We’re here for you. Here are just some of the ways we help.

Support Line

Families seeking support and information can contact our seven-day-a-week Support Line. In addition to the expertise and care provided by our office team, outside of office hours the line is managed by parent volunteers who are able to share their own experiences and offer a listening ear.

Free Information

LHM produces an ever-expanding range of information packs which include valuable information on such areas as antenatal, feeding, education, hospital and coping with operations.

Family Linking Service

Our Regional Support Team enables families to link up with other local families so they can support each other and share ideas.

Youth Zone

Our Youth Zone offers dedicated support and information to young people aged 11-18 as well as young adults over 18. We hold regional events so these members can meet other people with the same condition as themselves and we produce a quarterly newsletter packed with tailored lifestyle information.

Open Days and Regional Events

Our hugely popular Open Days and Regional Events allow parents and children to explore medical and lifestyle issues, seek support and friendship from their peers and gain a greater understanding of the work of the charity.

Bereavement Support

Our support never ends and we continue to be there for our families at the time of bereavement. We link bereaved families with parents who have experienced their own loss and who are able to offer their support by telephone and email.

Social Media

Our main Facebook page provides a range of information, advice and family stories. We also have a closed Facebook group for full members only, giving them an opportunity to chat in a safe and secure environment.

Be social with us - our latest tweets and posts

    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

    18 hours ago  ·  

    View on Facebook

    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

    2 days ago  ·  

    View on Facebook