We’re here for you. Here are just some of the ways we help.

Support Line

Families seeking support and information can contact our seven-day-a-week Support Line. In addition to the expertise and care provided by our office team, outside of office hours the line is managed by parent volunteers who are able to share their own experiences and offer a listening ear.

Free Information

LHM produces an ever-expanding range of information packs which include valuable information on such areas as antenatal, feeding, education, hospital and coping with operations.

Family Linking Service

Our Regional Support Team enables families to link up with other local families so they can support each other and share ideas.

Youth Zone

Our Youth Zone offers dedicated support and information to young people aged 11-18 as well as young adults over 18. We hold regional events so these members can meet other people with the same condition as themselves and we produce a quarterly newsletter packed with tailored lifestyle information.

Open Days and Regional Events

Our hugely popular Open Days and Regional Events allow parents and children to explore medical and lifestyle issues, seek support and friendship from their peers and gain a greater understanding of the work of the charity.

Bereavement Support

Our support never ends and we continue to be there for our families at the time of bereavement. We link bereaved families with parents who have experienced their own loss and who are able to offer their support by telephone and email.

Social Media

Our main Facebook page provides a range of information, advice and family stories. We also have a closed Facebook group for full members only, giving them an opportunity to chat in a safe and secure environment.

Be social with us - our latest tweets and posts

    LHM Brave Heart Awards! Empowering young people living with half a working heart today.

    Maybe you know an LHM youth member who has achieved something great or has shown a real understanding of their heart condition? Let’s give them some recognition with a Brave Heart Award!

    You can nominate a young person with half a heart for a Brave Heart Award by going to our website here: www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/
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    1 hour ago  ·  

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    We are kicking off the week with some feel-good…

    “Tommy is absolutely smashing reception! He struggled to settle into nursery, but he started reception on the 3rd and absolutely loves it. He got a “star of the week” certificate on his first full week and he doesn’t want to come home on an afternoon! Tommy is doing 5 full days and is pre-Fontan, so I was expecting him to struggle, but he’s not ❤”

    Fantastic news sent in by LHM member Beth, mum to Tommy who was born with half a heart. So pleased he is settling in well.

    Parents, remember we have a new teachers pack created to help schools understand the needs of a child with a single ventricle heart. You can find it here: bit.ly/3jqAbpQ or email [email protected] to request a hard copy.
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    1 day ago  ·  

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