shunt at 9 years old to achieve better oxygen circulation … Continued

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    Rhys here is 9 and has Hypoplastic Left Heart Syndrome. Rhys just celebrated his 4 year heart-iversary, 4 years since his Fontan operation. Well done, you've got this!Shared by LHM member Terri, thank you ❤ ... See MoreSee Less

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    This Black History Month we would love to tell you about Vivien Thomas, a cardiologist who played a crucial role in the development of treatment for children born with Tetralogy of Fallot, also known as Blue Baby Syndrome, and other conditions. Thomas pioneered an operation now known as the Blalock-Thomas-Taussig shunt. At the time, Thomas was disregarded because of racism and prejudice against his lack of an academic background, sadly it was not until the 1980’s that the procedure included his name. The procedure is still used to this day and has helped many of our members. Join us to celebrate this amazing man. ... See MoreSee Less

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