We’re here for you. Here are just some of the ways we help.

Support Line

Families seeking support and information can contact our seven-day-a-week Support Line. In addition to the expertise and care provided by our office team, outside of office hours the line is managed by parent volunteers who are able to share their own experiences and offer a listening ear.

Free Information

LHM produces an ever-expanding range of information packs which include valuable information on such areas as antenatal, feeding, education, hospital and coping with operations.

Family Linking Service

Our Regional Support Team enables families to link up with other local families so they can support each other and share ideas.

Youth Zone

Our Youth Zone offers dedicated support and information to young people aged 11-18 as well as young adults over 18. We hold regional events so these members can meet other people with the same condition as themselves and we produce a quarterly newsletter packed with tailored lifestyle information.

Open Days and Regional Events

Our hugely popular Open Days and Regional Events allow parents and children to explore medical and lifestyle issues, seek support and friendship from their peers and gain a greater understanding of the work of the charity.

Bereavement Support

Our support never ends and we continue to be there for our families at the time of bereavement. We link bereaved families with parents who have experienced their own loss and who are able to offer their support by telephone and email.

Social Media

Our main Facebook page provides a range of information, advice and family stories. We also have a closed Facebook group for full members only, giving them an opportunity to chat in a safe and secure environment.

Be social with us - our latest tweets and posts

    Hope 🌈

    "Hello! This is my first time posting since recently joining this group. Here’s my favourite lock-down picture of my son Toby (Complex Pulmonary Atresia), he’s just over 2 years old."

    "We’ve been shielding and now very nervously trying to get back to some normality...for Toby and his 5 year old sister."

    Quote shared by LHM parent member Carlie x
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    2 days ago  ·  

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    Reaching Milestones in Lockdown | Elijah's Fontan Progress

    An update from LHM parent member Michelle, mum to Elijah who had his Fontan operation 2 years ago...

    "Hard to believe this was 2 years ago, and then a pic of him now! 😍 We couldn’t have got through our journey so far without the amazing support from the NHS and the LHM team. We will always be thankful."

    Half a Heart, Not Half a Life x
    ... See MoreSee Less

    3 days ago  ·  

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