Many members have been asking what risk level and precaution level they should be taking for the children, teenagers and adults with a single ventricle heart condition. It is important to remember that everyone with half a heart is different but it has been agreed that anyone with half a heart is in the vulnerable … Continued
As the representative of over 5800 members, all affected by single ventricle heart disease, Little Hearts Matter responded to the request for more information to support the introduction of Oxygen Saturation Screening in the neonatal period. To read Little Hearts Matter’s response to the UK National Screening Committee, please click here.
Today our membership consists of over four and a half thousand different aged members, each seeking diverse things from the charity but also coming together to support each other and share experiences. This is an amazing growth step which I am passionate that we achieve because there isn’t anywhere else offering this specialised support. We … Continued