London/Essex

Anne Marie Hennessy

I am member of the LHM telephone support service team as well as a Network coordinator. I live in London with my two children, Lili aged 8 and John aged 7.

John has HLHS and has had all three stages of the Norwood procedure. He suffered a stroke as a baby and has mild hemi-plegia and visual impairment but despite a tricky start, is doing very well now, at mainstream school and even on the Gifted and Talented programme there. He loves singing, football and going to Boy Scouts. I work in Children's Services for the local authority and is happy to talk to families via the LHM helpline whenever possible.

Marion Alston

I am married to Rowan with 2 children, Tamsyn and Ethan and we live in London. I work as a Speech and Language Therapist in the NHS.

Ethan has a single ventricle heart condition and has had modified Norwood stage 1 and 2. Complications following stage 2 left us in hospital for 29 days but since then Ethan is doing remarkably well; is developing normally and has started nursery.