The Little Hearts Matter Trustee Board is a dedicated group of professional and dynamic individuals who are passionate about driving the charity forward to consistently deliver a cohesive and progressive strategy which benefits all members.

With many Trustees equally being members, the Board is first and foremost caring and empathetic to the memberships’ needs and as a result is passionate about ensuring the charity continues to support them.

Ten in total, the Trustee Board manages the charity’s finances and ensures it operates within the requirements of UK charity law. The Trustees govern the charity and meet four times in each year as well as contributing, where relevant, as part of different Project Teams alongside the Office Team.

Andrew Shaw, Vice President

Andrew Shaw is a founder Trustee of Little Hearts Matter and has contributed his accounting and business skills to the income generation of the charity.

William Brawn, Vice President

Bill Brawn is one of the country’s leading congenital heart surgeons. He was the first surgeon to successfully bring the treatment for Hypoplastic Left Heart Syndrome to the UK and he is one of the world leaders in the treatment for complex heart conditions. He has been involved with Little Hearts Matter since its inception.

Julie Fairman, Chair

Julie has been involved in the charity for over 18 years following her daughter Evie being diagnosed with Hypoplastic Left Heart Syndrome at Guy’s Hospital in 1996.

She was one of the original Trustees who achieved the Lottery Grant allowing LHM to really expand and grow its services. Now at university studying event management, Evie also remains an active youth member of LHM, regularly representing the charity and championing the need for greater support for children living with congenital heart disease.

Together with her husband Ben and Evie’s 12-year-old brother Freddie, Julie runs a successful holiday cottage letting business in Cornwall whilst also continuing to write for a number of national newspapers and magazines in her role as a PR & Marketing Consultant for some of the UK’s leading digital and media brands.

Having worked for such big companies as Time Warner, IPC Media, eBay and United Artists, Julie has been intrinsically involved in the global growth and acceptance of the internet and social media, both important areas for the charity to now use to ensure it continues to reach and support its membership fully.

David Baumber, Treasurer

David (who is married to Isabel, another Trustee) has a son, Matthew (born June 2002) who has Tricuspid Atresia (a right-sided single ventricle condition), a daughter Rachel, who has a healthy heart but has a genetic condition called achondroplasia (a form of dwarfism), and another son, Thomas.

Matthew has had all three stages of surgery. He was very ill as a baby, with breathing difficulties caused by a paralysed diaphragm which needed additional surgery, together with feeding problems meaning that he was tube-fed until he was nine months old. He also had a difficult time in hospital for his Fontan but he is now learning to cope with his condition combined with the rigours of growing up.

David is a Chartered Accountant and Senior Finance Manager with E.ON having previously worked at PricewaterhouseCoopers. He brings financial skills to the charity in terms of accounting, budgeting, forecasting and cost management.

Peter Groves, Vice Treasurer

Peter lives in Staffordshire with his wife Judith and has three daughters. His first daughter Stephanie was born with Hypoplastic Left Heart Syndrome in March 1994, and due to the condition not being detected until after she was born, together with further complications of the heart, Stephanie only lived for three days. Peter and his wife have been involved with LHM ever since.

In July 2005 Peter set up his own accountancy and business advisory practice after working for 22 years within the accountancy profession.

Outside of family and business commitments Peter’s time is taken up with playing the cornet in a brass band and following the fortunes of his beloved football team Wolverhampton Wanderers.

Isabel Baumber, Trustee

Isabel (who is married to David, the Treasurer) has a son, Matthew (born June 2002) who has Tricuspid Atresia (a right-sided single ventricle condition), a daughter Rachel, who has a healthy heart, but who has a genetic condition called achondroplasia (a form of dwarfism), and another son, Thomas.

Matthew has had all three stages of surgery. He was very ill as a baby, with breathing difficulties caused by a paralysed diaphragm which needed additional surgery, together with feeding problems meaning that he was tube-fed until he was nine months old. He also had a difficult time in hospital for his Fontan but he is now learning to cope with his condition combined with the rigours of growing up.

Isabel was an Export Marketing Research Adviser for the British Chambers of Commerce, having previously managed Rover Group’s marketing in Latin America, then elements of Rover’s global communication strategy. As a result, Isabel can provide skills in marketing and communications, market research and support for small businesses. She currently does small amounts of freelance marketing, research and teaching work.

Glenn Wallis, Trustee

Glenn is the principle of a leadership consultancy business that he founded in 2001 and is one of the few people in the world with a Doctorate in Coaching and Mentoring, which provides him with some skills to offer to the charity.

Having provided support to the charity from 2015 through some training, staff recruitment rounds and leadership coaching.

Glenn lives in West London with his wife of nearly 30 years, Vicky. They have two grown up children.

Julie McManus, Trustee

Julie lives in South West London with her husband, Ian and her children, Fintan and Imogen. Fintan was diagnosed with Pulmonary Atresia with Intact Ventricular Septum (PAIVS) in utero at his 20 week scan. He has had a series of surgeries resulting in the final Fontan procedure in 2014.

Julie has practiced as a solicitor since 2004, both in private practice and in house. She currently works as In House Solicitor and Company Secretary at Motability Operations Limited, where she has worked for 11 years.

Julie enjoys spending time with her family with favourite pastimes being walks and cycling together and attempting to surf in both Cornwall and Ireland.

Be social with us - our latest tweets and posts

    "Niamh's not feeling 100% today, I asked her if she'd be more comfortable in pyjamas than Jigzy but bless her heart she said "I like to wear this top because it reminds me of the special people like doctors and nurses and Little Hearts who all make me feel better when I don't feel good, so when I wear Jigzy I always smile and it makes me feel better. "Hooray for Jigzy 🥰 xxx"

    And hooray for children living with half a working heart today, just like Niamh here.

    Please share ❤️👇
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    1 day ago  ·  

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    “Shanniah age 1, HLHS, has truly enjoyed being out and about in the lovely weather so much so she gave herself the shakes 💕”

    If you are a member of the charity and have a feel-good moment to share, please send it to us via email to [email protected]

    Half a heart, not half a life
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    2 days ago  ·  

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