During Little Hearts Matter’s Awareness Week – 1 to 7 May 2019 – we’re asking YOU to take on The Half a Heart Beat Challenge!

Children with half a heart have a very different heartbeat to that of heart healthy children. We want more people to know about single ventricle heart conditions and what it means to be diagnosed as having half a heart.

The idea is simple… produce a fun, engaging and entertaining video of you creating a heartbeat rhythm, then share it and challenge your friends to do their version of The Half a Heart Beat.

The video can be anything you want – from your family drumming on recycling bins, stamping your feet in time with your work colleagues; to banging kitchen appliances or bouncing basketballs. Here are some ideas here to get you inspired:

The aim is simple too… to raise the profile of single ventricle heart conditions and Little Hearts Matter, the only UK charity that helps children with these conditions and their families every step of their half a heart journey.

Once you’ve filmed your video, share it via your social media channels (not until 1st May though!) using the hashtag #HalfAHeartBeat and remember to challenge your friends to do the same.

Thank you

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    A huge thank you to Taylor for highlighting our leg pain in CHD study, here's the link for anyone who missed it 👇www.lhm.org.uk/wp-content/uploads/2019/08/CTY18-009PRF.pdfTaylor is a medical student with a single ventricle heart condition, you can follow her amazing journey by clicking the link below 👇Fontan with a Future - A Medical Student's CHD Journey#halfaheartnothalfalife#tuesdaymotivationRaise your hand if you’re a Fontan patient and experience leg pain!All my life I have had occasional aches in my legs, especially after a day of strenuous activity. I thought it was just “growing pains” but I continued to experience this after I stopped growing.Interestingly, a recent study found that this phenomenon is common in Fontan patients. In fact, 94% of patients with Fontan circulation reported leg pain compared to 30% of their healthy siblings. While this study only looked at 220 patients, I think the findings are striking. The authors don’t know exactly what causes this pain but proposed some ideas like decreased oxygenation levels, lower vitamin D or decreased bone density.Fortunately, this pain can be easily treated with over-the-counter pain medicine, heat, or massage. While it is uncomfortable, there is no reason to believe it is harmful or dangerous. Still, it would be interesting to get to the bottom of this and help those who suffer from pain frequently.Would love to hear from others if you have had similar experiences!If you’re interested to read more you can check out the article: www.lhm.org.uk/wp-content/uploads/2019/08/CTY18-009PRF.pdfLeg Pains in CHD: a distressing symptom of a wider problem, Hutchinson et al.#heartwarrior #medicalstudent #wellness #research ... See MoreSee Less

    6 hours ago  ·  

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    "We will never forget hearing the words "he might not survive.""But Loki showed us he was a true fighter.""Sometimes I feel people forget how serious his condition is, because "he is doing well" yes and showing everyone he is battling on, with the biggest smile, the cheekiness and his little ways but yet just one little thing could mean he could end up back in hospital".Shared by LHM member Emma, heart-mum to Loki here who was born with HLHS. Thank you. ... See MoreSee Less

    3 days ago  ·  

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