NEW* Youth Support Volunteers coming to LHM

NEW* Youth Support Volunteers coming to LHM

We know that sometimes being a teenager with half a working heart can make you feel as though no one understands.

As you’re looking towards the future, thinking about further education, work and relationships you may have questions that your cardiac team and youth leader can try to answer but hearing from young adults that have lived through it would be amazing. That’s why we have created and trained a team of young adults with single ventricle hearts to become youth support volunteers!

In February 2020 this team of five young adults will be available for a couple of hours in the evening Mon-Fri to listen, chat to and even talk about their own experiences. They have been working with Lexie our youth leader so that they can offer some support and help young people feel less alone on their journey with half a working heart. The team will begin on Facebook, but eventually move onto our other platforms too!                                                                                                                                                                                                          Our great team will not only be providing 1:2:1 support but some fun evenings of games and quiz’s in the youth social group chat. A great way for our youth members to become sociable and meet other youth members without using up vital spoons of energy. 

Keep an eye out for a timetable being posted soon so you can see when and how our youth members can access this great support. If you’re over 13 and not in our youth Facebook group chats but would like to be just email Lexie our youth leader [email protected] Speak soon Guys!

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    Have you ever seen our first logo?

    In 1994 ‘Left Heart Matters’ was a team of volunteers, supporting families whose children had a life-threatening diagnosis of Hypoplastic Left Heart Syndrome. At the time, Birmingham Children's Hospital and Charity was the only centre treating for this rare condition.

    Half a Heart, Not Half a Life
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    6 hours ago  ·  

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    LHM Lock-down Look-back...

    One of our main tasks during the Covid crisis has been creating new activities and resources for our younger members, particularly those aged under 11 living with a single ventricle heart.

    In March we launched our new 'children's activities' section of the website, providing fun and creative ideas to help keep the younger ones entertained, it's still available here:

    We have also worked on digital events, bringing the younger members together through a safe and fun online environment. This included a children's party hosted by Emilia, sister to LHM's youth leader Lexie and owner of Bespoke Kidz Partiez.

    Thanks to Emilia and her helper 😉 the party went down a treat and the children had so much fun. We received some wonderful feedback including this message from LHM parent member Lauren "Thank you for Niamh's certificate, she was so excited to receive it this morning 😊 she had such a wonderful time at the party last weekend, thank you for organising such a fab event 😃 we hope you're all keeping safe and well ❤️ xxx"

    This is why we do it. It's been a challenging few months for our team, but the journey continues and LHM is doing everything we can to keep our members connected and supported.

    Half a Heart, Not Half a Life x
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    20 hours ago  ·  

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