Home : Publications & DVDs
Publications & DVDs
Publications
Below is a list of all the available Publications and DVDs produced by Little Hearts Matter.
You can either download the publication as a PDF document by clicking on the publication name, or you can print off an order form from the bottom of this page and send it into us.
This is a plastic filofax which contains information on single ventricle heart conditions, possible treatments and lifestyle information. This can be added to as the charity produces more information.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication.
Our new antenatal information pack has been written for expectant parents who have received a diagnosis of a single ventricle heart condition during a routine pregnancy scan.
This booklet and supporting DVD (just released) explores the tests that will be offered to help confirm the diagnosis, the treatment options that will be offered during the pregnancy and the management of the pregnancy. It then discusses the treatment options for the baby at birth and the lifestyle challenges faced by children with half a working heart.
This booklet has been written in partnership with Obstetric and Cardiac teams as well as families who have experienced this type of diagnosis.
The DVD (just released) answers many of the questions that LHM are asked about the diagnosis process and the lifestyle issues faced by children and their families. It contains interviews with health professionals and footage of children and their families talking about life at home with heart disease.
The booklet and DVD are free. You can watch the DVD online. Scroll down this page to the DVD section for the link to watch it online.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
This booklet contains some ideas of what to ask the next time you visit the hospital. Questions are divided into the following topics: About The Diagnosis, Treatment Choices, The Future, Delivering The Baby and The Plan For The Baby.
It is part of our antenatal pack.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
(Note: this leaflet is part of our antenatal pack so when filling in the application form select the antenatal booklet and DVD and it will be included.)
This leaflet contains some practical hints and tips for parents expecting a baby with a single ventricle heart condition.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
(Note: this leaflet is NOT part of our antenatal pack and is not currently included on the Publications form. If you would like a printed copy with your Antenatal Pack then please make a note of this on the form or email us.)
This glossary accompanies the antenatal DVD which can be ordered as part of the antenatal pack or viewed online
here.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
(Note: this leaflet is part of our antenatal pack so when filling in the application form select the antenatal booklet and DVD and it will be included.)
This booklet aims to equip parents and children with an understanding of why anticoagulation is needed, how to manage it on a day-to-day basis and what the associated risks are.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
There can be many extra expenses involved when you are looking after a child with a single ventricle heart condition, for example, with feeding, warm clothes for winter and frequent hospital visits.
We hope this guide will point you in the right direction of some of the sources of funding which may be available to help families.
Updated version - 2010
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
Good dental hygiene is extremely important for children with single ventricle heart conditions. The reason it is even more important for these children is that they are at an increased risk of something called Endocarditis.
This leaflet explains about Endocarditis, the impact of certain cardiac medications on dental care and a general guide to good oral hygiene.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
Disability Living Allowance (DLA) is a grant that may be paid every four weeks, on application, by the Department for Work and Pensions (DWP) to help families achieve the extra care that children with complex heart conditions require.
In this booklet we hope to offer help to all those who have to complete the complex forms involved when applying for DLA. It is important to remember that each child is different and the suggestions given here are only general rules and ideas. The booklet accompanies the baby and child sample forms which you can find
here, along with further information about DLA.
This pack is part of a series helping children with single ventricle heart conditions to make the most of their education, and covers Early Years and Infant School. Much of the information is also applicable to pre-school and childcare settings.
The key aims of this pack are to make parents aware of what to do and when, what to expect / what to request, and to give them the tools and confidence to ensure their child is appropriately supported. In a recent membership questionnaire, one member commented "because the children look fine, they think you're a paranoid mother", - we hope this pack will help families to overcome this kind of reaction by explaining the help our children may need.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
Going to school is such an important part of every child's life. The education gained during all the stages of school provides stepping stones to their eventual independence.
Ensuring that each child fulfils their personal potential takes thoughtful preparation by parents, guardians and teachers. If the child has a complex heart problem a great deal of research and planning is needed.
This booklet has been developed as one in a series of resources to help families positively face the challenges that single ventricle heart disease creates for children in school.
In this book we will concentrate on the middle years in school and explore the transition between Key Stage 2 (Years 3, 4, 5 and 6) and Key Stage 3 (senior school).
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
As children develop and age they have to take steps up in their education. For a majority of the time these steps are small and made between classes. But from Year 6 to Year 7 or between junior to middle and the secondary school, the changes usually involve movement between schools. Every school is run differently and many will specialise in a specific area of education.
This booklet has been created to help children and parents to plan the move into secondary school and to build a partnership between school and home life.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
This booklet includes many aspects of feeding a child with a complex heart condition. It includes medical input and parents experiences.
Sections in the booklet include areas associated with feeding a baby, such as bottle feeding, breast feeding, vomiting/reflux, tube feeding and weaning.
It also looks at topics relating to children and covers such things as interesting a child in food, extra calories and increasing fluid intake.
Each section includes a range of ideas, many of which have been suggested by parents based on their experiences.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
The Fontan Booklet provides lots of information on the operation, what you can expect to happen when you go into hospital and the changes you may notice afterwards.
If your child is going in for their Fontan operation you may also find our Preparation for Hospital booklet and Hospital Pack helpful.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
'From Us to You' has been written by families who want to share their personal knowledge of bereavement to support others experiencing similar feelings to their own.
The full book is not available to download but you can order your copy using the form at the bottom of this page.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
A booklet to help give you ideas on how to raise much needed and appreciated income for Little Hearts Matter.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
This leaflet allows young people to discuss with their cardiologist what they can and can't do in P.E. in a helpful format to show to their school.
You can also find a useful article in our Winter 2009 newsletter regarding exercise which you can download
here.
This booklet has been designed to help parents to prepare their children for a hospital visit through the use of books, toys and play activities. It also includes some practical tips which other parents have found useful in the hospital environment.
Little Hearts Matters has a toy and book library to accompany this information booklet, which is available to loan for a period of three weeks to our members. Please contact us for more information.
Please see the How To Order section at the bottom of this page to order a printed copy of this publication or click on the publication title above to download it.
A list of travel insurance companies recommended by members.
Safe and Sutainable Review
To view all our documents on the Safe and Sustainable review click
here.
Additional information available:
You can view our
newsletters online
here.
You can view our
Youth Newsletters online
here.
If you would like a copy of our
DLA Pack you can download it
here.
If you would like information about Travel and
Insurance Companies click
here.
The
LHM Annual Report for 2008 - 2009 can be viewed online
here.
The
LHM Annual Report for 2009 can be viewed online
here.
The
LHM unaudited accounts for 2010 can be viewed online
here.
The
LHM Signed Accounts for 2011 can be viewed online
here.
The
LHM Annual Report for 2011 can be viewed online
here.
DVDs
Links to view our DVDs online will be coming soon.
Books
Hypoplastic Left Heart Syndrome draws together the experiences of leading experts in the diagnostic, medical and social care of children born with hypoplasia of the left heart. Not only does it include details concerning diagnostic possibilities, options for medical and surgical treatments and a history of their evolution, it also gives the reader insights into the long-term effects that treatment has not only on the child, but also on the family as a whole.
This book provides the ultimate reference for anyone treating children with this heart condition, particularly pediatric, cardiac, clinical and nursing teams, radiologists and radiographers, obstetric medical and nursing teams, psychologists, pathologists, geneticists and workers in social care.
This publication cannot be ordered from the office but you can buy it online by clicking on the title above to link to the publisher's website. You can also buy it from Amazon here or Waterstones here.
The book retails at around £188 (prices will vary between sellers) but members can borrow a copy from the office for up to three weeks for free. You may like to be aware that the book is aimed at medical professionals and contains very in depth photographs and terminology.
How To Order
All of our publications are free to members. If you are a member and would like to order a publication please
click here to download the correct form or you can email us a list of the publications you would like to info@lhm.org.uk.
If you area Professional member and would like a copy of one of our publications please
click here to download the correct form. Professional members include hospitals, teachers, social workers etc.
To cover the costs of producing this information we do charge a small fee to non-members for some of our publications. Please view the form for further details.
If you have any questions please ring us on
0121 455 8982 or email
info@lhm.org.uk.