The Little Hearts Matter Trustee Board is a dedicated group of professional and dynamic individuals who are passionate about driving the charity forward to consistently deliver a cohesive and progressive strategy which benefits all members.

With many Trustees equally being members, the Board is first and foremost caring and empathetic to the memberships’ needs and as a result is passionate about ensuring the charity continues to support them.

Ten in total, the Trustee Board manages the charity’s finances and ensures it operates within the requirements of UK charity law. The Trustees govern the charity and meet four times in each year as well as contributing, where relevant, as part of different Project Teams alongside the Office Team.

Andrew Shaw, Vice President

Andrew Shaw is a founder Trustee of Little Hearts Matter and has contributed his accounting and business skills to the income generation of the charity.

William Brawn, Vice President

Bill Brawn is one of the country’s leading congenital heart surgeons. He was the first surgeon to successfully bring the treatment for Hypoplastic Left Heart Syndrome to the UK and he is one of the world leaders in the treatment for complex heart conditions. He has been involved with Little Hearts Matter since its inception.

Julie Fairman, Chair

Julie has been involved in the charity for over 18 years following her daughter Evie being diagnosed with Hypoplastic Left Heart Syndrome at Guy’s Hospital in 1996.

She was one of the original Trustees who achieved the Lottery Grant allowing LHM to really expand and grow its services. Now at university studying event management, Evie also remains an active youth member of LHM, regularly representing the charity and championing the need for greater support for children living with congenital heart disease.

Together with her husband Ben and Evie’s 12-year-old brother Freddie, Julie runs a successful holiday cottage letting business in Cornwall whilst also continuing to write for a number of national newspapers and magazines in her role as a PR & Marketing Consultant for some of the UK’s leading digital and media brands.

Having worked for such big companies as Time Warner, IPC Media, eBay and United Artists, Julie has been intrinsically involved in the global growth and acceptance of the internet and social media, both important areas for the charity to now use to ensure it continues to reach and support its membership fully.

David Baumber, Treasurer

David (who is married to Isabel, another Trustee) has a son, Matthew (born June 2002) who has Tricuspid Atresia (a right-sided single ventricle condition), a daughter Rachel, who has a healthy heart but has a genetic condition called achondroplasia (a form of dwarfism), and another son, Thomas.

Matthew has had all three stages of surgery. He was very ill as a baby, with breathing difficulties caused by a paralysed diaphragm which needed additional surgery, together with feeding problems meaning that he was tube-fed until he was nine months old. He also had a difficult time in hospital for his Fontan but he is now learning to cope with his condition combined with the rigours of growing up.

David is a Chartered Accountant and Senior Finance Manager with E.ON having previously worked at PricewaterhouseCoopers. He brings financial skills to the charity in terms of accounting, budgeting, forecasting and cost management.

Peter Groves, Vice Treasurer

Peter lives in Staffordshire with his wife Judith and has three daughters. His first daughter Stephanie was born with Hypoplastic Left Heart Syndrome in March 1994, and due to the condition not being detected until after she was born, together with further complications of the heart, Stephanie only lived for three days. Peter and his wife have been involved with LHM ever since.

In July 2005 Peter set up his own accountancy and business advisory practice after working for 22 years within the accountancy profession.

Outside of family and business commitments Peter’s time is taken up with playing the cornet in a brass band and following the fortunes of his beloved football team Wolverhampton Wanderers.

Louise Hall, Trustee

Louise and her family live in rural Cheshire, where she works as a music teacher in several schools and as a lecturer in Education at the University of Chester. Louise and her husband Duncan have had four sons: Sam, Alfie, Freddy and Ben, who has Hypoplastic Left Heart Syndrome.

Ben is a confident, positive-minded 19-year-old who is currently at college and is hoping to progress to university next year to study Learning Disability Nursing. He works part-time as a support worker in a home for people with learning disabilities. Ben is also part of the LHM Youth Council, helping to formulate and support strategies for LHM’s younger members.

Freddy, another of Louise and Duncan’s sons, sadly died after an accident in 2006. Freddy’s Fund was set up in his memory within LHM to help raise funds to support specific projects, especially for siblings.

A past Chair of Little Hearts Matter, Louise has been part of the charity’s support team for the last 19 years, focusing particularly on supporting the whole family and developing communication pathways.

Peter Turner, Trustee

Pete lives with his wife Alison in Cardiff. Both of his sons, Will and Charlie, were born with Hypoplastic Left Heart Syndrome. However, Will also suffered from an additional genetic condition which claimed his life when he was only 15 minutes old. Their daughter, Rosie, was born healthy in 2011.

Charlie is now 12 years old and has had all three stages of surgery, with his Fontan completion in 2010. He is a happy, bright and independent young man, who is really enjoying secondary school, and loves music and the theatre. He may have a special heart, but he refuses to let it define him, and continues to live his life to the full.

Pete works as a Senior Manager for Lloyds Banking Group, working within the Retail Commercial Directorate and is primarily responsible for Performance and Productivity across the Retail Business. This involves detailed planning, reporting and financial analysis across a range of products, channels and brands, as well as relationship management with internal and external partners. Prior to this, he was in retail and account management for companies including Canon and Toshiba.

Jonathan Carter, Trustee

Jonathan is a Dental Surgeon working in General and Specialist Practice in Newport, South Wales. He is also the Chairman of Gwent Local Dental Committee. He relies very much on his wife Sue, a GP.

They have three boys, Alex (born 1998) a very keen and capable sportsman, Dylan (born 2006) a typical younger brother and Harry (born 2001) who had a postnatal diagnosis of Hypoplastic Left Heart Syndrome.

Harry completed his Fontan in 2004, having all three stages carried out in the old Evelina Unit in Guy’s Hospital. He now also functions with the aid of a pacemaker. He has a great character and is an inspiration to all he meets. He really lives up to the LHM motto of half a heart, not half a life.

They all live in the beautiful Monmouthshire countryside where they keep chickens and bees. Jonathan also fills his spare time with running and as Chairman of Chepstow Harriers Running Club.

Isabel Baumber, Trustee

Isabel (who is married to David, the Treasurer) has a son, Matthew (born June 2002) who has Tricuspid Atresia (a right-sided single ventricle condition), a daughter Rachel, who has a healthy heart, but who has a genetic condition called achondroplasia (a form of dwarfism), and another son, Thomas.

Matthew has had all three stages of surgery. He was very ill as a baby, with breathing difficulties caused by a paralysed diaphragm which needed additional surgery, together with feeding problems meaning that he was tube-fed until he was nine months old. He also had a difficult time in hospital for his Fontan but he is now learning to cope with his condition combined with the rigours of growing up.

Isabel was an Export Marketing Research Adviser for the British Chambers of Commerce, having previously managed Rover Group’s marketing in Latin America, then elements of Rover’s global communication strategy. As a result, Isabel can provide skills in marketing and communications, market research and support for small businesses. She currently does small amounts of freelance marketing, research and teaching work.

Hannah Palmer, Trustee

Hannah was born in 1994 with half a heart and has had several operations to keep her alive. Hannah says that having a heart condition has been hard but she does her best to live life to the full in spite of her limitations. Her family have been members of Little Hearts Matter for 13 years and she says the charity has been a massive help to them over the years. Hannah says: “I can honestly say that I would not be the person I am today without the charity. I stood for the Board of Trustees because I want to bring the experiences that I have had and use them to help the other members of Little Hearts Matter. I was a member of the Little Hearts Matter Youth Council from 2009 to 2015 and I wanted to help run a charity that has been such a great support system for me through some of the intense years of my life. I want to help all the other members have the great experiences I did.”

Having a heart condition hasn’t stopped Hannah from doing what she loves and in 2015 she completed a Higher National Certificate in Welsh at Aberystwyth. She is also currently working at the RAF Museum in Cosford. Hannah enjoys musical theatre and is often taking part in shows wherever she goes. She believes that having half a heart doesn’t mean she has to have half a life.

Glenn Wallis, Trustee

Glenn is the principle of a leadership consultancy business that he founded in 2001 and is one of the few people in the world with a Doctorate in Coaching and Mentoring, which provides him with some skills to offer to the charity.

Having provided support to the charity from 2015 through some training, staff recruitment rounds and leadership coaching.

Glenn lives in West London with his wife of nearly 30 years, Vicky. They have two grown up children.

Julie McManus, Trustee

Julie lives in South West London with her husband, Ian and her children, Fintan and Imogen. Fintan was diagnosed with Pulmonary Atresia with Intact Ventricular Septum (PAIVS) in utero at his 20 week scan. He has had a series of surgeries resulting in the final Fontan procedure in 2014.

Julie has practiced as a solicitor since 2004, both in private practice and in house. She currently works as In House Solicitor and Company Secretary at Motability Operations Limited, where she has worked for 11 years.

Julie enjoys spending time with her family with favourite pastimes being walks and cycling together and attempting to surf in both Cornwall and Ireland.

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