LHM Letter To Professor Paul Cosford

Professor Paul Cosford Medical Director Public Health England                         5th May 2020 Dear Professor Cosford Re: Coronavirus and complex non-correctable congenital heart disease  Little Hearts Matter is a national organisation that supports, informs and advocates for thousands of children, teenagers, young adults, and their families, affected by complex congenital heart conditions that lead to having a … Continued

LHM Letter To The BCCA And The CHD Clinical Reference Group

  To the BCCA and the CHD Clinical Reference Group Re: Single functioning ventricle heart disease and Covid-19 The last few months have seen a rapid health service and Government reaction to Covid-19 and the advice needed by people who are vulnerable and greatly at risk if they catch the virus. Early in the process, … Continued

Exercise When You Have Half A Heart, During Lockdown

We know that many of our young members have been told to isolate themselves to just the house and garden. Some are allowed a walk, run or ride in a wide open space. Getting used to being restricted is tough but working to try and keep fit can be even more of a challenge. We … Continued

Answering questions about ongoing Congenital Cardiac care.

Answering questions about ongoing Congenital Cardiac care With so many changes to healthcare announced in the news many LHM families, teenagers and adults have been asking about what hospitals are doing to keep them safe if they have an outpatient appointment or inpatient treatment planned during the Coronavirus outbreak. Be reassured that doctors and nurses … Continued

BCCA COVID-19 Update – 27.03.2020

Updated BCCA COVID-19 guidance for extremely vulnerable groups with congenital heart disease (27 March 2020) Download Link: COVID_19_BCCA_Update_27_March_2020

Coronavirus and Single Ventricle Heart Disease – Your Questions Answered

Yesterday the British Congenital Cardiac Association has published comprehensive information about adults, teenagers and children with congenital heart conditions. They have set out guidance for the group of patients that they feel are in the higher risk category if they were to catch Coronavirus, bringing advice in line with the Government advice for anyone with … Continued

Members Respond to LHM’s Winter Newsletter

The Little Hearts Matter newsletter is one of the many ways that we keep in touch with our members and supporters, updating them with a carefully selected mix of news, stories and information. This month saw the release of our winter edition of the 25th anniversary newsletter and we received this amazing quote from one … Continued

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