‘Leave Him Here To Die…Take Him Home To Die’ : Half a Heart and Cancer- Kelly Leeper

We would like to introduce Kelly Leeper, a long-time friend of LHM, who has written an update for us about his life with HLHS. Some members will remember that Kelly kindly traveled over from the States when he was 17 years old to talk to families at the beginning of their single ventricle journey. In … Continued

‘When I Was Born In 1967 There Were No Antenatal Scans’ – Donna’s Story

Donna has lived with a congenital heart condition since 1967, making her one of our most senior members! Being born at a time were antenatal scans were yet to be developed, Donna’s condition came as a huge shock to her parents. She had a Glann Shunt at 9 years old to achieve better oxygen circulation … Continued

Be social with us - our latest tweets and posts

    The Youth Zone is our dedicated support network for young adults aged 11 to 17 living with a single ventricle heart condition. During lock-down, we have been working hard to keep our youth members supported and connected with each other.

    We just wanted to shine some light on this awesome bunch, as they have come so far and achieved so much during the Covid Crisis. One of our highlights being this video, a 26 minute exercise challenge via Zoom, all in support of LHM for the 2.6 challenge. They smashed the routine and raised over £500 for us! Thank you.

    The group keeps in touch through regular Netflix parties and lots of healthy discussion on the private message forums, as well as having access to 1-1 support provided by LHM whenever they need it.

    None of this would be possible without our youth leader Lexie and our awesome youth mentors, please can we all thank them for the incredible work they have been doing for these brave young people throughout this crisis.

    Visit the youth zone here lhm.org.uk/youth-zone/
    ... See MoreSee Less

    2 hours ago  ·  

    View on Facebook

    Open Heart Surgery during Lock-down | LHM parent member Rose shares some uplifting words for us.

    "We were very apprehensive about this surgery as the last one he had was a very long recovery. He literally has made so many people proud, Naayt had his open heart surgery on the 11th June and was discharged 11 days later... home! yes, home!"

    "I couldn't believe it either. You will be so amazed at how pink they are after this surgery and its so lovely to see. The only thing that stops them is the drains which he had 1 left in literally 3 days before discharge and his inr being in range which happened on the day he was allowed home."

    "These kids are so amazing and I am so amazed at how fast they can recover and get through these operations."

    Half a Heart, Not Half a Life x
    ... See MoreSee Less

    18 hours ago  ·  

    View on Facebook