BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Little Hearts Matter - ECPv6.16.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:Little Hearts Matter X-ORIGINAL-URL:https://www.lhm.org.uk X-WR-CALDESC:Events for Little Hearts Matter REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20230326T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20231029T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20240331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20241027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20261025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20270328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20271031T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20260510T100000 DTEND;TZID=Europe/London:20260510T150000 DTSTAMP:20260514T110336 CREATED:20260302T135257Z LAST-MODIFIED:20260302T154231Z UID:23081-1778407200-1778425200@www.lhm.org.uk SUMMARY:LHM Memorial Event 2026 DESCRIPTION:Sunday 10th May\, 10am start.\n\nJoin Little Hearts Matter at the annual In Memory Event.\n\nTogether we will remember the children\, young people and adults we have lost on the half a heart journey.\nWe walk to the LHM memorial tree and share poems\, prayers\, music and thoughts while we hang our memorial hearts.\n\nIn the afternoon we will have lunch together (included) whilst we craft together before we bring the event to a close at 3pm.\n\n\n\n \n \n Memorial Event 2026 Application Form\n \n \n Δ\n \n \n\n \n Name of lead contact(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Names of additional adults attendingNames and ages of all children attendingAddress(Required) \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n County / State / Region\n \n \n ZIP / Postal Code\n \n \n Email(Required)\n \n Phone Number(Required)Name of child you are attending in memory ofDo you have any allergies?(Required)\n \n Yes\n \n \n No\n Please specify what food allergies you have:Media Permissions(Required)\n \n Yes I agree to the LHM photo permission statement \n \n \n No I don't agree\n Little Hearts Matter may want to use any media that can be captured during the event\, please indicate below your acceptance or not of their use by LHM in the future.Thank You and we look forward to seeing you. URL:https://www.lhm.org.uk/event/lhm-memorial-event-2026/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260425T100000 DTEND;TZID=Europe/London:20260425T120000 DTSTAMP:20260514T110336 CREATED:20260127T143740Z LAST-MODIFIED:20260325T180031Z UID:22811-1777111200-1777118400@www.lhm.org.uk SUMMARY:LHM's Online Open Day and AGM 2026 DESCRIPTION:Event Schedule \n10:00am – AGM with LHM Trustees \n\nWelcome and review of the year from the Chair of the Board of Trustee\nPresentation of the financial statements (Honorary Treasurer)\nVote on the approval of the financial statements\nTrustee Elections\nHonorary officer elections\nIn memory\nQ&A\n\n\n10:30am – Message from Interim CEO\, Rob Legge\n10:35am – Service Update from Lexie Katsaitis\n10:45am – Keynote Speech from Professor Gaskin and Christopher Bowers on the CHAT2 App (home monitoring system) and parent advisory groups \n11:00am – Breakout Workshops\n• Parent workshop: Accessing Education and the current consultation with Lexie\n• Adult workshop: Sexual Health and Family Planning with Hajar Habibi (Guys &St Thomas) \n11:45am – Adult Panel Q&A\n12:00pm – Thank You and Close \n\n\n \n \n LHM Online Open Day & Annual General Meeting 2026\n \n \n Δ\n \n \n\n \n Please select the option that applies to youWe wish to attend the Open Day Webinar and vote on the dayWe only wish to vote as we cannot attendFull Name(Required)\n \n \n \n Please separate names with commas.\n \n \n \n \n Please tick the box that applies to you;(Required)\n \n Parent of a child with a single ventricle heart condition\n \n \n Grandparent of a child with a single ventricle heart condition\n \n \n Adult with a single ventricle heart condition\n \n \n Partner/Spouse of an adult with a single ventricle heart condition\n \n \n Medical professional\n Name of attendee Add RemovePlease press the plus sign if more than one person is attending.Email(Required)\n \n Phone(Required)Please fill out the details for the workshop relevant to your membership. Please only select ONE of the workshops you would like to attend.\n \n Parents Workshop - Access to Education by Lexie Katsaitis\n Name\n \n \n \n First\n \n \n \n \n Last\n \n \n Email\n \n Which of the following workshops would you like to attend. If parents wish to split themselves across sessions please give us a separate email address for each attendee.\n \n SVH Adults Workshop - Sexual Health and Family Planning with Dr Hajar Habibi from St. Guys and Thomas\n Name\n \n \n \n First\n \n \n \n \n Last\n \n \n Email\n \n Photo Permissions(Required)\n \n Yes I agree to the LHM media consent form \n \n \n No I don't agree\n Little Hearts Matter may want to live broadcast or screen capture this event for publishing online\, please indicate above your acceptance or not of their use by LHM in the future.How did you hear about this event?(Required)\n \n Email\n \n \n Social Media\n \n \n Post\n Please only complete the electronic voting form below for the AGM section of our Open day if you are not able to attend.Financial StatementsForAgainstFinancial Statements Re-election for Kim KeenForAgainstRe-election for Kim Keen URL:https://www.lhm.org.uk/event/lhms-online-open-day-and-agm-2026/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260328T100000 DTEND;TZID=Europe/London:20260328T104500 DTSTAMP:20260514T110336 CREATED:20260323T151041Z LAST-MODIFIED:20260323T153545Z UID:23130-1774692000-1774694700@www.lhm.org.uk SUMMARY:Jigzy Does Sessions | 28th March DESCRIPTION:Join us for our next Jigzy session where children can design their own Special Heart and celebrate what makes them strong. \n🗓 Saturday 28 March⏰ 10:00 – 10:45am💻 Online via Zoom \nChildren will take part in a fun drawing activity and share what makes their heart powerful. \nAll you need is paper and colouring pens. \n\n\n\n \n \n LHM Jigzy's Does Sessions for Saturday 28th March\n \n \n Δ\n \n \n\n \n FacebookThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media\, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email Please tell us the name of your Heart Child(Required) Please tell us the age of your Heart Child(Required) We are currently only able to offer this service to full members of the charity(Required)\n \n I agree not to share my Zoom link with people outside of LHM\n Can you confirm whether both you and your heart child will be able to attend this Jigzy Does session?(Required)\n \n Yes\, I can confirm both my heart child and I will be able to attend\n \n \n No\, only my heart child will be able to attend\n Photo / Video Consent(Required)\n \n I provide consent\n \n \n I do not provide consent\n We plan to record this workshop so please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Feedback Consent(Required)\n \n I provide consent\n \n \n I do not provide consent\n To improve our Jigzy Does sessions\, we would your feedback on this workshop so please indicate if you are happy to provide consent for LHM to know your feedback. URL:https://www.lhm.org.uk/event/jigzy-does-sessions/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260210T193000 DTEND;TZID=Europe/London:20260210T203000 DTSTAMP:20260514T110336 CREATED:20260127T141438Z LAST-MODIFIED:20260127T141438Z UID:22809-1770751800-1770755400@www.lhm.org.uk SUMMARY:LHM Zoom meeting with Grandparents DESCRIPTION:We are hosting our first Grandparents’ Zoom Gathering — a friendly\, supportive space to meet one another\, share experiences\, and explore the ways we can help each other. \nHaving a child with a single-ventricle condition can feel lonely\, frightening\, and isolating for parents\, and we know grandparents feel many of these emotions too. You deserve connection and support just as much. \nWe would love you to join us on Tuesday 10th February at 7.30pm via Zoom. URL:https://www.lhm.org.uk/event/lhm-zoom-meeting-with-grandparents/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260117T130000 DTEND;TZID=Europe/London:20260117T140000 DTSTAMP:20260514T110336 CREATED:20251120T102810Z LAST-MODIFIED:20260114T202648Z UID:22738-1768654800-1768658400@www.lhm.org.uk SUMMARY:Little Hearts Matter Jigzy Does Session DESCRIPTION:Join our Jigzy Does session on Saturday 17 January at 1pm (Zoom). \nThis special session is part of a research project exploring what helps\, what’s hard\, and what could be better for children with heart conditions and their families. \nWho: Children with heart conditions and their parents/carers\nWhat: A simple drawing activity and open conversation\nWith: Amy (Little Hearts Matter) and Samara (children’s nurse & researcher)\nWhen: Saturday 17 January\, 1pm\nWhere: Zoom\nWhy: To share experiences that can help shape future heart care and support \nEverything shared is voluntary and anonymous. \nFor the activity\, children will need paper and pens\, felt tips or colouring pencils. \nHRC Survey poster \nLink to complete form \n\n\n \n \n LHM Jigzy's Does Sessions for Saturday 17th January\n \n \n Δ\n \n \n\n \n NameThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media\, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email Please tell us the name of your Heart Child(Required) Please tell us the age of your Heart Child(Required) We are currently only able to offer this service to full members of the charity(Required)\n \n I agree not to share my Zoom link with people outside of LHM\n Can you confirm whether both you and your heart child will be able to attend this Jigzy Does session?(Required)\n \n Yes\, I can confirm both my heart child and I will be able to attend\n \n \n No\, only my heart child will be able to attend\n Photo / Video Consent(Required)\n \n I provide consent\n \n \n I do not provide consent\n We plan to record this workshop so please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Feedback Consent(Required)\n \n I provide consent\n \n \n I do not provide consent\n To improve our Jigzy Does sessions\, we would your feedback on this workshop so please indicate if you are happy to provide consent for LHM to know your feedback. URL:https://www.lhm.org.uk/event/little-hearts-matter-jigzy-does-session-in-the-new-year/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251204T193000 DTEND;TZID=Europe/London:20251204T204500 DTSTAMP:20260514T110336 CREATED:20251120T095148Z LAST-MODIFIED:20251124T095018Z UID:22734-1764876600-1764881100@www.lhm.org.uk SUMMARY:Little Hearts Matter’s Q&A Session DESCRIPTION:Have your say on what you want to see from Little Hearts Matter as 2026 approaches with the CEO and Head of Service and share ideas about the future of the organisation.\n  \nDuring this zoom Q&A\, we plan to be discussing the following: \n\n– Report back following redundancies to staff\n– Initial service plans for 2026\n– New booklets for 2026\n– Ideas for the Open day event\n– Your priorities\n– The first of the roadshows\n– The Big give donation opportunity\n\nIf you are interested in participating please fill in your details in the joining form below.\n\n  \n\n \n \n Little Hearts Matter's Q&A session with the CEO and Head of Service\n \n \n Δ\n \n \n\n \n Full Name(Required)\n \n \n \n Please separate names with commas.\n \n \n \n \n Please tick the box that applies to you;\n \n Parent of a child with a single ventricle heart condition\n \n \n Adult with a single ventricle heart condition\n \n \n Medical professional\n \n \n Grandparent of a child with a single ventricle heart condition\n Names of attendees Add RemoveEmail(Required)\n \n Phone(Required)Photo Permissions(Required)\n \n Yes I agree to the LHM media consent form \n \n \n No I don't agree\n Little Hearts Matter may want to live broadcast or screen capture this event for publishing online\, please indicate below your acceptance or not of their use by LHM in the future.\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n  \n  \n  \n  \n  URL:https://www.lhm.org.uk/event/little-hearts-matters-qa-session/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251113T160000 DTEND;TZID=Europe/London:20251113T170000 DTSTAMP:20260514T110336 CREATED:20251023T111451Z LAST-MODIFIED:20251113T095022Z UID:22655-1763049600-1763053200@www.lhm.org.uk SUMMARY:SVH Adults - Sex and Pregnancy workshop DESCRIPTION:SVH Adults ‘SVH\, Sex and Pregnancy workshop’ \nHi SVH adults\, the topic for the upcoming workshop is ‘Sex and Pregnancy’ and will be online via Zoom\, on Thursday 13th November at 4pm-5pm. \nOur guest speaker will be Hajar Habibi\, Consultant Nurse and Lead Nurse for the ACHD service at Royal Brompton. \nThe purpose of the workshop will be to provide education and there may be the opportunity to ask her some questions if you wish to. \nPlease email lexie@lhm.org.uk if you have any enquires. \n  URL:https://www.lhm.org.uk/event/svh-adults-sex-and-pregnancy-workshop/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251101T130000 DTEND;TZID=Europe/London:20251101T143000 DTSTAMP:20260514T110336 CREATED:20251015T123255Z LAST-MODIFIED:20251016T081603Z UID:22587-1762002000-1762007400@www.lhm.org.uk SUMMARY:LHM Jigzy Does Sessions 1st November 2025 DESCRIPTION:Led by Amy (children’s officer & Fontan patient) \n\n\nActivities: Halloween mask decorating\, quizzes about Halloween & Bonfire Night \n\n\nTopic: Hospital & doctor appointments \n\n\n\n\n \n \n LHM Jigzy's Does Sessions for the 1st November\n \n \n Δ\n \n \n\n \n LinkedInThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media\, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email Please tell us the name of your Heart Child(Required) Please tell us the age of your Heart Child(Required) We are currently only able to offer this service to full members of the charity(Required)\n \n I agree not to share my Zoom link with people outside of LHM\n Photo / Video Consent(Required)\n \n I provide consent\n \n \n I do not provide consent\n We plan to record this workshop so please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Feedback Consent(Required)\n \n I provide consent\n \n \n I do not provide consent\n To improve our Jigzy Does sessions\, we would your feedback on this workshop so please indicate if you are happy to provide consent for LHM to know your feedback. URL:https://www.lhm.org.uk/event/lhm-jigzy-does-sessions-1st-november-2025/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250927T130000 DTEND;TZID=Europe/London:20250927T140000 DTSTAMP:20260514T110336 CREATED:20250911T150952Z LAST-MODIFIED:20250930T083542Z UID:22528-1758978000-1758981600@www.lhm.org.uk SUMMARY:Jigzy Does registration form DESCRIPTION:This month our Jigzy does session will take place on the 27th September at 1pm.\nAmy our children’s officer is a Fontan Patient herself & will be discussing going back to school\, the hot and cold weather and staying warm in the cold and energy. \n \nActivity – Making a journal – Journal kits will be sent out to your child so please ensure you register in time to receive one. URL:https://www.lhm.org.uk/event/jigzy-does-registration-form/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250906T103000 DTEND;TZID=Europe/London:20250906T113000 DTSTAMP:20260514T110336 CREATED:20250821T110158Z LAST-MODIFIED:20250827T083935Z UID:22490-1757154600-1757158200@www.lhm.org.uk SUMMARY:Little Hearts Matter's talk with our new Interim Chief Executive\, Rob Legge DESCRIPTION:If you are interested in participating please scan the QR code in this letter which will lead you to the joining form. \n\n\n \n \n Little Hearts Matter's Catchup with Interim Chief Executive Rob Legge\n \n \n Δ\n \n \n\n \n Full Name(Required)\n \n \n \n Please separate names with commas.\n \n \n \n \n Please tick the box that applies to you;\n \n Parent of a child with a single ventricle heart condition\n \n \n Adult with a single ventricle heart condition\n \n \n Medical professional\n Names of attendees Add RemoveEmail(Required)\n \n Phone(Required)Photo Permissions(Required)\n \n Yes I agree to the LHM media consent form \n \n \n No I don't agree\n Little Hearts Matter may want to live broadcast or screen capture this event for publishing online\, please indicate below your acceptance or not of their use by LHM in the future. URL:https://www.lhm.org.uk/event/little-hearts-matters-talk-with-our-new-interim-chief-executive-rob-legge/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250830T130000 DTEND;TZID=Europe/London:20250830T140000 DTSTAMP:20260514T110336 CREATED:20250819T101330Z LAST-MODIFIED:20250902T091113Z UID:22474-1756558800-1756562400@www.lhm.org.uk SUMMARY:LHM Kidz Jigzy's Does sessions DESCRIPTION:In this Jigsy does session we are going meet Amy who also has a special heart & we will get to know each other by talking about who we live with and creating a family tree. \n\n  URL:https://www.lhm.org.uk/event/lhm-kidz-jigzys-does-sessions/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250818T180000 DTEND;TZID=Europe/London:20250818T190000 DTSTAMP:20260514T110336 CREATED:20250811T113013Z LAST-MODIFIED:20250818T134002Z UID:22435-1755540000-1755543600@www.lhm.org.uk SUMMARY:SVH Adults\, ‘Mental Health and Me’ Workshop DESCRIPTION:SVH Adults… Please join me\, and our guest speaker Pauline Aiston (Specialist Health Psychologist)\, on Monday 18th August at 6pm-7pm for the ‘Mental Health and Me’ workshop. \nProviding a safe space for discussion\, Pauline will be giving information\, for educational purposes by focusing on a wide range of topics. Some may have the potential to cause distress especially if you or someone you know have had a personal experience – you are free to leave the session if it feels too heavy at any time. Please let me know if you need support. These topics may include depression\, PTSD\, trauma\, phobias\, body dysmorphia\, scaring. \nThe aim of this workshop is to support the needs of the SVH adults\, empowering you to talk about how you feel and the confidence to seek help when navigating mental health and wellbeing as an adult with a single ventricle heart. \nThe workshop will be recorded. If you have something confidential you would like to speak to Pauline or myself about away from the workshop\, please email me a few lines about what you wish to discuss and I will respond to you in an email. If you have questions in the workshop\, please type them into the chat box and we will try our best to get through them. \nA final reminder that anything shared confidentially by your peers within the workshop\, should be met with a supportive and respectful ear. \nSee you there\, \nSharna (sharna@lhm.org.uk) URL:https://www.lhm.org.uk/event/mental-health-and-me-workshop/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250815 DTEND;VALUE=DATE:20250818 DTSTAMP:20260514T110336 CREATED:20250410T094121Z LAST-MODIFIED:20250811T120548Z UID:21433-1755216000-1755475199@www.lhm.org.uk SUMMARY:LHM Youth Residential Activity Event DESCRIPTION:Little Hearts Matter are thrilled to bring back the ever popular Youth Activity Weekend in 2025! \nThe youth team cannot wait to welcome our youth members aged 12-17 at the Pioneer Centre in Kidderminster from Friday 15th  August to Sunday 17th August 2025. \nHere our youth members will have the opportunity to create/revisit friendships with other youth members\, join in with fun activities such as the high ropes\, zip wire and archery and learn more about managing their life with half a working heart. \nSiblings are welcome but places are limited so be sure to apply via the application form by clicking the link! \n\n  URL:https://www.lhm.org.uk/event/lhm-youth-residential-activity-event/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250813T180000 DTEND;TZID=Europe/London:20250813T190000 DTSTAMP:20260514T110336 CREATED:20250721T103847Z LAST-MODIFIED:20250721T103847Z UID:22383-1755108000-1755111600@www.lhm.org.uk SUMMARY:Adult Members Autumn Fundraiser Consultation DESCRIPTION:Help Us Shape a Fundraising Challenge! \nDear Adult\, LHM Members \nWe’re cooking up something exciting for this autumn — but we need you to help make it truly special. \nLittle Hearts Matter is inviting adult members to join us for a collaborative workshop where we’ll brainstorm and shape a fundraising challenge that you and other members can get involved in — something meaningful\, accessible\, and fun! \n💡 We want to hear your ideas\n🤝 We want to build something together\n🎯 We want to create a challenge that truly works for you \nWhether you’ve got a spark of an idea or just want to be part of something new\, your input will help make this Fundraising Challenge a success for our community and supporters alike. \nIf you have any questions please email Katie Banks – Katie@lhm.org.uk \n\n\n \n \n SVH Adult member Autumn Fundraiser Consultation August 2025\n \n \n Δ\n \n \n\n \n Name(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Address(Required) \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n County / State / Region\n \n \n ZIP / Postal Code\n \n AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua and BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Sint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos IslandsColombiaComorosCongoCongo\, Democratic Republic of theCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzechiaCôte d'IvoireDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatiniEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuinea-BissauGuyanaHaitiHeard Island and McDonald IslandsHoly SeeHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKorea\, Democratic People's Republic ofKorea\, Republic ofKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacaoMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth MacedoniaNorthern Mariana IslandsNorwayOmanPakistanPalauPalestine\, State ofPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarRomaniaRussian FederationRwandaRéunionSaint BarthélemySaint Helena\, Ascension and Tristan da CunhaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan MayenSwedenSwitzerlandSyria Arab RepublicTaiwanTajikistanTanzania\, the United Republic ofThailandTimor-LesteTogoTokelauTongaTrinidad and TobagoTunisiaTurkmenistanTurks and Caicos IslandsTuvaluTürkiyeUS Minor Outlying IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVenezuelaViet NamVirgin Islands\, BritishVirgin Islands\, U.S.Wallis and FutunaWestern SaharaYemenZambiaZimbabweÅland Islands\n Country\n \n \n Email(Required)\n \n Email Permissions(Required)\n \n Yes I do consent\n \n \n No I do not consent\n Little Hearts Matter may want to email you for its future events\, please indicate your acceptance or not of their use by LHM in the future. Your email will be used to send you the Zoom link.I acknowledge and agree to the Zoom being recorded(Required)\n \n Yes I do consent\n Permission for data to be collected and updated(Required)\n \n Yes I do consent\n Little Hearts Matter may want to collect your data such as the details you've given in this form to update our database and email you for its future events.I agree not to share the zoom link with anyone(Required)\n \n Yes\, I agree not to share the zoom link URL:https://www.lhm.org.uk/event/adult-members-autumn-fundraiser-consultation/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250511 DTEND;VALUE=DATE:20250512 DTSTAMP:20260514T110336 CREATED:20241206T113245Z LAST-MODIFIED:20250220T134014Z UID:20687-1746921600-1747007999@www.lhm.org.uk SUMMARY:In Memory Event DESCRIPTION:The National Memorial Arboretum \n11th May National Memorial Arboretum\, Staffordshire. \nJoin us at a special memorial day where we remember children and adults lost to single ventricle heart disease. \nA chance to remember\, celebrate the lives of those we have lost and  share our experiences with other families travelling similar journeys. \n\n\n \n \n In Memory Event\, 11th May 2025\n \n \n Δ\n \n \n\n \n Name of lead contact(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Names of up to an additional 5 adults attending.Names and ages of all children attendingAddress(Required) \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n County / State / Region\n \n \n ZIP / Postal Code\n \n \n Email(Required)\n \n Email Permissions(Required)\n \n Yes I agree to LHM emailing me for future events and updates about the work of LHM\, including support\, information\, fundraising and awareness campaigns.\n \n \n No I don't agree\n Little Hearts Matter may want to email you for its future events\, please indicate your acceptance or not of their use by LHM in the future.Phone Number(Required)Name of child you are attending in memory of(Required)Photo Permissions(Required)\n \n Yes I agree to the LHM photo permission statement \n \n \n No I don't agree\n \nLittle Hearts Matter may want to use any photographs that can be captured during the event\, please indicate below your acceptance or not of their use by LHM in the future.Please tell us the dietary requirements of any of your party.Thank You and we look forward to seeing you on 11th May URL:https://www.lhm.org.uk/event/in-memory-event-2025/ LOCATION:National Memorial Arboretum (Alrewas\, Staffordshire) END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250426 DTEND;VALUE=DATE:20250427 DTSTAMP:20260514T110336 CREATED:20241206T113146Z LAST-MODIFIED:20250225T101059Z UID:20685-1745625600-1745711999@www.lhm.org.uk SUMMARY:Online Open Day and AGM DESCRIPTION:2025 online Open Day and AGM. \n26th April from 10am to 1pm. \nThis parent\, grandparent and adults with SVH event will focus on the needs of children\, young people and adults striving to get the most from their life. \n \nPlease fill in your application form below –  \n\n\n \n \n LHM Online Open Day & Annual General Meeting 2025\n \n \n Δ\n \n \n\n \n Full Name(Required)\n \n \n \n Please separate names with commas.\n \n \n \n \n Please tick the box that applies to you;\n \n Parent of a child with a single ventricle heart condition\n \n \n Adult with a single ventricle heart condition\n \n \n Medical professional\n Names of attendees Add RemoveEmail(Required)\n \n Phone(Required)Which of the following workshops would you like to attend. If parents wish to split themselves across sessions please give us a separate email address for each attendee.\n \n Child 0 to 6 session\n Name\n \n \n \n First\n \n \n \n \n Last\n \n \n Email\n \n Which of the following workshops would you like to attend. If parents wish to split themselves across sessions please give us a separate email address for each attendee.\n \n Child 7 to 11 session\n Name\n \n \n \n First\n \n \n \n \n Last\n \n \n Email\n \n Which of the following workshops would you like to attend. If parents wish to split themselves across sessions please give us a separate email address for each attendee.\n \n Youth 12 to 17 session\n Name\n \n \n \n First\n \n \n \n \n Last\n \n \n Email\n \n Which of the following workshops would you like to attend. If parents wish to split themselves across sessions please give us a separate email address for each attendee.\n \n SVH adult session\n Name\n \n \n \n First\n \n \n \n \n Last\n \n \n Email\n \n Photo Permissions(Required)\n \n Yes I agree to the LHM media consent form \n \n \n No I don't agree\n Little Hearts Matter may want to live broadcast or screen capture this event for publishing online\, please indicate below your acceptance or not of their use by LHM in the future.This is where you can find information about the Annual General Meetinghttps://www.lhm.org.uk/lhm-agm-2025/ URL:https://www.lhm.org.uk/event/online-open-day-and-agm/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250405 DTEND;VALUE=DATE:20250407 DTSTAMP:20260514T110336 CREATED:20241206T112612Z LAST-MODIFIED:20250310T155009Z UID:20683-1743811200-1743983999@www.lhm.org.uk SUMMARY:SVH Adult activity weekend DESCRIPTION:SVH Adult Activity 2025: \nThe news you’ve probably been waiting for. \nI am excited to announce that\, the SVH Adult 2025 activity will be… \nBOWLING IN BIRMINGHAM\, taking place on Saturday 5th April 2025 – Sunday 6th April 2025 \nApplications open 19th January and close 10th March \n\nThere are two types of places to apply for with the SVH Adult activity weekender.\nOne is for a day attendee; another is for an overnight attendee- therefore\, please specify which one you are applying for on your application. \n– Day attendees will attend the educational workshop\, have refreshments\, and attend the bowling activity in the evening with a meal; before making their own way home. \n– Overnight attendees will attend the educational workshop\, have refreshments\, attend the bowling activity in the evening with a meal\, and the overnight stay in the hotel with breakfast on the Sunday before departure. \n• If you do not have online access or have difficulty with computers\, please call the office number if you would like help to complete the application. \nFor more information about the event please email sharna@lhm.org.uk\nA more informative breakdown of the weekender will be given to successful applicants. \nFor the sake of communication and getting relevant information to you\, please make sure the contact details we have for you are up to date as we begin to step away from mass mail outs and move more towards digital methods of communication such as social media and emails. Failure to do this may result in you not receiving communication\, event information and other news. \n  \n  URL:https://www.lhm.org.uk/event/svh-adult-activity-weekend-saturday-5th-and-sunday-6th-april/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250319T190000 DTEND;TZID=Europe/London:20250319T203000 DTSTAMP:20260514T110336 CREATED:20250306T102537Z LAST-MODIFIED:20250312T132111Z UID:21361-1742410800-1742416200@www.lhm.org.uk SUMMARY:PIP Member Workshop DESCRIPTION:I would like to attend the Personal Independence Payment (PIP) workshop on the 19th March\n Fill in this very quick form and we will send you the link to join our workshop on 17th March \n \n Δ\n \n \n\n \n EmailThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media\, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email We are currently only able to offer this service to full members of the charity(Required)\n \n I agree not to share my Zoom link with people outside of LHM\n Photo / Video Consent(Required)\n \n I provide consent\n \n \n I do not provide consent\n We plan to record this workshop so that it can be viewed by members in the future\, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Some people don't want to speak on camera\, so you can use this box to send your PIP related questions to us in advance (optional) URL:https://www.lhm.org.uk/event/pip-member-workshop/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250115 DTEND;VALUE=DATE:20250116 DTSTAMP:20260514T110336 CREATED:20241206T112409Z LAST-MODIFIED:20241220T154109Z UID:20681-1736899200-1736985599@www.lhm.org.uk SUMMARY:DLA Parent Member workshop DESCRIPTION:I would like to attend the Disability Living Allowance (DLA) workshop on 15th January\n Fill in this very quick form and we will send you the link to join our workshop on 22nd November at 7pm \n \n Δ\n \n \n\n \n CommentsThis field is for validation purposes and should be left unchanged.Please tell us your full name(Required)If you use a different name on social media\, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email Please tell us the name of your Heart Child(Required) We are currently only able to offer this service to full members of the charity(Required)\n \n I agree not to share my Zoom link with people outside of LHM\n Photo / Video Consent(Required)\n \n I provide consent\n \n \n I do not provide consent\n We plan to record this workshop so that it can be viewed by members in the future\, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Some people don't want to speak on camera\, so you can use this box to send your Fontan related questions to us in advance (optional) URL:https://www.lhm.org.uk/event/dla-parent-member-workshop/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20241021 DTEND;VALUE=DATE:20241022 DTSTAMP:20260514T110337 CREATED:20241001T105534Z LAST-MODIFIED:20241014T110305Z UID:20501-1729468800-1729555199@www.lhm.org.uk SUMMARY:SVH Adult member zoom meeting DESCRIPTION:Thank you for your interest in the SVH Adult Members ZOOM Meet Up on Monday 21st October 2024 at 5pm-6pm. \nThis will be to discuss the Adult member face to face activity/event\, vote on the type of activity/event and location\, and share some ideas about the priorities of your adult service. \nTo confirm your attendance please complete and submit this application form by Sunday 13th October; and the zoom meeting details will be emailed to you; followed by a FREE little treat in the post to enjoy in time for the zoom meeting. \nWith your permission\, the Zoom meeting will be recorded\, if you would rather it was not recorded\, please choose the most suitable option below. \n  \n\n  URL:https://www.lhm.org.uk/event/svh-adult-member-zoom-meeting/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20241005 DTEND;VALUE=DATE:20241006 DTSTAMP:20260514T110337 CREATED:20240708T093503Z LAST-MODIFIED:20240902T120634Z UID:20217-1728086400-1728172799@www.lhm.org.uk SUMMARY:Volunteering training day – The Midlands DESCRIPTION:Are you interested in joining the support Volunteer team? \nThe Little Hearts Matter team rely on the support that our member volunteers offer to fellow members. There is nothing better than parents being able to speak to other parents and adults living with half a heart linking with their peers and young people on similar journeys. \nThe whole service team offer support over the phone\, via text and online with general and focused support such as antenatal diagnosis\, education support\, support after a loss. https://www.lhm.org.uk/become-an-lhm-support-volunteer/ \nIf you would like to learn more about our volunteering opportunities complete the form below and we will get in touch. \n\n \n \n Service Volunteer weekend application form\n \n \n Δ\n \n \n\n \n Name(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Address(Required) \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n County / State / Region\n \n \n ZIP / Postal Code\n \n AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua and BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Sint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos IslandsColombiaComorosCongoCongo\, Democratic Republic of theCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzechiaCôte d'IvoireDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatiniEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuinea-BissauGuyanaHaitiHeard Island and McDonald IslandsHoly SeeHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKorea\, Democratic People's Republic ofKorea\, Republic ofKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacaoMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth MacedoniaNorthern Mariana IslandsNorwayOmanPakistanPalauPalestine\, State ofPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarRomaniaRussian FederationRwandaRéunionSaint BarthélemySaint Helena\, Ascension and Tristan da CunhaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan MayenSwedenSwitzerlandSyria Arab RepublicTaiwanTajikistanTanzania\, the United Republic ofThailandTimor-LesteTogoTokelauTongaTrinidad and TobagoTunisiaTurkmenistanTurks and Caicos IslandsTuvaluTürkiyeUS Minor Outlying IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVenezuelaViet NamVirgin Islands\, BritishVirgin Islands\, U.S.Wallis and FutunaWestern SaharaYemenZambiaZimbabweÅland Islands\n Country\n \n \n Email(Required)\n \n Phone number(Required)What membership do you have with us at Little Hearts Matter?(Required)\n \n Parent member\n \n \n Grandparent member\n \n \n Adult member\n What sort of support volunteering are you interested in exploring?Contact preferencesBy clicking submit you agree to receive marketing emails from Little Hearts Matter. You can unsubscribe at any time by clicking the link in the footer of our emails. For information about our privacy practices\, please visit our website. URL:https://www.lhm.org.uk/event/volunteering-training-weekend-the-midlands/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240930 DTEND;VALUE=DATE:20241001 DTSTAMP:20260514T110337 CREATED:20240610T150122Z LAST-MODIFIED:20240925T111048Z UID:20080-1727654400-1727740799@www.lhm.org.uk SUMMARY:Single Ventricle Heart Medical Symposium DESCRIPTION:As part of Little Hearts Matter 30th Anniversary the charity would like to invite medical teams to a Fontan Pathway focused Symposium. \nLiving the best life with a Single Ventricle Heart Circulation \n  \nOver the last 30 years there have been huge advancements in the treatment and outcomes for anyone with a single ventricle heart condition. With improvements in survival have come short- and longer-term challenges for children and adults living with a Fontan Circulation. \nOur symposium aims is to bring UK congenital cardiac teams together to explore innovative treatments and care and to discuss and plan how to advance the management and support of Fontan pathway patients\, with a focus on medical and lifestyle pathways beyond the Fontan operation. \nTopics will include quality of life\, transition\, mental wellbeing\, exercise\, challenges in education and the workplace\, sexual health\, Fontan clinics\, transplantation and palliative care. \nThe conference will be held on Monday 30th September 2024 at the Edgbaston Conference Centre in Birmingham. \nAudience:  Multidisciplinary medical professionals. Doctors\, specialist and lead nurses\, psychologists\, dieticians\, social workers\, youth and adult support workers\, network managers and service leads. \nThe faculty of Dr David Crossland\, Dr Paul Clift\, Professor Kerry Gaskin\, Suzie Hutchinson and Lexie Katsaitis look forward to welcoming you to the event. \nClick here to find out information on what will take place on the event. URL:https://www.lhm.org.uk/event/medical-symposium-conference/ CATEGORIES:Service END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240908 DTEND;VALUE=DATE:20240909 DTSTAMP:20260514T110337 CREATED:20220202T165443Z LAST-MODIFIED:20231207T144413Z UID:13654-1725753600-1725839999@www.lhm.org.uk SUMMARY:🏃 Great North Run 2024 🏃 DESCRIPTION:What could be better than making a difference to families on their half a heart journey? Doing it as part of the world’s biggest half marathon of course!\nJoin our team at the Great North Run in Newcastle on the 8th September 2024 and we’ll be there to support your fundraising every step of the way. The Great North Run is the world’s biggest half marathon and broadcast live on TV in September. It’s a brilliant opportunity to take part in an amazing event with an incredible atmosphere\, all while making a very real difference for the families we support. \nYou will get: \n\nYour own running LHM t-shirt\nSupport with every step of your fundraising\nAccess to our online fundraising community\, Team LHM\nShout outs on our socials (optional)\n\nWe ask for: \n\nA registration fee of £30\nA fundraising target of £350\n\nUp for the challenge!? Give us a shout! Please complete the form below and the team will be in touch. \n\n \n \n LHM Fundraising Form\n \n \n Δ\n \n \n\n \n Thank youThank you so much for choosing to support LHM\, your help means the world to us. Please complete this form and our friendly team will be in touch. Your Name(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Address(Required) \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n County / State / Region\n \n \n ZIP / Postal Code\n \n AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua and BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Sint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos IslandsColombiaComorosCongoCongo\, Democratic Republic of theCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzechiaCôte d'IvoireDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatiniEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuinea-BissauGuyanaHaitiHeard Island and McDonald IslandsHoly SeeHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKorea\, Democratic People's Republic ofKorea\, Republic ofKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacaoMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth MacedoniaNorthern Mariana IslandsNorwayOmanPakistanPalauPalestine\, State ofPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarRomaniaRussian FederationRwandaRéunionSaint BarthélemySaint Helena\, Ascension and Tristan da CunhaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan MayenSwedenSwitzerlandSyria Arab RepublicTaiwanTajikistanTanzania\, the United Republic ofThailandTimor-LesteTogoTokelauTongaTrinidad and TobagoTunisiaTurkmenistanTurks and Caicos IslandsTuvaluTürkiyeUS Minor Outlying IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVenezuelaViet NamVirgin Islands\, BritishVirgin Islands\, U.S.Wallis and FutunaWestern SaharaYemenZambiaZimbabweÅland Islands\n Country\n \n \n Your Email(Required)\n \n Your Phone Number(Required)Already know the event you want to join?Big Hearted FridayGreat North Run 2026Community EventChallenge EventSelect from the drop down list above. Can't see your event listed? Please move on to 'Doing your own thing' belowDoing your own thing? Fab! Tell us about it...Please tell us more about when and how you plan to raise funds for LHM. Examples could be a bake sale\, skydiving\, running a marathon or hosting an event at your workplace / community group. What is your fundraising target?Setting goals can really help. This doesn't have to be an exact science\, a rough idea is fine. We can help approach your employer about matched fundraising\, would you like support with this?\n \n Yes\n \n \n No\n By sending us this form you are allowing us to contact you about the fundraising activity you are planning*(Required)\n \n I understand\n Terms & Conditions(Required)\n \n By submitting this form\, I agree to the LHM Fundraising Terms & Conditions \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n  URL:https://www.lhm.org.uk/event/gnr/ CATEGORIES:Fundraising END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20240821T080000 DTEND;TZID=Europe/London:20240821T170000 DTSTAMP:20260514T110337 CREATED:20240405T085341Z LAST-MODIFIED:20240405T091513Z UID:19675-1724227200-1724259600@www.lhm.org.uk SUMMARY:Youth Activity Residential Event 2024 DESCRIPTION:Little Hearts Matter are thrilled to bring back the ever popular youth activity residential event in 2024! \nThe youth team cannot wait to welcome our youth members aged 12-17 at the Pioneer Centre in Kidderminster from Wed 21st August to Friday 23rd August 2024. \nHere our youth members will have the opportunity to create/revisit friendships with other youth members\, join in with fun activities such as the high ropes\, zip wire and archery and learn more about managing their life with half a working heart. \nSiblings are welcome but places are limited so be sure to apply via the application form below asap! \n  \n\n \n \n 🧡 LHM Youth Residential Activity Event 2024 🧡\n \n \n Δ\n \n \n\n \n Name of youth member (age 12-17)(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Please tick the box that applies to you;\n \n Young person with a single ventricle heart\n \n \n Sibling of a young person with a single ventricle heart\n Youth member's date of birth(Required)Parent's name(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Address(Required) \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n County / State / Region\n \n \n ZIP / Postal Code\n \n \n Email(Required)\n \n Please provide name and age of any siblings attending(Required)Please type "None" if not applicableAre there other conditions\, allergies or dietary requirements we should know about?(Required)Please type "No" if not applicableClaiming a place on this event(Required)\n \n Yes I understand that by claiming a place on this event that I do not use I will incure a charge of £50. This will not be the case if the absence is due to a medical emergency.\n \nLittle Hearts Matter is charged for all places and activities on the youth residential event. Due to places being claimed and unused in the past we have put a new policy in place.Photo Permissions(Required)\n \n Yes I agree to the LHM photo permission statement \n \n \n No I don't agree\n \nLittle Hearts Matter may want to use any photographs that can be captured during the event\, please indicate below your acceptance or not of their use by LHM in the future.Thank You and we look forward to seeing you! URL:https://www.lhm.org.uk/event/youth-activity-residential-event-2024/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240629 DTEND;VALUE=DATE:20240630 DTSTAMP:20260514T110337 CREATED:20240516T120303Z LAST-MODIFIED:20240610T152230Z UID:19964-1719619200-1719705599@www.lhm.org.uk SUMMARY:South West Roadshow event at Crealy Adventure Park DESCRIPTION:If you live in the South West and are treated by the team in the South West Network and are interested in joining the team complete the form set out here. \n\n \n \n South West Roadshow event.\n Saturday 29th June \nCrealy Adventure Park\n\nWe are currently working to gauge if we should book a regional fun day at Crealy Adventure Park next month. \nWe do not want to book and pay for the day if we are not assured of our numbers. If you are interested in joining the LHM team and meeting other families living in the South West please complete the application form below. \nThank you. \n \n Δ\n \n \n\n \n Name (Adult 1)(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Name (Adult 2)\n \n \n \n First\n \n \n \n \n Last\n \n \n Please list children attending\, age and heart condition(Required)Address(Required) \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n County / State / Region\n \n \n ZIP / Postal Code\n \n AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua and BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Sint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos IslandsColombiaComorosCongoCongo\, Democratic Republic of theCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzechiaCôte d'IvoireDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatiniEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuinea-BissauGuyanaHaitiHeard Island and McDonald IslandsHoly SeeHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKorea\, Democratic People's Republic ofKorea\, Republic ofKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacaoMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth MacedoniaNorthern Mariana IslandsNorwayOmanPakistanPalauPalestine\, State ofPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarRomaniaRussian FederationRwandaRéunionSaint BarthélemySaint Helena\, Ascension and Tristan da CunhaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan MayenSwedenSwitzerlandSyria Arab RepublicTaiwanTajikistanTanzania\, the United Republic ofThailandTimor-LesteTogoTokelauTongaTrinidad and TobagoTunisiaTurkmenistanTurks and Caicos IslandsTuvaluTürkiyeUS Minor Outlying IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVenezuelaViet NamVirgin Islands\, BritishVirgin Islands\, U.S.Wallis and FutunaWestern SaharaYemenZambiaZimbabweÅland Islands\n Country\n \n \n Phone(Required)Email(Required)\n \n Please list any food allergies(Required)Consent The data you have given us above will be used to update our member data. Please tick the box to give us permission to contact you about the work of the charity moving forwards.Please fill in our media consent form to allow us to share photos from the event {https://www.lhm.org.uk/media-consent-form/}I understand(Required) Once we have numbers we will come back to you to further confirm if you are taking a place. Please note that once any final bookings are made we will be confirming and paying for places. Unless a family need to withdraw because of illness we may need to charge for people who do not attend. URL:https://www.lhm.org.uk/event/south-west-roadshow-event-at-crealy-adventure-park/ LOCATION:Crealy Adventure Park\, Sidmouth Rd\, Clyst St Mary\,\, Exeter\, England\, EX5 1DR\, United Kingdom END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240505 DTEND;VALUE=DATE:20240506 DTSTAMP:20260514T110337 CREATED:20240129T100222Z LAST-MODIFIED:20240130T112123Z UID:19236-1714867200-1714953599@www.lhm.org.uk SUMMARY:Little Hearts Matter 2024 Memorial Event DESCRIPTION:Little Hearts Matter 2024 Memorial Event \nSunday 5th May \nIn this 30th anniversary year we are holding an expanded memorial event. We will be combining the annual event where we come together to remember the children who have been lost with our memorial walk and craft session. If you would like to join us at the event please click this link and complete the application form. Thank you. \n  \n\n \n \n In Memory Event\, 5th May 2024 - Application Form\n \n \n Δ\n \n \n\n \n Name of lead contact(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Names of up to an additional 5 adults attending.Names and ages of all children attendingAddress(Required) \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n County / State / Region\n \n \n ZIP / Postal Code\n \n \n Email(Required)\n \n Email Permissions(Required)\n \n Yes I agree to LHM emailing me for future events and updates about the work of LHM\, including support\, information\, fundraising and awareness campaigns.\n \n \n No I don't agree\n Little Hearts Matter may want to email you for its future events\, please indicate your acceptance or not of their use by LHM in the future.Phone Number(Required)Name of child you are attending in memory of(Required)Photo Permissions(Required)\n \n Yes I agree to the LHM photo permission statement \n \n \n No I don't agree\n \nLittle Hearts Matter may want to use any photographs that can be captured during the event\, please indicate below your acceptance or not of their use by LHM in the future.Please tell us the dietary requirements of any of your party.Thank You and we look forward to seeing you on 5th May URL:https://www.lhm.org.uk/event/lhm-memorial-event-2024/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20240501T000000 DTEND;TZID=Europe/London:20240508T233000 DTSTAMP:20260514T110337 CREATED:20240402T141859Z LAST-MODIFIED:20240425T125910Z UID:19663-1714521600-1715211000@www.lhm.org.uk SUMMARY:DLA & PIP Campaign DESCRIPTION:DLA & PIP Campaign URL:https://www.lhm.org.uk/event/dla-pip-campaign-2/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20240418T190000 DTEND;TZID=Europe/London:20240418T203000 DTSTAMP:20260514T110337 CREATED:20240405T112822Z LAST-MODIFIED:20240418T142028Z UID:19680-1713466800-1713472200@www.lhm.org.uk SUMMARY:Transition Workshop 2024 DESCRIPTION:  \n  \n\n \n \n I would like to attend the transition workshop\n Fill in this very quick form and we will send you the link to join our workshop on Wednesday the 13th of September. \n \n Δ\n \n \n\n \n LinkedInThis field is for validation purposes and should be left unchanged.Hospital Transition Workshop 18th April 7pm\n \n A workshop with lexie to talk about hospital transition. Paediatric to Adult cardiac services. Please tell us your full name(Required)If you use a different name on social media\, please clarify Please tell us your email address(Required)We will send you the Zoom link in an email We are currently only able to offer this service to full members of the charity(Required)\n \n I agree not to share my Zoom link with people outside of LHM\n Photo / Video Consent(Required)\n \n I provide consent\n \n \n I do not provide consent\n We plan to record this workshop so that it can be viewed by members in the future\, please indicate if you are happy to provide consent for LHM to use your image. We are able to blur you out if you do not consent. Some people don't want to speak on camera\, so you can use this box to send your transition-related questions to us in advance (optional) URL:https://www.lhm.org.uk/event/transition-workshop-2024/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20240402T080000 DTEND;TZID=Europe/London:20240531T170000 DTSTAMP:20260514T110337 CREATED:20240402T150910Z LAST-MODIFIED:20240402T151138Z UID:19665-1712044800-1717174800@www.lhm.org.uk SUMMARY:30 for 30 Challenge – Your Challenge\, Your Way DESCRIPTION:Join us in doing something amazing for yourself and others by participating in the 30 for 30 Challenge throughout April. \nThis April marks 30 years of Little Hearts Matter\, and we’re celebrating by inviting you to join us in making a real difference. With your support\, we can ensure more families have access to vital information\, comfort\, and reassurance when they need it most. \nReady to Make a Difference?\nJoin our community of challengers today and be help change lives\, one challenge at a time. \nSign Up Now!  https://little-hearts-matter.raiselysite.com/ \nLet’s make April a month to remember for Little Hearts Matter and the families we support. URL:https://www.lhm.org.uk/event/30-for-30-challenge-your-challenge-your-way/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240323 DTEND;VALUE=DATE:20240324 DTSTAMP:20260514T110337 CREATED:20230914T093715Z LAST-MODIFIED:20240318T111157Z UID:18068-1711152000-1711238399@www.lhm.org.uk SUMMARY:Little Hearts Matter Open Day and AGM 2024 DESCRIPTION:2024 Open Day and Annual General Meeting \nWe are delighted to be able to invite members to attend the 2024\, 30th Anniversary\, Open Day and AGM\, on the 23rd March at the Yarnfield Conference Centre\, Staffordshire. \nThe event will be filled with interesting talks\, opportunities to socialise and parties to celebrate our anniversary. As well as the main conferences there will be workshop events for child and youth members and a crèche for children under 7. \nWe have also set ourselves a challenge. We want to create a world record by collecting as many people\, children\, youth members and adults\, living with half a heart in the same place at the same time. What a way to celebrate our anniversary. \nWe will also hold our very important annual general meeting where you can vote for  trustees and understand and vote for the charity’s accounts. Please visit our governance site to see details of the trustees standing for election – \nIf you are unable to attend this year you can still submit your voting choices use the link below. \nTrustees up for election or re-election March 2024 – Click here \nThe applications forms show details of accommodation at or close to the event. \nApplications forms – \nThose wishing to apply for a Bursary to help towards their expenses can find the form here – Click here \nWe hope to see as many members as possible at the March event. \n  URL:https://www.lhm.org.uk/event/little-hearts-matter-open-day-2024/ LOCATION:Yarnfield Park\, Stone\, Staffordshire\, ST15 0NL ORGANIZER;CN="Little Hearts Matter":MAILTO:info@lhm.org.uk END:VEVENT END:VCALENDAR