We’re here for you. Here are just some of the ways we help.

Support Line

Families seeking support and information can contact our seven-day-a-week Support Line. In addition to the expertise and care provided by our office team, outside of office hours the line is managed by parent volunteers who are able to share their own experiences and offer a listening ear.

Free Information

LHM produces an ever-expanding range of information packs which include valuable information on such areas as antenatal, feeding, education, hospital and coping with operations.

Family Linking Service

Our Regional Support Team enables families to link up with other local families so they can support each other and share ideas.

Youth Zone

Our Youth Zone offers dedicated support and information to young people aged 11-18 as well as young adults over 18. We hold regional events so these members can meet other people with the same condition as themselves and we produce a quarterly newsletter packed with tailored lifestyle information.

Open Days and Regional Events

Our hugely popular Open Days and Regional Events allow parents and children to explore medical and lifestyle issues, seek support and friendship from their peers and gain a greater understanding of the work of the charity.

Bereavement Support

Our support never ends and we continue to be there for our families at the time of bereavement. We link bereaved families with parents who have experienced their own loss and who are able to offer their support by telephone and email.

Social Media

Our main Facebook page provides a range of information, advice and family stories. We also have a closed Facebook group for full members only, giving them an opportunity to chat in a safe and secure environment.

Be social with us - our latest tweets and posts

    Nominations are open for our next Brave Hearts Awards 🏅

    We know that a lot of our young people miss out on awards and trips at school and we feel that they, like every young person should be rewarded for what they learn and how they develop 🙌

    If you know of a young person with a single ventricle heart aged between 8-17 that has achieved and grown, take a look at our list of awards on www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/ 👈

    Nominations will close at the end of January 2020 📅
    ... See MoreSee Less

    8 hours ago  ·  

    View on Facebook

    👋 Meet Archie, he is 7 years old and was born with Tricuspid Atresia (TA) a rare congenital heart condition. Archie had his Fontan procedure in September at the University Hospital Southampton, Ocean Ward. The aim of the Fontan procedure is to give a child as much energy as having only half a pumping heart will allow. If surgery has gone to plan the children will gradually recover from the operation and go on to gain far more energy than they had before. He had a longer stay than anticipated, due to a number of complications, but was discharged in October.

    ❤️ “The staff, nurses, doctors, consultants and surgeon were utterly wonderful and we can’t thank them enough. However, it was a consultant anaesthetist, Dr Andy Curry, who stood out in Archie’s mind. His bedside manner, and the relationship of trust that he managed to build up with our very anxious little boy, was astounding to watch. So, on ‘Dress as your Hero Day’ at school, Archie wanted to dress as his hero…”I want to dress as Dr Andy because he helped save my life and he’s my friend”…gulp” – Archie’s mum Charlene.

    😻 We have been blown away by this story. A month after coming home from hospital and Archie is raising a smile, dressing up as his hero and on his way to school. This is one strong boy, as are all of the children in the LHM family.

    🙌 Give this post a share to show your support of Children’s day.

    #ChildrensDay
    University Hospital Southampton NHS Foundation Trust
    ... See MoreSee Less

    1 day ago  ·  

    View on Facebook