Parent of a child with a single ventricle heart

Need to talk? Call us on 0121 455 8982 or chat with us on Facebook

Home
About us
Seeking support
Information
Family stories
Fundraising & volunteering
Shop
News & events
Contact
Youth Zone

Become a member

Become a member / Parent of a child with a single ventricle heart

Parent of a child with a single ventricle heart – Registration form

Becoming a member of Little Hearts Matter could not be easier and is free to anyone seeking support and information because they are affected by a diagnosis of a single ventricle heart condition.

Please fill in the form below and a member of our team will be in touch.

Personal Details
Surname*
First name*
Address*
Address Line 1 Address Line 2 Town/City ZIP / Postal Code
Relationship to child*
Contact telephone numbers*
Email address*
If you do not have an email address, please specify NONE.
Facebook Profile Name
This will enable us to identify Closed Facebook page requests quicker. If you do not have a Facebook account, please specify NONE.
Partner's name
Relationship to child
Email address
If you do not have an email address, please specify NONE
Facebook Profile Name
This will enable us to identify Closed Facebook page requests quicker. If you do not have a Facebook account, please specify NONE.
Child's Details
Heart child's name*
Child's date of birth*
Child's gender*
- Female
- Male
Child's diagnosis*
Treatment centre*
Consultant
Stage of surgery*
Siblings' Details
Siblings
Sibling 1 name
Gender
Sibling 1 date of birth
Sibling 2 name
Gender
Sibling 2 date of birth
Sibling 3 name
Gender
Sibling 3 date of birth
Sibling 4 name
Gender
Sibling 4 date of birth
Other siblings' names and dates of birth
Contact Preferences
Would you like to be put in touch with someone who has had a similar experience?
- Yes
- No
Any additional information
Contact*
If you would like to receive updates about the work of LHM, including support & information, fundraising and awareness campaigns, please indicate below your methods of contact:
- Post
- Email
- Phone
*
- I have read and agree to the LHM Membership Terms and Conditions*
MEMBERSHIP OF THE CHARITY REQUIRES AN OPEN AND HONEST SUBMISSION OF INFORMATION ON APPLICATION AND DURING THE TERM OF THE MEMBERSHIP
Little Hearts Matter members come from many walks of life and from many different backgrounds. We offer our support to anyone who contacts us and we hope we can find information for anyone, from any background, seeking our help.
As the charity grows, we and our funders would like to be able to gain a greater understanding of our appeal within different ethnic groups living in the UK.
It is not compulsory but we would be grateful if you would complete this final section of the application form to help us gain a greater understanding of our members’ needs.
Thank you.
- White
- Mixed
- Asian or Asian British
- Black or Black British
- Chinese
- Any other ethnic background

Parent of a child with a single ventricle heart
Parent expecting a child with a single ventricle heart
Parent who has lost a child because of complex congenital heart disease
Grandparent, or expectant grandparent, of a child with a single ventricle heart
Adult with a single ventricle heart
Young person with a single ventricle heart, under the age of 18 years .
Extended family member
Health professional
Education professional
Social service professional
Friend of the charity

Make a donation

Be social with us - our latest tweets and posts

#CarersRightsDay twitter.com/CarersUK/statu…
❤️ twitter.com/IM_org/status/…

Nominations are open for our next Brave Hearts Awards 🏅

We know that a lot of our young people miss out on awards and trips at school and we feel that they, like every young person should be rewarded for what they learn and how they develop 🙌

If you know of a young person with a single ventricle heart aged between 8-17 that has achieved and grown, take a look at our list of awards on www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/ 👈

Nominations will close at the end of January 2020 📅 ... See MoreSee Less

7 hours ago ·

View on Facebook

·Share

Share on Facebook Share on Twitter Share on Linked In Share by Email

👋 Meet Archie, he is 7 years old and was born with Tricuspid Atresia (TA) a rare congenital heart condition. Archie had his Fontan procedure in September at the University Hospital Southampton, Ocean Ward. The aim of the Fontan procedure is to give a child as much energy as having only half a pumping heart will allow. If surgery has gone to plan the children will gradually recover from the operation and go on to gain far more energy than they had before. He had a longer stay than anticipated, due to a number of complications, but was discharged in October.

❤️ “The staff, nurses, doctors, consultants and surgeon were utterly wonderful and we can’t thank them enough. However, it was a consultant anaesthetist, Dr Andy Curry, who stood out in Archie’s mind. His bedside manner, and the relationship of trust that he managed to build up with our very anxious little boy, was astounding to watch. So, on ‘Dress as your Hero Day’ at school, Archie wanted to dress as his hero…”I want to dress as Dr Andy because he helped save my life and he’s my friend”…gulp” – Archie’s mum Charlene.

😻 We have been blown away by this story. A month after coming home from hospital and Archie is raising a smile, dressing up as his hero and on his way to school. This is one strong boy, as are all of the children in the LHM family.

🙌 Give this post a share to show your support of Children’s day.

#ChildrensDay
University Hospital Southampton NHS Foundation Trust ... See MoreSee Less

1 day ago ·

View on Facebook

·Share

Share on Facebook Share on Twitter Share on Linked In Share by Email