Be social with us - our latest tweets and posts

    “Jasper, 15, HLHS... half a heart not half a life... ❤”

    So awesome to see our young members, just like Jasper here, getting out and enjoying the sun!

    It is important for all of us to protect ourselves from the effects of the sun, but it is essential for anyone who has only half a working heart. Remember to drink, you need to maintain hydration for a good Fontan circulation, in this heat they get dry very quickly.

    We have a full resource on staying safe in the sun, for people with half a heart, read it here:

    ... See MoreSee Less

    20 hours ago  ·  

    View on Facebook

    “Six years today since Bethany had her Fontan procedure. Grateful to God for how well she is. We all enjoyed some wild swimming in the Thames this afternoon! She was the first in the water and went in more than any of us! Half a heart but definitely not half a life!”

    “Bethany loves swimming. Unfortunately her swimming lessons have been cancelled since March and not likely to start up again until September at the earliest, so we are taking every opportunity to swim elsewhere.”

    Awesome update from LHM parent member Caroline, mum to Bethany here, born with a single ventricle heart. We are encouraging swimming for our members as part of our new ‘get fit for winter’ resource, created for our members. Some swimming pools are just beginning to open for exercise rather than just a splash around. If you have always been a good swimmer and like this style of exercise, it is a great way to exercise the heart.

    Follow the guidelines set out to keep the swim Covid safe. We know that more chlorine is being added to the pool and fewer people are swimming at a time. Make sure you get dry and dressed quickly after being in the water because getting cold is a problem for some Fontan hearts. Wetsuits can help.

    Read our latest resource for LHM members here:
    ... See MoreSee Less

    2 days ago  ·  

    View on Facebook