News from the Department of Work and Pensions.

Many of you know that a number of congenital cardiac charities have been working together to get the Department of Work and Pensions to re-introduce information on childhood heart disease in the DLA assessors guidance. Today we have had a letter from the DWP to say that the information will be introduced in February/March, in … Continued

Keeping children’s heart services safe.

It is always so sad to hear that any child has received poor treatment or care whilst in hospital, or from a community medical team. With advancements in treatment, complex though that treatment is, poor care should never be seen.  Issues around failures in the surgery offered by one surgeon at Leeds Royal Infirmary have … Continued

Answers from NHS England re Restructure of Congenital Cardiac Services

As promised here are the comments and answers that were discussed by the NHS England Review team meeting last Friday An NHS Panel took questions about the possible forthcoming changes to the provision of congenital heart disease in England. Jonathan Fielden – Director of Specialist Commissioning Will Huxter – Regional Director for Specialist Commissioning and … Continued

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