Open Day 2018

We are so excited to say our Open Day 2018 was a great success!

So many of our youth members and their siblings came to the youth workshops and were empowered, learnt about their heart and most importantly made friendships with others in similar situations.

We would firstly like to thank our youth members, this is a day for you and without you it could not have gone ahead.

Secondly we would like to thank our Youth Volunteers, Sammy Elston, Jon Hudson and Cherry-Lee Pilkington for coming to help us on their weekend and support the running of the workshops, the young people and of course the pizza party!

Last but by no means least we had some amazing speakers come in to run workshops for our youth members, they included;

James Anthony – QE Cardiologist speaking on Sports and Exercise

Joy Whitehouse – SRS UK LTD speaking on careers and further education.

Diana Neagu – Rainbow Trust Sibling Specialist

Lucky Harris-Leighton – Rainbow Trust Sibling Specialist

Dr Paul Clift – ACHD Specialist hosting Q&A session

Will Goodenough – Senior Member talking in Q&A session

Andrew Kerry – Senior Member talking in Q&A session

Carys Allen – Senior Member talking in Q&A session

All in all a great day!

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    “Esmé has Hypoplastic Left Heart Syndrome and underwent a bilateral CAVO operation recently at Alder Hey Hospital. This video was just 4 days post-operation, showing how happy she is! Esmé is receiving just a flow to support breathing with no oxygen requirement.”

    “Being in hospital having surgery at this difficult time is hard but we’re thankful that extra measures have been put into place to protect her including a room of her own whilst she recovers and gets fit enough to go home and isolate 💕 “
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