Help us to help young people with half a heart achieve their full potential. Can you imagine what it must be like to discover that you only have half a working heart and that you are different from your friends. Every year hundreds of children are born with only one heart pump, something that can … Continued
Chicago, Mary Poppins, my Fair Lady, Wicked, We Will Rock You, Phantom of the Opera and the Lion King are amongst some great Musicals with some great show stopping songs just waiting to be sung by the Little Hearts Matter members. What better way to celebrate the amazing talent to be found in LHM than … Continued
Stepping out of Shielding – providing information to help you make choices Having spent 12 weeks in a degree of isolation, because of the risks of Covid-19, the advice is now changing. Whether you have been in full shielding or you have chosen to shield because of the vulnerability of a child, teenager or adult … Continued
COVID-19: BCCA updated practical guidance for patients, parents, charities and support groups, 11 June 2020 Introduction The COVID-19 pandemic has been challenging both for those who provide healthcare services and for patients and their families. Clinical staff are grateful for the patience and support demonstrated by patients and families as they continue to work to … Continued
Meet Carys, one of our talented adult members born with a Single Ventricle Heart Condition, she, like so many of our young members is also dyslexic. At just 23 years old, Carys has achieved something amazing, she has been awarded a hard-earned medical degree. She is now Dr Carys MBChB MSc (Dis). LHM Chief Exec … Continued
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Dear Suzie, Thank you for your email. The BCCA has produced guidance for patients with congenital heart disease with respect to Covid-19 which was published on 18/03/2020 and updated 27/03/2020. https://www.bccauk.org/pages/news_box.asp?NewsID=19495711. These outline the BCCA advice that patients with single ventricle circulation should be categorised within the vulnerable group. The guidance acknowledges selected patients … Continued