As a medical condition-based organisation, Little Hearts Matter relies on the support and expertise of members of the medical and nursing professions.

We rely on these teams to inform us of changes in practice and potential new advances, to validate and contribute to the medical and lifestyle information we create, to work in partnership within arenas for change and whilst conducting research.

The support the charity gains comes from all of the congenital cardiac units from across the whole of the United Kingdom but key contributors are:

  • Dr David Crossland, Consultant Paediatric and Adult Congenital Cardiologist, Freeman Hospital, Newcastle.
  • Dr Graham Stuart, Consultant Cardiologist, Bristol Royal Infirmary.
  • Dr Paul Clift, Consultant Cardiologist, Queen Elizabeth Hospital, Birmingham.
  • Jo Quirk, Adult Congenital Cardiac Nurse Specialist, Leeds Royal Infirmary.
  • Justine Kid, Congenital Cardiac Nurse Specialist at Birmingham Children’s Hospital.
  • Nicky Pope, Adult Congenital  Nurse Specialist  at the Queen Elizabeth Hospital Birmingham.
  • Amanda Haworth, Congenital Cardiac Nurse Specialist, Alder Hey Children’s Hospital, Liverpool.

Be social with us - our latest tweets and posts

    The Youth Zone is our dedicated support network for young adults aged 11 to 17 living with a single ventricle heart condition. During lock-down, we have been working hard to keep our youth members supported and connected with each other.

    We just wanted to shine some light on this awesome bunch, as they have come so far and achieved so much during the Covid Crisis. One of our highlights being this video, a 26 minute exercise challenge via Zoom, all in support of LHM for the 2.6 challenge. They smashed the routine and raised over £500 for us! Thank you.

    The group keeps in touch through regular Netflix parties and lots of healthy discussion on the private message forums, as well as having access to 1-1 support provided by LHM whenever they need it.

    None of this would be possible without our youth leader Lexie and our awesome youth mentors, please can we all thank them for the incredible work they have been doing for these brave young people throughout this crisis.

    Visit the youth zone here lhm.org.uk/youth-zone/
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    3 hours ago  ·  

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    Open Heart Surgery during Lock-down | LHM parent member Rose shares some uplifting words for us.

    "We were very apprehensive about this surgery as the last one he had was a very long recovery. He literally has made so many people proud, Naayt had his open heart surgery on the 11th June and was discharged 11 days later... home! yes, home!"

    "I couldn't believe it either. You will be so amazed at how pink they are after this surgery and its so lovely to see. The only thing that stops them is the drains which he had 1 left in literally 3 days before discharge and his inr being in range which happened on the day he was allowed home."

    "These kids are so amazing and I am so amazed at how fast they can recover and get through these operations."

    Half a Heart, Not Half a Life x
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    19 hours ago  ·  

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