Mirror Online article My Life with Half a heart..Only Half Understood.

As part of LHM’s Awareness week the Mirror online published an amazing article all about the My Life with Half a Heart…Only Half Understood survey. Warren Manger, a journalist and LHM parent member, wrote the article which features the stories of two of our young members, Amber and John. We would like to thank them, … Continued

Developing and testing evidence based patient information on outcomes for families affected by Hypoplastic Left Heart Syndrome

Little Hearts Matter have joined with the Great Ormond Street Hospital Team to help them look at ways to improve their understanding of the outcomes from surgery but most importantly how that information is communicated to families. We are looking for families affected by hypoplastic left heart syndrome to help us with a ‘quality improvement … Continued

The Bi Annual Little Hearts Matter Survey

Dear Little Hearts Matter Members Little Hearts Matter relies on the thoughts, comments and ideas of our members to: Forward the single ventricle heart voice in arenas for change. Gain a collective view on areas of member concern. Gain the care, information and support priorities of the membership. Plan support and information services. Gain ideas … Continued

Tick the Box for LHM Contact

Over the next month the LHM team will be contacting members directly, by post or email, to update them on new rules set by the Charity Commission on how charities can contact their members. We will be asking  our members to give us permission to use their email or full address to keep them up … Continued

Easter Bunny Competition.

Little Hearts Matter has a great new competition for all our families to enter over the Easter holidays.  Mums and Dads, Grandmas and Grandpas can join up with the children to seek out six Easter Bunnies hidden within the pages of our Website. There are clues and tips on where to search them out and … Continued

NHS to notify heart surgery patients of small risk of infection caused by heater cooler units

The NHS is today (Tuesday 21st March) taking the precautionary step of writing to patients who have had certain types of open heart surgery to inform them that they may have a  low risk of having contracted an infection caused by Mycobacterium chimaera (M. chimaera). Over the next two weeks, letters are being sent to patients in England, Scotland, Northern Ireland and Wales who have … Continued

NHS England’s Congenital Cardiac Consultation

We would just like to remind you to take part in the  NHS England congenital cardiac consultation. Having agreed a new set of Standards, which aim to raise the standards of treatment and care across the country,  NHS England have suggested some changes to the service to ensure that the new Standards can be met. … Continued

Children’s Heart Study

The Great Ormond Street team have sent through some detail on their progress with a new study that they are conducting in partnership with many of the other centers on the impact of cardiac surgery. We thoughts that you might like to see their recent patient and parent newsletter. Children’s Heart Study Newsletter Issue 2_FINAL

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