Open Day 2018

We are so excited to say our Open Day 2018 was a great success!

So many of our youth members and their siblings came to the youth workshops and were empowered, learnt about their heart and most importantly made friendships with others in similar situations.

We would firstly like to thank our youth members, this is a day for you and without you it could not have gone ahead.

Secondly we would like to thank our Youth Volunteers, Sammy Elston, Jon Hudson and Cherry-Lee Pilkington for coming to help us on their weekend and support the running of the workshops, the young people and of course the pizza party!

Last but by no means least we had some amazing speakers come in to run workshops for our youth members, they included;

James Anthony – QE Cardiologist speaking on Sports and Exercise

Joy Whitehouse – SRS UK LTD speaking on careers and further education.

Diana Neagu – Rainbow Trust Sibling Specialist

Lucky Harris-Leighton – Rainbow Trust Sibling Specialist

Dr Paul Clift – ACHD Specialist hosting Q&A session

Will Goodenough – Senior Member talking in Q&A session

Andrew Kerry – Senior Member talking in Q&A session

Carys Allen – Senior Member talking in Q&A session

All in all a great day!

Be social with us - our latest tweets and posts

    Tonight's episode of 'My Life' on CBBC follows the amazing story of LHM youth member Jack, tune in at 5:30 PM ❤️

    'My New Heart' follows Jack's inspiring journey through living with half a working heart, his transplant and life post transplant. This is a moving documentary we were privileged to help out with and thankful to be credited at the end to help spread awareness of life with a single ventricle heart.

    'My Life - My New Heart' premieres on CBBC tonight, Tuesday 18th at 5:30 PM.
    ... See MoreSee Less

    5 hours ago  ·  

    View on Facebook

    Social Media Support

    Single ventricle conditions are so rare that many of our families do not know anyone else locally who is facing the same challenges. Through our private social media groups and the LHM newsletter, we are able to link our members with other heart families across the UK.

    This gives them a chance to keep up to date with the charity and connect with other parents going through similar experiences. We also offer one-to-one chat support through Facebook messenger, we always have an ear to listen and we’d love to hear from you ❤️

    Click here to explore our private Facebook groups for LHM members m.facebook.com/littleheartsmatter/groups/?ref=page_internal&mt_nav=0
    ... See MoreSee Less

    8 hours ago  ·  

    View on Facebook