NEW* Youth Support Volunteers coming to LHM

NEW* Youth Support Volunteers coming to LHM

We know that sometimes being a teenager with half a working heart can make you feel as though no one understands.

As you’re looking towards the future, thinking about further education, work and relationships you may have questions that your cardiac team and youth leader can try to answer but hearing from young adults that have lived through it would be amazing. That’s why we have created and trained a team of young adults with single ventricle hearts to become youth support volunteers!

In February 2020 this team of five young adults will be available for a couple of hours in the evening Mon-Fri to listen, chat to and even talk about their own experiences. They have been working with Lexie our youth leader so that they can offer some support and help young people feel less alone on their journey with half a working heart. The team will begin on Facebook, but eventually move onto our other platforms too!                                                                                                                                                                                                          Our great team will not only be providing 1:2:1 support but some fun evenings of games and quiz’s in the youth social group chat. A great way for our youth members to become sociable and meet other youth members without using up vital spoons of energy. 

Keep an eye out for a timetable being posted soon so you can see when and how our youth members can access this great support. If you’re over 13 and not in our youth Facebook group chats but would like to be just email Lexie our youth leader [email protected] Speak soon Guys!

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    Most children born with a single ventricle heart undergo a series of open heart surgeries from a very early age. In our eyes, they are all champions in their own special way.

    The medical experiences of these families is now being researched by a team of NHS specialists, with an aim to shape the future of patient experience for children affected by congenital heart disease.

    We have collaborated with the NHS to take part in this special and incredibly important research project. It is called Champion and is open to members of Little Hearts Matter – parents, adults and teenagers.

    We urge you to join the study, it is so important to our community and will help to drive real positive changes. All you have to do is answer a few questions. Please complete an application form and you will be contacted by LHM with more info.

    Here is the application form 👉 bit.ly/35KLG7n

    Photo of Acer, TGA, and VSD, kindly shared by parent member Katie, thank you.
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    11 hours ago  ·  

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    If you didn't snap it 📸 it didn't snow 😉

    Great to see so many of our young members getting out and enjoying some fun in the snow! ☃️

    Keeping hands, feet and noses warm when you only have half a heart can be a challenge, so please remember we have our winter warmers information, linked below 👇

    bit.ly/2YeuItK

    Half a heart, not half a life ❤
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    1 day ago  ·  

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