The Little Hearts Matter Trustee Board is a dedicated group of professional and dynamic individuals who are passionate about driving the charity forward to consistently deliver a cohesive and progressive strategy which benefits all members.

With many Trustees equally being members, the Board is first and foremost caring and empathetic to the memberships’ needs and as a result is passionate about ensuring the charity continues to support them.

Ten in total, the Trustee Board manages the charity’s finances and ensures it operates within the requirements of UK charity law. The Trustees govern the charity and meet four times in each year as well as contributing, where relevant, as part of different Project Teams alongside the Office Team.

Andrew Shaw, Vice President

Andrew Shaw is a founder Trustee of Little Hearts Matter and has contributed his accounting and business skills to the income generation of the charity.

William Brawn, Vice President

Bill Brawn is one of the country’s leading congenital heart surgeons. He was the first surgeon to successfully bring the treatment for Hypoplastic Left Heart Syndrome to the UK and he is one of the world leaders in the treatment for complex heart conditions. He has been involved with Little Hearts Matter since its inception.

David Baumber, Chair

David (who is married to Isabel, another Trustee) has a son, Matthew (born June 2002) who has Tricuspid Atresia (a right-sided single ventricle condition), a daughter Rachel, who has a healthy heart but has a genetic condition called achondroplasia (a form of dwarfism), and another son, Thomas.

Matthew has had all three stages of surgery. He was very ill as a baby, with breathing difficulties caused by a paralysed diaphragm which needed additional surgery, together with feeding problems meaning that he was tube-fed until he was nine months old. He also had a difficult time in hospital for his Fontan but he is now learning to cope with his condition combined with the rigours of growing up.

David is a Chartered Accountant and Senior Finance Manager with E.ON having previously worked at PricewaterhouseCoopers. He brings financial skills to the charity in terms of accounting, budgeting, forecasting and cost management.

Peter Groves, Treasurer

Peter lives in Staffordshire with his wife Judith and has three daughters. His first daughter Stephanie was born with Hypoplastic Left Heart Syndrome in March 1994, and due to the condition not being detected until after she was born, together with further complications of the heart, Stephanie only lived for three days. Peter and his wife have been involved with LHM ever since.

In July 2005 Peter set up his own accountancy and business advisory practice after working for 22 years within the accountancy profession.

Outside of family and business commitments Peter’s time is taken up with playing the cornet in a brass band and following the fortunes of his beloved football team Wolverhampton Wanderers.

Isabel Baumber, Trustee

Isabel (who is married to David, the Treasurer) has a son, Matthew (born June 2002) who has Tricuspid Atresia (a right-sided single ventricle condition), a daughter Rachel, who has a healthy heart, but who has a genetic condition called achondroplasia (a form of dwarfism), and another son, Thomas.

Matthew has had all three stages of surgery. He was very ill as a baby, with breathing difficulties caused by a paralysed diaphragm which needed additional surgery, together with feeding problems meaning that he was tube-fed until he was nine months old. He also had a difficult time in hospital for his Fontan but he is now learning to cope with his condition combined with the rigours of growing up.

Isabel was an Export Marketing Research Adviser for the British Chambers of Commerce, having previously managed Rover Group’s marketing in Latin America, then elements of Rover’s global communication strategy. As a result, Isabel can provide skills in marketing and communications, market research and support for small businesses. She currently does small amounts of freelance marketing, research and teaching work.

Julie McManus, Trustee

Julie lives in South West London with her husband, Ian and her children, Fintan and Imogen. Fintan was diagnosed with Pulmonary Atresia with Intact Ventricular Septum (PAIVS) in utero at his 20 week scan. He has had a series of surgeries resulting in the final Fontan procedure in 2014.

Julie has practiced as a solicitor since 2004, both in private practice and in house. She currently works as In House Solicitor and Company Secretary at Motability Operations Limited, where she has worked for 11 years.

Julie enjoys spending time with her family with favourite pastimes being walks and cycling together and attempting to surf in both Cornwall and Ireland.

Warren Manger, Trustee

Warren and his wife Verity have a three year-old son, Haydn, whose diagnoses include Left Atrial Isomerism, Hypoplastic Left Heart Syndrome and Double Outlet Right Ventricle. Haydn recently underwent a Kawashima operation on a pathway towards a Fontan completion.

As a journalist, Warren led the features coverage for the Daily Mirror’s successful Change the Law for Life campaign to introduce an opt-out organ donor register. This included securing celebrity support from transplant recipients England footballer Andy Cole and TV comedian Eddie Large.

Warren now works as a communications specialist at Warwick Business School, but continues to help charities gain media attention as a freelance journalist.

He has supported LHM with its awareness and fundraising campaigns, helping the charity to achieve national media coverage. He aims to use his media expertise and contacts to help the charity continue to increase its profile, maximise its ability to support and represent members, and raise awareness about single ventricle complex heart disease.

Molly O'Herlihy, Trustee

I am a member of LHM and have been for a long time. I have a congenital heart condition called Tricuspid Atresia and a epicardial pacemaker. I love walking my dog around our local field. I enjoy reading books and have set myself the bucket list challenge of 100 books. Currently three books have been read. I’ve recently been working more on my garden and enjoying learning about different plants. I’ve had some raised beds and plants bought for me. Now I’m just trying to learn the names!

I work in pastoral support within the education system. I am also currently a youth mentor volunteer for LHM

Alex Pearce, Trustee

Alex lives in Cambridgeshire, with his wife Kate and two sons. He is a cardiac physiologist specialising in Echo. He has worked in the NHS for more than 15 years, and currently manages a cardiac diagnostic department in Suffolk. Additionally, he is the Trust Lead Healthcare Scientist and Regional Representative for the British Society of Echocardiography for the East of England.

Alex and Kate’s youngest son, Jacob, was diagnosed with congenital heart disease during his 20-week scan. This of course, posed additional personal trauma for Alex, given his profession. Jacob was born in 2018 and was transferred to Great Ormond Street Children’s Hospital for his BT-Shunt and then his Glenn later that year. Jacob is currently awaiting his Fontan, planned for 2021.

Alex is determined to use his professional knowledge and connections to further benefit Jacob’s life and that of the LHM community.

Laura Griffin, Trustee

Laura is a professional fundraising consultant with over 20 years’ experience in the corporate and non-profit sectors, having started her career in publishing at BBC Studios and then the Hachette Livre group. She has previously held senior roles at Save the Children, Camfed and the Natural History Museum, and over the past four years’ consulting has delivered strategic projects and services for clients including UNICEF and the RSPB, acting in leadership roles in-house, brokering significant new partnerships and writing strategy. She brings her skills to the LHM family with a view to helping support fundraising efforts to grow services.

Laura enjoys living in a rural village with her husband, Simon, spending time with her stepdaughter Cerys, who has HLHS, and being human mum to cockapoo, Lottie. They all love to travel and get out and about in nature.

Hannah Palmer, Trustee

Hannah is 26 years old and currently works for Admiral Insurance as a Total Loss Claims Handler. She was born with half a heart in 1994 and has been a member of Little Hearts Matter, along with her family for nearly 18 years. Having been a Trustee from 2014 to 2020, and learning more about how the Board cares for all the members has been a wonderful experience. Her previous experience as a Youth Councillor with LHM also helped her to learn more about what our younger members want from the Charity.

Throughout the lockdown period Hannah has been working with Suzie and Lexie to help develop the services for adults with a single ventricle heart condition, and this is work she hopes to expand on, working with the other Trustees to expand this service and to help develop other services that have become important to our members.

Be social with us - our latest tweets and posts