Little Hearts Matter

Online Open Day and AGM
2025-04-26
2025 online Open Day and AGM.
26th April from 10am to 1pm.
This parent, grandparent and adults with SVH event will focus on the needs of children, young people and adults striving to get the most from their life.

Please fill in your application form below –

LHM Online Open Day & Annual General Meeting 2025

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Full Name(Required)

Please separate names with commas.

Please tick the box that applies to you;

Parent of a child with a single ventricle heart condition

Adult with a single ventricle heart condition

Medical professional
Names of attendees Add RemoveEmail(Required)

Phone(Required)Which of the following workshops would you like to attend. If parents wish to split themselves across sessions please give us a separate email address for each attendee.

Child 0 to 6 session
Name

First

Last

Email

Which of the following workshops would you like to attend. If parents wish to split themselves across sessions please give us a separate email address for each attendee.

Child 7 to 11 session
Name

First

Last

Email

Which of the following workshops would you like to attend. If parents wish to split themselves across sessions please give us a separate email address for each attendee.

Youth 12 to 17 session
Name

First

Last

Email

Which of the following workshops would you like to attend. If parents wish to split themselves across sessions please give us a separate email address for each attendee.

SVH adult session
Name

First

Last

Email

Photo Permissions(Required)

Yes I agree to the LHM media consent form

No I don't agree
Little Hearts Matter may want to live broadcast or screen capture this event for publishing online, please indicate below your acceptance or not of their use by LHM in the future.This is where you can find information about the Annual General Meetinghttps://www.lhm.org.uk/lhm-agm-2025/

SVH Adult activity weekend
2025-04-05 - 2025-04-06
SVH Adult Activity 2025:
The news you’ve probably been waiting for.
I am excited to announce that, the SVH Adult 2025 activity will be…
BOWLING IN BIRMINGHAM, taking place on Saturday 5th April 2025 – Sunday 6th April 2025
Applications open 19th January and close 10th March

There are two types of places to apply for with the SVH Adult activity weekender.
One is for a day attendee; another is for an overnight attendee- therefore, please specify which one you are applying for on your application.
– Day attendees will attend the educational workshop, have refreshments, and attend the bowling activity in the evening with a meal; before making their own way home.
– Overnight attendees will attend the educational workshop, have refreshments, attend the bowling activity in the evening with a meal, and the overnight stay in the hotel with breakfast on the Sunday before departure.
• If you do not have online access or have difficulty with computers, please call the office number if you would like help to complete the application.
For more information about the event please email sharna@lhm.org.uk
A more informative breakdown of the weekender will be given to successful applicants.
For the sake of communication and getting relevant information to you, please make sure the contact details we have for you are up to date as we begin to step away from mass mail outs and move more towards digital methods of communication such as social media and emails. Failure to do this may result in you not receiving communication, event information and other news.

PIP Member Workshop
2025-03-19 19:00 - 20:30 (Europe/London)
I would like to attend the Personal Independence Payment (PIP) workshop on the 19th March
Fill in this very quick form and we will send you the link to join our workshop on 17th March

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InstagramThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email We are currently only able to offer this service to full members of the charity(Required)

I agree not to share my Zoom link with people outside of LHM
Photo / Video Consent(Required)

I provide consent

I do not provide consent
We plan to record this workshop so that it can be viewed by members in the future, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Some people don't want to speak on camera, so you can use this box to send your PIP related questions to us in advance (optional)

DLA Parent Member workshop
2025-01-15
I would like to attend the Disability Living Allowance (DLA) workshop on 15th January
Fill in this very quick form and we will send you the link to join our workshop on 22nd November at 7pm

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InstagramThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email Please tell us the name of your Heart Child(Required) We are currently only able to offer this service to full members of the charity(Required)

I agree not to share my Zoom link with people outside of LHM
Photo / Video Consent(Required)

I provide consent

I do not provide consent
We plan to record this workshop so that it can be viewed by members in the future, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Some people don't want to speak on camera, so you can use this box to send your Fontan related questions to us in advance (optional)

SVH Adult member zoom meeting
2024-10-21
Thank you for your interest in the SVH Adult Members ZOOM Meet Up on Monday 21st October 2024 at 5pm-6pm.
This will be to discuss the Adult member face to face activity/event, vote on the type of activity/event and location, and share some ideas about the priorities of your adult service.
To confirm your attendance please complete and submit this application form by Sunday 13th October; and the zoom meeting details will be emailed to you; followed by a FREE little treat in the post to enjoy in time for the zoom meeting.
With your permission, the Zoom meeting will be recorded, if you would rather it was not recorded, please choose the most suitable option below.

Volunteering training day – The Midlands
2024-10-05
Are you interested in joining the support Volunteer team?
The Little Hearts Matter team rely on the support that our member volunteers offer to fellow members. There is nothing better than parents being able to speak to other parents and adults living with half a heart linking with their peers and young people on similar journeys.
The whole service team offer support over the phone, via text and online with general and focused support such as antenatal diagnosis, education support, support after a loss. https://www.lhm.org.uk/become-an-lhm-support-volunteer/
If you would like to learn more about our volunteering opportunities complete the form below and we will get in touch.

Service Volunteer weekend application form

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Name(Required)

First

Last

Address(Required)

Street Address

Address Line 2

City

County / State / Region

ZIP / Postal Code

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Email(Required)

Phone number(Required)What membership do you have with us at Little Hearts Matter?(Required)

Parent member

Grandparent member

Adult member
What sort of support volunteering are you interested in exploring?Contact preferencesBy clicking submit you agree to receive marketing emails from Little Hearts Matter. You can unsubscribe at any time by clicking the link in the footer of our emails. For information about our privacy practices, please visit our website.

Single Ventricle Heart Medical Symposium
2024-09-30
As part of Little Hearts Matter 30th Anniversary the charity would like to invite medical teams to a Fontan Pathway focused Symposium.
Living the best life with a Single Ventricle Heart Circulation

Over the last 30 years there have been huge advancements in the treatment and outcomes for anyone with a single ventricle heart condition. With improvements in survival have come short- and longer-term challenges for children and adults living with a Fontan Circulation.
Our symposium aims is to bring UK congenital cardiac teams together to explore innovative treatments and care and to discuss and plan how to advance the management and support of Fontan pathway patients, with a focus on medical and lifestyle pathways beyond the Fontan operation.
Topics will include quality of life, transition, mental wellbeing, exercise, challenges in education and the workplace, sexual health, Fontan clinics, transplantation and palliative care.
The conference will be held on Monday 30th September 2024 at the Edgbaston Conference Centre in Birmingham.
Audience: Multidisciplinary medical professionals. Doctors, specialist and lead nurses, psychologists, dieticians, social workers, youth and adult support workers, network managers and service leads.
The faculty of Dr David Crossland, Dr Paul Clift, Professor Kerry Gaskin, Suzie Hutchinson and Lexie Katsaitis look forward to welcoming you to the event.
Click here to find out information on what will take place on the event.

🏃 Great North Run 2024 🏃
2024-09-08
What could be better than making a difference to families on their half a heart journey? Doing it as part of the world’s biggest half marathon of course!
Join our team at the Great North Run in Newcastle on the 8th September 2024 and we’ll be there to support your fundraising every step of the way. The Great North Run is the world’s biggest half marathon and broadcast live on TV in September. It’s a brilliant opportunity to take part in an amazing event with an incredible atmosphere, all while making a very real difference for the families we support.
You will get:

Your own running LHM t-shirt
Support with every step of your fundraising
Access to our online fundraising community, Team LHM
Shout outs on our socials (optional)

We ask for:

A registration fee of £30
A fundraising target of £350

Up for the challenge!? Give us a shout! Please complete the form below and the team will be in touch.

LHM Fundraising Form

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Thank youThank you so much for choosing to support LHM, your help means the world to us. Please complete this form and our friendly team will be in touch. Your Name(Required)

First

Last

Address(Required)

Street Address

Address Line 2

City

County / State / Region

ZIP / Postal Code

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Your Email(Required)

Your Phone Number(Required)Already know the event you want to join?Big Hearted FridayGreat North Run 2026Community EventChallenge EventSelect from the drop down list above. Can't see your event listed? Please move on to 'Doing your own thing' belowDoing your own thing? Fab! Tell us about it...Please tell us more about when and how you plan to raise funds for LHM. Examples could be a bake sale, skydiving, running a marathon or hosting an event at your workplace / community group. What is your fundraising target?Setting goals can really help. This doesn't have to be an exact science, a rough idea is fine. We can help approach your employer about matched fundraising, would you like support with this?

Yes

No
By sending us this form you are allowing us to contact you about the fundraising activity you are planning*(Required)

I understand
Terms & Conditions(Required)

By submitting this form, I agree to the LHM Fundraising Terms & Conditions

Youth Activity Residential Event 2024
2024-08-21 08:00 - 17:00
Little Hearts Matter are thrilled to bring back the ever popular youth activity residential event in 2024!
The youth team cannot wait to welcome our youth members aged 12-17 at the Pioneer Centre in Kidderminster from Wed 21st August to Friday 23rd August 2024.
Here our youth members will have the opportunity to create/revisit friendships with other youth members, join in with fun activities such as the high ropes, zip wire and archery and learn more about managing their life with half a working heart.
Siblings are welcome but places are limited so be sure to apply via the application form below asap!

🧡 LHM Youth Residential Activity Event 2024 🧡

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Name of youth member (age 12-17)(Required)

First

Last

Please tick the box that applies to you;

Young person with a single ventricle heart

Sibling of a young person with a single ventricle heart
Youth member's date of birth(Required)Parent's name(Required)

First

Last

Address(Required)

Street Address

Address Line 2

City

County / State / Region

ZIP / Postal Code

Email(Required)

Please provide name and age of any siblings attending(Required)Please type "None" if not applicableAre there other conditions, allergies or dietary requirements we should know about?(Required)Please type "No" if not applicableClaiming a place on this event(Required)

Yes I understand that by claiming a place on this event that I do not use I will incure a charge of £50. This will not be the case if the absence is due to a medical emergency.

Little Hearts Matter is charged for all places and activities on the youth residential event. Due to places being claimed and unused in the past we have put a new policy in place.Photo Permissions(Required)

Yes I agree to the LHM photo permission statement

No I don't agree

Little Hearts Matter may want to use any photographs that can be captured during the event, please indicate below your acceptance or not of their use by LHM in the future.Thank You and we look forward to seeing you!

South West Roadshow event at Crealy Adventure Park
2024-06-29 | Crealy Adventure Park, Sidmouth Rd, Clyst St Mary,, Exeter, England, EX5 1DR, United Kingdom
If you live in the South West and are treated by the team in the South West Network and are interested in joining the team complete the form set out here.

South West Roadshow event.
Saturday 29th June
Crealy Adventure Park

We are currently working to gauge if we should book a regional fun day at Crealy Adventure Park next month.
We do not want to book and pay for the day if we are not assured of our numbers. If you are interested in joining the LHM team and meeting other families living in the South West please complete the application form below.
Thank you.

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Name (Adult 1)(Required)

First

Last

Name (Adult 2)

First

Last

Please list children attending, age and heart condition(Required)Address(Required)

Street Address

Address Line 2

City

County / State / Region

ZIP / Postal Code

AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua and BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire, Sint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos IslandsColombiaComorosCongoCongo, Democratic Republic of theCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzechiaCôte d'IvoireDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatiniEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuinea-BissauGuyanaHaitiHeard Island and McDonald IslandsHoly SeeHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKorea, Democratic People's Republic ofKorea, Republic ofKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacaoMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth MacedoniaNorthern Mariana IslandsNorwayOmanPakistanPalauPalestine, State ofPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarRomaniaRussian FederationRwandaRéunionSaint BarthélemySaint Helena, Ascension and Tristan da CunhaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan MayenSwedenSwitzerlandSyria Arab RepublicTaiwanTajikistanTanzania, the United Republic ofThailandTimor-LesteTogoTokelauTongaTrinidad and TobagoTunisiaTurkmenistanTurks and Caicos IslandsTuvaluTürkiyeUS Minor Outlying IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVenezuelaViet NamVirgin Islands, BritishVirgin Islands, U.S.Wallis and FutunaWestern SaharaYemenZambiaZimbabweÅland Islands
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Phone(Required)Email(Required)

Please list any food allergies(Required)Consent The data you have given us above will be used to update our member data. Please tick the box to give us permission to contact you about the work of the charity moving forwards.Please fill in our media consent form to allow us to share photos from the event {https://www.lhm.org.uk/media-consent-form/}I understand(Required) Once we have numbers we will come back to you to further confirm if you are taking a place. Please note that once any final bookings are made we will be confirming and paying for places. Unless a family need to withdraw because of illness we may need to charge for people who do not attend.

Little Hearts Matter 2024 Memorial Event
2024-05-05
Little Hearts Matter 2024 Memorial Event
Sunday 5th May
In this 30th anniversary year we are holding an expanded memorial event. We will be combining the annual event where we come together to remember the children who have been lost with our memorial walk and craft session. If you would like to join us at the event please click this link and complete the application form. Thank you.

In Memory Event, 5th May 2024 - Application Form

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Name of lead contact(Required)

First

Last

Names of up to an additional 5 adults attending.Names and ages of all children attendingAddress(Required)

Street Address

Address Line 2

City

County / State / Region

ZIP / Postal Code

Email(Required)

Email Permissions(Required)

Yes I agree to LHM emailing me for future events and updates about the work of LHM, including support, information, fundraising and awareness campaigns.

No I don't agree
Little Hearts Matter may want to email you for its future events, please indicate your acceptance or not of their use by LHM in the future.Phone Number(Required)Name of child you are attending in memory of(Required)Photo Permissions(Required)

Yes I agree to the LHM photo permission statement

No I don't agree

Little Hearts Matter may want to use any photographs that can be captured during the event, please indicate below your acceptance or not of their use by LHM in the future.Please tell us the dietary requirements of any of your party.Thank You and we look forward to seeing you on 5th May

DLA & PIP Campaign
2024-05-01 00:00 - 2024-05-08 23:30

Transition Workshop 2024
2024-04-18 19:00 - 20:30
I would like to attend the transition workshop
Fill in this very quick form and we will send you the link to join our workshop on Wednesday the 13th of September.

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URLThis field is for validation purposes and should be left unchanged.Hospital Transition Workshop 18th April 7pm

A workshop with lexie to talk about hospital transition. Paediatric to Adult cardiac services. Please tell us your full name(Required)If you use a different name on social media, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email We are currently only able to offer this service to full members of the charity(Required)

I agree not to share my Zoom link with people outside of LHM
Photo / Video Consent(Required)

I provide consent

I do not provide consent
We plan to record this workshop so that it can be viewed by members in the future, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Some people don't want to speak on camera, so you can use this box to send your transition-related questions to us in advance (optional)

30 for 30 Challenge – Your Challenge, Your Way
2024-04-02 08:00 - 2024-05-31 17:00
Join us in doing something amazing for yourself and others by participating in the 30 for 30 Challenge throughout April.
This April marks 30 years of Little Hearts Matter, and we’re celebrating by inviting you to join us in making a real difference. With your support, we can ensure more families have access to vital information, comfort, and reassurance when they need it most.
Ready to Make a Difference?
Join our community of challengers today and be help change lives, one challenge at a time.
Sign Up Now! https://little-hearts-matter.raiselysite.com/
Let’s make April a month to remember for Little Hearts Matter and the families we support.

Little Hearts Matter Open Day and AGM 2024
2024-03-23 | Yarnfield Park, Stone, Staffordshire, ST15 0NL
2024 Open Day and Annual General Meeting
We are delighted to be able to invite members to attend the 2024, 30th Anniversary, Open Day and AGM, on the 23rd March at the Yarnfield Conference Centre, Staffordshire.
The event will be filled with interesting talks, opportunities to socialise and parties to celebrate our anniversary. As well as the main conferences there will be workshop events for child and youth members and a crèche for children under 7.
We have also set ourselves a challenge. We want to create a world record by collecting as many people, children, youth members and adults, living with half a heart in the same place at the same time. What a way to celebrate our anniversary.
We will also hold our very important annual general meeting where you can vote for trustees and understand and vote for the charity’s accounts. Please visit our governance site to see details of the trustees standing for election –
If you are unable to attend this year you can still submit your voting choices use the link below.
Trustees up for election or re-election March 2024 – Click here
The applications forms show details of accommodation at or close to the event.
Applications forms –
Those wishing to apply for a Bursary to help towards their expenses can find the form here – Click here
We hope to see as many members as possible at the March event.

Big Hearted Friday
2024-02-09
Our main Big Hearted Friday event is in Friday 9th February to support LHM.
Will you wear red and blue, hold a cake sale, a raffle or a fun competition like guess the number of sweets in the jar?

LHM Fundraising Form

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Thank youThank you so much for choosing to support LHM, your help means the world to us. Please complete this form and our friendly team will be in touch. Your Name(Required)

First

Last

Address(Required)

Street Address

Address Line 2

City

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Your Phone Number(Required)Already know the event you want to join?Big Hearted FridayGreat North Run 2026Community EventChallenge EventSelect from the drop down list above. Can't see your event listed? Please move on to 'Doing your own thing' belowDoing your own thing? Fab! Tell us about it...Please tell us more about when and how you plan to raise funds for LHM. Examples could be a bake sale, skydiving, running a marathon or hosting an event at your workplace / community group. What is your fundraising target?Setting goals can really help. This doesn't have to be an exact science, a rough idea is fine. We can help approach your employer about matched fundraising, would you like support with this?

Yes

No
By sending us this form you are allowing us to contact you about the fundraising activity you are planning*(Required)

I understand
Terms & Conditions(Required)

By submitting this form, I agree to the LHM Fundraising Terms & Conditions

SVH Adult Christmas Party 2023
2023-12-09 19:30 - 20:30
🎄LHM SVH Adult Christmas Party 🎄
Fill in this very quick form and we will send you the link to join the party on 9th December 2023 at 7.30p.m.

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PhoneThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media, please let us know this name as wellPlease tell us your email address(Required)We will send you the Zoom link in an email We are currently only able to offer this service to SVH Adults who are members of the charity(Required)

I agree not to share my Zoom link with people outside of LHM
Photo / Video Consent(Required)

I provide consent

I do not provide consent
We would love to be able to collect some pictures from this party, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent.

The LHM Preparation for the Fontan Workshop
2023-11-22 19:00 - 20:30 | Zoom – Sign up to receive a link
Join us for a Preparation for the Fontan operation focussed workshop on the 22nd November.

I would like to attend the Preparation for the Fontan Workshop on 22nd November 2023 at 7pm
Fill in this very quick form and we will send you the link to join our workshop on 22nd November at 7pm

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NameThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email Please tell us the name of your Heart Child(Required) We are currently only able to offer this service to full members of the charity(Required)

I agree not to share my Zoom link with people outside of LHM
Photo / Video Consent(Required)

I provide consent

I do not provide consent
We plan to record this workshop so that it can be viewed by members in the future, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Some people don't want to speak on camera, so you can use this box to send your Fontan related questions to us in advance (optional)

London to Brighton 2023
2023-09-10
Take the scenic route to the seaside and make a real difference to families on their half a heart journey.
Team LHM are getting back in the saddle to take part in the 55 mile London to Brighton cycle on the 10th September. Start in central London and finish on the Brighton seafront.
You will get:

Your own LHM jersey
Support with every step of your fundraising
Access to our online fundraising community, Team LHM
Shout outs on our socials (optional)

We ask for:

A registration fee of £55, paid directly to the event organisers
A fundraising target of £350

Up for the challenge!? Get registered! Visit the Skyline website here

LHM SVH Adults Weekend 2023
2023-08-18 - 2023-08-20 | Pioneer Centre, Cleobury Mortimer
We are excited to introduce the first Adult Activity Weekend. Running alongside the LHM Summer family event from 18th to 20th August 2023 at the Pioneer centre in Kidderminster, we are offering our adult members and their partners a chance to socialise with other adults with a single ventricle heart, take part in some activities if they would like to and enjoy the music event we have planned for the Saturday evening.
This event is now fully booked up and no further places are available.

Summer Family Event 2023
2023-08-18 - 2023-08-20 | Pioneer Centre, Cleobury Mortimer,, Kidderminster, DY14 8JG, United Kingdom
August 18th – 20th 2023, the grounds of the Pioneer centre in Kidderminster will transformed into an LHM village, bringing together Little Hearts Matter families from across the country.
We are planning this event with a relaxed atmosphere in mind, focused on having fun and a chance to meet other families travelling the half a heart journey.
What to expect
We had some amazing feedback on our previous event which included street food, carnival games, face painting, a magic show, holistic healing and much more. We want this year to be even more special, so we’re including some amazing live music performances.
Application Forms
Please click here to register for the full weekend
Please click here to register for Saturday only
Please click here to join as an SVH adult

🧡 Youth Zone Activity Event 2023 🧡
2023-08-16 - 2023-08-18 | Pioneer Centre, Cleobury Mortimer,, Kidderminster, DY14 8JG, United Kingdom
We are very excited to bring back the LHM Youth Activity Residential. The same great kind of activities, the same opportunities to meet up with LHM friends but a brand new venue.
This year we excited to bring our activity residential to the Pioneer Centre in Kidderminster. A brilliant venue we have used in the past for the LHM Summer Event.
All our youth members aged 11-17 are invited to apply for a free place to challenge themselves in a safe environment and have so much fun with other young people with half a heart.
Our youth activity residential will run from Wednesday 16th August until Friday the 18th August. There are limited first come first served spaces so get your form filled in asap.

All places have been allocated for this event, therefore no more applications are been taken at the moment.

LHM Health Care Plan Workshop
2023-07-05 19:30 - 20:30 | Zoom – Sign up to receive a link
I would like to attend the health care plan workshop
Fill in this very quick form and we will send you the link to join our workshop on Wednesday the 5th of July.

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NameThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email We are currently only able to offer this service to full members of the charity(Required)

I agree not to share my Zoom link with people outside of LHM
Photo / Video Consent(Required)

I provide consent

I do not provide consent
We plan to record this workshop so that it can be viewed by members in the future, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Some people don't want to speak on camera, so you can use this box to send your HCP related questions to us in advance (optional)

RideLondon-Essex
2023-05-28
Fancy being able to tell everyone that you cycled 100 miles, and made a huge difference to children with half a working heart at the same time? Well you’re in the right place!
Join TeamLHM at RideLondon on the 28th May! You’ll start and finish in central London, with a loop of the picturesque Essex countryside too.
You will get:

Your own LHM jersey
Support with every step of your fundraising
Access to our online fundraising community, Team LHM
Shout outs on our socials (optional)

We ask for:

A registration fee of £30
A fundraising target of £350

Up for the challenge!? Give us a shout! Please complete the form below and the team will be in touch.

LHM Fundraising Form

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Thank youThank you so much for choosing to support LHM, your help means the world to us. Please complete this form and our friendly team will be in touch. Your Name(Required)

First

Last

Address(Required)

Street Address

Address Line 2

City

County / State / Region

ZIP / Postal Code

AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua and BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire, Sint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos IslandsColombiaComorosCongoCongo, Democratic Republic of theCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzechiaCôte d'IvoireDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatiniEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuinea-BissauGuyanaHaitiHeard Island and McDonald IslandsHoly SeeHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKorea, Democratic People's Republic ofKorea, Republic ofKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacaoMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth MacedoniaNorthern Mariana IslandsNorwayOmanPakistanPalauPalestine, State ofPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarRomaniaRussian FederationRwandaRéunionSaint BarthélemySaint Helena, Ascension and Tristan da CunhaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan MayenSwedenSwitzerlandSyria Arab RepublicTaiwanTajikistanTanzania, the United Republic ofThailandTimor-LesteTogoTokelauTongaTrinidad and TobagoTunisiaTurkmenistanTurks and Caicos IslandsTuvaluTürkiyeUS Minor Outlying IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVenezuelaViet NamVirgin Islands, BritishVirgin Islands, U.S.Wallis and FutunaWestern SaharaYemenZambiaZimbabweÅland Islands
Country

Your Email(Required)

Your Phone Number(Required)Already know the event you want to join?Big Hearted FridayGreat North Run 2026Community EventChallenge EventSelect from the drop down list above. Can't see your event listed? Please move on to 'Doing your own thing' belowDoing your own thing? Fab! Tell us about it...Please tell us more about when and how you plan to raise funds for LHM. Examples could be a bake sale, skydiving, running a marathon or hosting an event at your workplace / community group. What is your fundraising target?Setting goals can really help. This doesn't have to be an exact science, a rough idea is fine. We can help approach your employer about matched fundraising, would you like support with this?

Yes

No
By sending us this form you are allowing us to contact you about the fundraising activity you are planning*(Required)

I understand
Terms & Conditions(Required)

By submitting this form, I agree to the LHM Fundraising Terms & Conditions

Little Hearts Matter Memorial Event
2023-05-14 | National Memorial Arboretum (Alrewas, Staffordshire)
On Sunday May 14th at 11:00 am we will be holding our memorial event at our special tree in the Children’s Wood, at the National Memorial Arboretum (Alrewas, Staffordshire).
The event aims to celebrate the lives of, however short, the children we have lost. Together we will listen to special music, read poems and prayers and hang hearts on the tree on the tree in memory of the special children. We follow the memorial event by picnicking together either in the wood or in the café.
If you would like to join us please complete the below application form to register for the event.

LHM Memorial Event, 14th May 2023 - Application Form

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Your DetailsName of lead contact(Required)

First

Last

Full names of all adults attendingPlease separate names with commas.Names and ages of all children attendingPlease separate names with commas.Email(Required)

Postal Address(Required)

Street Address

Address Line 2

City

County / State / Region

ZIP / Postal Code

Contact Telephone Number(Required)Name of child you are attending in memory ofPhoto Permissions(Required)

Yes I agree to the LHM photo permission statement

No I don't agree
Little Hearts Matter may want to use any photographs or videos that can be captured during the event, please indicate below your acceptance or not of their use by LHM in the future.

LHM Energy Workshop
2023-05-03 19:00 - 20:00 | Zoom – Sign up to receive a link
I would like to attend the transition workshop
Fill in this very quick form and we will send you the link to join our workshop on Wednesday the 13th of September.

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LinkedInThis field is for validation purposes and should be left unchanged.Hospital Transition Workshop 18th April 7pm

A workshop with lexie to talk about hospital transition. Paediatric to Adult cardiac services. Please tell us your full name(Required)If you use a different name on social media, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email We are currently only able to offer this service to full members of the charity(Required)

I agree not to share my Zoom link with people outside of LHM
Photo / Video Consent(Required)

I provide consent

I do not provide consent
We plan to record this workshop so that it can be viewed by members in the future, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Some people don't want to speak on camera, so you can use this box to send your transition-related questions to us in advance (optional)

❤️ Little Hearts Matter Awareness Week💙
2023-05-01 - 2023-05-07
Little Hearts Matter Awareness Week ❤️
More information coming soon…

LHM Online Open Day & AGM 2023
2023-04-22 10:00 - 17:00 | Zoom
We are delighted to invite all of our members to the Little Hearts Matter Online Open Day & Annual General Meeting. This is an online event taking place on Saturday 22nd April 2023, 10:00 AM – 6PM. The focus of the conference is helping LHM members to understand current treatments and challenges. Please complete the application form below to register your place, you will then hear back from our team with the joining-link. Here is the event agenda:

10:00 AM – 1:00 PM Youth Zone Lifestyle Workshops
Little Hearts Matter’s youth leader Alexia Katsaitis will be running three workshops – each lasting one hour. These sessions are interactive and for youth members to get involved, the sessions will run on a separate zoom link to the main open day, please specify on the form below if you wish to attend a workshop.
Click here to learn more about these sessions
10AM – LHM Kids, 7-10 year olds
11AM – LHM Juniors – 11-14 year olds
12PM – LHM Seniors, 15-17 year olds
1:00 PM 2:00 PM BREAK FOR LUNCH

2:00 PM – 2:40 PM Dr David Barron
Dr David Barron joins us from Toronto, Canada to present on the advances in the treatment of single ventricle heart conditions. Dr Barron’s profile – https://www.sickkids.ca/en/staff/b/david-barron/

2:40 PM – 3:30 PM Election of Trustees & Abbreviated Accounts
Election / re-election for Little Hearts Matter’s trustees, chair and treasurer.
Click here to read the invitation to attend our AGM
Click here to read our proposed trustee profiles
Click here to view the Abbreviated Financial Statements for the Year Ended 31 December 2022

3:30 PM – 4:00 PM Maggie Simpson
Maggie Simpson, Heart Failure Advanced Nurse Practitioner in NHS Greater Glasgow and Clyde. joins us to present on the stages and treatments of heart failure, and the role of a heart failure nurse.

4:00 PM – 4:45 PM – Adult Panel
The aim of the adult panel is to let the LHM audience of parents, adults with SVH’s and professionals seek a greater understanding of what living as an adult with half a heart means. It is a relaxed session where adult members answer questions posted by the audience.

Please complete the application form linked below to register your place, you will then hear back from our team with the joining details. There is also a section on the form for those who are not joining the event but wish to vote for Trustees.
Complete the application form below to register your place for the main open day and AGM.

LHM Open Day & Annual General Meeting 2023

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Please select the option that applies to you(Required)We wish to attend the Open Day Webinar and vote for TrusteesWe only wish to vote for TrusteesYour full name(Required)

Please separate names with commas.

Please tick the box that applies to you;

Parent of a child with a single ventricle heart condition

Adult with a single ventricle heart condition

Medical professional
Please provide your address(Required)

Street Address

Address Line 2

City

County / State / Region

ZIP / Postal Code

Email(Required)

Photo Permissions(Required)

Yes I agree to the LHM photo permission statement

No I don't agree
Little Hearts Matter may want to live broadcast or screen capture this event for publishing online, please indicate below your acceptance or not of their use by LHM in the future.Lexie's lifestyle workshops for LHM Youth Members(Required)We will not be attending a workshop10AM – LHM Kids, 7-10 year olds "Understanding your energy"11AM – LHM Juniors – 11-14 year olds ‘’Why is it important to take my meds?’’12PM – LHM Seniors, 15-17 year olds ‘’The road to independence’’Name of the youth member attending the workshop(Required)The energy workshops are for youth members to get involved. Please type N/A if this does not applyPlease complete the electronic voting form below for the AGM section of our Open Day.Financial StatementsForAgainstElection of Kim Botham as trusteeForAgainstElection of Sophie Green as trusteeForAgainstRe-election of David Baumber as TreasurerForAgainstElection of Warren Manger as ChairForAgainst

🌎 World Heart Day 🌎
2022-09-29
More info coming soon!
If you have an awareness question or idea, please contact us using the form below.

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InstagramThis field is for validation purposes and should be left unchanged.Your Title(Required)MrMrsMissMsOtherYour Name(Required)Your Email Address(Required)Your Telephone NumberYour Message(Required)

🚴 Nightrider 2022 🚴
2022-06-11 - 2022-06-12
Nightrider 2022
Nightrider is an exciting charity cycle ride where you can see London under the moonlit night sky, cycling past iconic landmarks and through historic streets with 50 or 100km route options to choose from. Smash your fitness goals and raise money for young people with half a heart.
Not only this, LHM’s very own Service Lead and Chief Exec, Suzie Hutchinson, will be taking on the nightrider challenge. Challenge accepted!
Keen to cycle for LHM? Click here to secure your spot
